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I posted a month ago about exercise, things have improved.
I'm pretty much at 6 months into my recovery now and most of the tiredness from pneumonia has lifted. I can over exert, but we are talking 60 minutes plus of exercise to make me feel it the following day. As I got back to full time work, I decided to slightly reduce the amount of walking distance I
I'm pretty much at 6 months into my recovery now and most of the tiredness from pneumonia has lifted. I can over exert, but we are talking 60 minutes plus of exercise to make me feel it the following day. As I got back to full time work, I decided to slightly reduce the amount of walking distance I
natswright
in
Lung Conditions Community Forum
2 years ago
2 months post transplant
My daughter was diagnosed with BA at 20days after birth (29feb 2020)had kasai at 1 month and 5days (17march 2020) things were good for until she turned 1year and 10months (December 2021) everything changed very quickly with infections weight loss ,her eyes changed ,I requested her doctor for transplant
My daughter was diagnosed with BA at 20days after birth (29feb 2020)had kasai at 1 month and 5days (17march 2020) things were good for until she turned 1year and 10months (December 2021) everything changed very quickly with infections weight loss ,her eyes changed ,I requested her doctor for transplant
Umie
in
Children's Liver Disease Foundation
2 years ago
How long have your liver enzymes been elevated?
Mine have been in the 40-45 range for the past 2 years before that 70 and 60 for 2-3 years then periods of normal right now ALT 37 and AST is 32 some scales would say this is normal but the lab I went to puts them elevated by 3 points but I’ve been dealing with elevated liver enzymes since 2014
Mine have been in the 40-45 range for the past 2 years before that 70 and 60 for 2-3 years then periods of normal right now ALT 37 and AST is 32 some scales would say this is normal but the lab I went to puts them elevated by 3 points but I’ve been dealing with elevated liver enzymes since 2014
mtk0925
in
British Liver Trust
2 years ago
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Covid at last!
After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly) we finally went on a three times postponed Danube river cruise and....first wife then I tested positive on our return to the UK. Even though the
After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly) we finally went on a three times postponed Danube river cruise and....first wife then I tested positive on our return to the UK. Even though the
richardp
in
CLL Support
2 years ago
Alcohol free drinks
Over the weekend I went to a neighbours barbecue. I didn’t want to appear antisocial, so went for an hour. I said I was off alcohol. I didn’t go into detail...I gave up alcohol over a year ago due to liver disease, and I’m pleased to report that I’m well. I enjoyed my drink...it was a bit different.
Over the weekend I went to a neighbours barbecue. I didn’t want to appear antisocial, so went for an hour. I said I was off alcohol. I didn’t go into detail...I gave up alcohol over a year ago due to liver disease, and I’m pleased to report that I’m well. I enjoyed my drink...it was a bit different.
Aotea2012
in
British Liver Trust
2 years ago
Questions? normal scans but liver problems..
I see a lot of people on here with the same thing, that they have bloods done, normal, have scans, ie ultrasound, CT, MRI all normal then they get a biopsy or F/scan and it shows liver issues, why cant they not see that on other scans? If your liver is fibrotic, or even fatty would it not always show
I see a lot of people on here with the same thing, that they have bloods done, normal, have scans, ie ultrasound, CT, MRI all normal then they get a biopsy or F/scan and it shows liver issues, why cant they not see that on other scans? If your liver is fibrotic, or even fatty would it not always show
Ruggerhead
in
British Liver Trust
2 years ago
Fatigue is back with a vengeance - and low mood as well now
Hallo all Really struggling with fatigue at the moment. Think it might be the worst I've had although I'm not sure because I also seem to have lost my memory and my marbles as well! I feel like I've turned into a wannabe couch potato - and my mood is really low a lot of the time. It's really distressing
Hallo all Really struggling with fatigue at the moment. Think it might be the worst I've had although I'm not sure because I also seem to have lost my memory and my marbles as well! I feel like I've turned into a wannabe couch potato - and my mood is really low a lot of the time. It's really distressing
Josephineinamachine
in
Thyroid UK
2 years ago
Fibroscan today
Hi My husband had a liver transplant in 2019 and has started to feel unwell again. He had a fibroscan today and his results were 4.4 but am unsure what that means. He is having major breathing problems due to COPD, emphysema and suspected asbestosis so had to take steroids for a while which has caused
Hi My husband had a liver transplant in 2019 and has started to feel unwell again. He had a fibroscan today and his results were 4.4 but am unsure what that means. He is having major breathing problems due to COPD, emphysema and suspected asbestosis so had to take steroids for a while which has caused
Kimlescam
in
British Liver Trust
2 years ago
Hepatic Encephalopathy
Hi, My partner was diagnosed with cirrhosis earlier this year and the last 3 weeks have been a nightmare! He has had two hospital stays during this time and the thing that frightens me most is the HE. He got up this morning in his underpants, came downstairs, put a pair of work gloves on and picked up
Hi, My partner was diagnosed with cirrhosis earlier this year and the last 3 weeks have been a nightmare! He has had two hospital stays during this time and the thing that frightens me most is the HE. He got up this morning in his underpants, came downstairs, put a pair of work gloves on and picked up
Graylings
in
British Liver Trust
2 years ago
Has anyone every had an inexperienced tech for Fibro Scan with innacurate results?
