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Pegasys Copay!
Looking to see if anyone has any resources... So, I've been on Pegasys for about two years now ( PV diagnosed 6 years ago) and my allele burden has gone from 80% to 30% so far... I was paying $100 copay for my meds (which was already a lot) and as of January 1st, CVS decided that they were no longer
Looking to see if anyone has any resources... So, I've been on Pegasys for about two years now ( PV diagnosed 6 years ago) and my allele burden has gone from 80% to 30% so far... I was paying $100 copay for my meds (which was already a lot) and as of January 1st, CVS decided that they were no longer
DN515
in
MPN Voice
3 years ago
Botox injection
My wife 70 suffering from gca from last 6 months, she is on prednisone 10 mg from 60 mg starting , still she have headache, pressure on eye , neurologist ,dr is trying now acetazolamide 250 mg twice and also Botox injection , for headache and eye pressure, Are these medicine and injection are helpfull
My wife 70 suffering from gca from last 6 months, she is on prednisone 10 mg from 60 mg starting , still she have headache, pressure on eye , neurologist ,dr is trying now acetazolamide 250 mg twice and also Botox injection , for headache and eye pressure, Are these medicine and injection are helpfull
Rajuguide
in
PMRGCAuk
3 years ago
Sore eyes
Hi all, woke up this morning with feeling like got something in my eye, I use dry eye drops as needed but don't seem to make any difference today. Any suggestions?
Hi all, woke up this morning with feeling like got something in my eye, I use dry eye drops as needed but don't seem to make any difference today. Any suggestions?
Hidden
in
PMRGCAuk
3 years ago
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Reverse Parkinson
Does the Keto diet really help in reversing Parkinson's? Also, how about drinking celery juice every day on empty stomach? Does taking vitamin B2 helps? Has anyone tried any of these? Trying to find some info for my dad.
Does the Keto diet really help in reversing Parkinson's? Also, how about drinking celery juice every day on empty stomach? Does taking vitamin B2 helps? Has anyone tried any of these? Trying to find some info for my dad.
merryba
in
Cure Parkinson's
3 years ago
Horrible migraines
Hello everyone, i used to get migrained every few months or so, i got laser eye surgery and stopped getting migraines for a whole year, until today... i thought i was ok, and if i were to get migraines again they wont be severe. I started to get really bad tunnel vision, i am used to that so i relaxed
Hello everyone, i used to get migrained every few months or so, i got laser eye surgery and stopped getting migraines for a whole year, until today... i thought i was ok, and if i were to get migraines again they wont be severe. I started to get really bad tunnel vision, i am used to that so i relaxed
Kevin160
in
National Migraine Centre
3 years ago
Trabeculectomy
I’ve read numerous posts from people who have had eye surgery and in particular trabeculectomy surgery who have experienced so many post operative complications and also needing further surgery. My glaucoma consultant has advised me to have surgery but I’m undecided? Has anyone had a successful outcome
I’ve read numerous posts from people who have had eye surgery and in particular trabeculectomy surgery who have experienced so many post operative complications and also needing further surgery. My glaucoma consultant has advised me to have surgery but I’m undecided? Has anyone had a successful outcome
Hidden
in
Glaucoma UK
3 years ago
Retinal vein occlusion
I’ve been having injections to stop macular Edema then I had a stroke I was wondering if this has happened to anyone else and what treatment did you get after thay
I’ve been having injections to stop macular Edema then I had a stroke I was wondering if this has happened to anyone else and what treatment did you get after thay
Pochy
in
Macular Society
3 years ago
Dry eye
So, I have been walking 6 miles a day 6 to 7 times per week. Now that it's cold I still walk. My right eye is bothering me. It feels like there is a coating over it. I went to my eye dr. He said it looks like and sounds like dry eye due to the weather. Cold and windy. He gave me eye drops. He checked
So, I have been walking 6 miles a day 6 to 7 times per week. Now that it's cold I still walk. My right eye is bothering me. It feels like there is a coating over it. I went to my eye dr. He said it looks like and sounds like dry eye due to the weather. Cold and windy. He gave me eye drops. He checked
Jstbcuz
in
Anxiety Support
3 years ago
Painful eyes
Hi all, happy 🆕 year. Hope 2022 is a better one, it had better be 🤗☺️. I have blepharitis but of recently have had extremely dry, itchy and painful eyes. Does anyone think it's fibromyalgia causing this? Thanks 😊
Hi all, happy 🆕 year. Hope 2022 is a better one, it had better be 🤗☺️. I have blepharitis but of recently have had extremely dry, itchy and painful eyes. Does anyone think it's fibromyalgia causing this? Thanks 😊
trytobehappytalking
in
Fibromyalgia Action UK
3 years ago
Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Migraine and glaucoma. Scary !!!
Anyone got glaucoma and suffer with migraine auras. I find it very scary. Wondering how you cope if you suffer.
Anyone got glaucoma and suffer with migraine auras. I find it very scary. Wondering how you cope if you suffer.
Lancashirelass07
in
Glaucoma UK
3 years ago
Treatment options
Hello all, I have some questions regarding treatment, just wondered if anyone can help. 1. Has anyone (in the UK) managed to get medication other than SSRI plus antipsychotic? Either NHS or private? If so, how? 2. Has anyone tried multiple SSRIs with little to no success, then tried another that does
Hello all, I have some questions regarding treatment, just wondered if anyone can help. 1. Has anyone (in the UK) managed to get medication other than SSRI plus antipsychotic? Either NHS or private? If so, how? 2. Has anyone tried multiple SSRIs with little to no success, then tried another that does
noname_squirrel
in
My OCD Community
3 years ago
Can secondary glaucoma worsen even though the eye pressure remains at a normal level?
Hi everyone This is my first post & would greatly appreciate your help & advice, please be gentle with me, my apologies if this question has been asked before. My background: Right eye lazy since childhood Left eye: Chronic Uveitis, Cystoid Macular Edema, Pars Plana/Vitrectomy, Cataract surgery, Secondary
Hi everyone This is my first post & would greatly appreciate your help & advice, please be gentle with me, my apologies if this question has been asked before. My background: Right eye lazy since childhood Left eye: Chronic Uveitis, Cystoid Macular Edema, Pars Plana/Vitrectomy, Cataract surgery, Secondary
Cockerspadge
in
Glaucoma UK
3 years ago
Support for blind elderly
I have several risk factors for glaucoma and my question is: if I go completely blind in later life, would I get any help and support? I have no family, and am terrified at the prospect of being dumped at home with noone at all coming in, basically left to starve to death. I don't want to sound melodramatic
I have several risk factors for glaucoma and my question is: if I go completely blind in later life, would I get any help and support? I have no family, and am terrified at the prospect of being dumped at home with noone at all coming in, basically left to starve to death. I don't want to sound melodramatic
Fran555
in
Glaucoma UK
3 years ago
FUNDUS FLUFLUORESCEIN ANGIOGRAPHY USING DYE
I am CKD stage 3 with creatinine 1.6. I have been diagnosed with Macular degeneration and the Retina doctor wants me to undergo a OCT+ICG+SPECTRALIS+FFA + OPDOS FUNDUS to decide the course of treatment. My concern is that since they are using dye injection for the Fundus Fluorescein Angiography
I am CKD stage 3 with creatinine 1.6. I have been diagnosed with Macular degeneration and