I had a fibro scan on my liver. The technician was having a difficult time and had to call someone else in, she to could not get a reading either (they said the numbers were coming up blank) They had some good pictures and said lets just send these and see what happens. Backstory: I had a huge
I had a fibro scan on my liver. The technician was having a difficult time and had to call someone else in, she to could not get a reading either (they said the numbers were coming up blank) They had some good pictures and said lets just send these and see what happens. Backstory: I had a huge
Summtyme
in
British Liver Trust
2 years ago
Reducing levothyroxine and taking HRT
I would appreciate some thoughts on whether I should reduce my Levothyroxine from 125 daily to 125 x Mon-Fri and 100 x Sat/Sun to bring TSH up a little bit. GP has agreed to this and started me on HRT patch (Evorel Conti 50) to see if that helps with the aches and pains as she thinks thyroid is treated
I would appreciate some thoughts on whether I should reduce my Levothyroxine from 125 daily to 125 x Mon-Fri and 100 x Sat/Sun to bring TSH up a little bit. GP has agreed to this and started me on HRT patch (Evorel Conti 50) to see if that helps with the aches and pains as she thinks thyroid is treated
Pooky1
in
Thyroid UK
2 years ago
Getting sick
So I have been very sick for the last week I was forced to bed rest for that time and was starting to feel better but the last 2 days I feel worse but in a different way and I'm starting to ruminate on if I will ever get better or if I'm dying none of my copes are working
So I have been very sick for the last week I was forced to bed rest for that time and was starting to feel better but the last 2 days I feel worse but in a different way and I'm starting to ruminate on if I will ever get better or if I'm dying none of my copes are working
Skjones
in
My OCD Community
2 years ago
engaging with alcohol support for transplant assessment
hiya, partner diagnosed with decompensated cirrhosis 22.12.21 - has remained alcohol free since that date with comparative ease . He is being very well looked after by our local liver unit and whilst we are still hoping he may have some improvement (he is actually pretty well despite a UKMELD of 52)
hiya, partner diagnosed with decompensated cirrhosis 22.12.21 - has remained alcohol free since that date with comparative ease . He is being very well looked after by our local liver unit and whilst we are still hoping he may have some improvement (he is actually pretty well despite a UKMELD of 52)
Rshc
in
British Liver Trust
2 years ago
Can Methylprednisolone affect Ascites?
I am currently on 100mg spironolactone and 40mg furosemide daily to help my Ascites. Recently I hurt my back running and was prescribed a 4mg/day methylprednisolone dose pack to help with the injury. I began taking the steroid last Tuesday evening, and by Wednesday afternoon to my pleasure noticed
I am currently on 100mg spironolactone and 40mg furosemide daily to help my Ascites. Recently I hurt my back running and was prescribed a 4mg/day methylprednisolone dose pack to help with the injury. I began taking the steroid last Tuesday evening, and by Wednesday afternoon to my pleasure noticed
Crooktele79
in
British Liver Trust
2 years ago
Agitation awaiting liver transplant
My husband and I are constantly arguing over the smallest things. He becomes very agitated and verbally abusive. He has compensated cirrhosis and HCC. He is currently awaiting a liver transplant. Our marriage is in tatters.
My husband and I are constantly arguing over the smallest things. He becomes very agitated and verbally abusive. He has compensated cirrhosis and HCC. He is currently awaiting a liver transplant. Our marriage is in tatters.
dimplykidlet
in
British Liver Trust
2 years ago
Liver Transplant Pre / Post op
Just found out I need a liver transplant in two years. Non drinker, liver disease undiagnosed for 20 years but it looks like its finally packing up. Does anyone live in the Cardiff / South Wales area who may have been through this process so I can get a handle on what I've got coming my way. Only found
Just found out I need a liver transplant in two years. Non drinker, liver disease undiagnosed for 20 years but it looks like its finally packing up. Does anyone live in the Cardiff / South Wales area who may have been through this process so I can get a handle on what I've got coming my way. Only found
Chrisjohnsy
in
British Liver Trust
2 years ago
Immuno suppressant choice and no response to Pred treatment
Morning everyone, I posted on here a few weeks ago as my 19 year old son Adam Green had been diagnosed with AIH. Yesterday we had a follow up consultation and he was told he has Cirrhosis stage A/B. Decompensated Transplant may be the option going forwards. His body isnt responding to the 30mg Pred over
Morning everyone, I posted on here a few weeks ago as my 19 year old son Adam Green had been diagnosed with AIH. Yesterday we had a follow up consultation and he was told he has Cirrhosis stage A/B. Decompensated Transplant may be the option going forwards. His body isnt responding to the 30mg Pred over
MicheleG33
in
British Liver Trust
2 years ago
Mannitol and sense of Taste/Smell
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
alexask
in
Cure Parkinson's
2 years ago
Negative then positive then Negative AMA???
I am so confused. I'm not sure if I should even be here. 4 months ago I tested negative for AMA. 2 weeks ago I came back positive. I asked to redo the test and tonight my test results came back negative. Obviously haven't spoke to my Hepatologist yet. I was diagnosed solely based on a positive AMA test
I am so confused. I'm not sure if I should even be here. 4 months ago I tested negative for AMA. 2 weeks ago I came back positive. I asked to redo the test and tonight my test results came back negative. Obviously haven't spoke to my Hepatologist yet. I was diagnosed solely based on a positive AMA test
Hellcat79
in
PBC Foundation
2 years ago
PLEASE HELP! Positive then negative AMA
Thanks for allowing me to join your group. I have a few questions for members. First of all a short back story. I'm 43, 6 months ago I was diagnosed with Stage 3 fatty liver with NASH. I went on a clean diet lost 50 pounds and reversed my condition. The same week I was told I reversed, I was diagnosed
Thanks for allowing me to join your group. I have a few questions for members. First of all a short back story. I'm 43, 6 months ago I was diagnosed with Stage 3 fatty liver with NASH. I went on a clean diet lost 50 pounds and reversed my condition. The same week I was told I reversed, I was diagnosed
Hellcat79
in
PBC Foundation
2 years ago
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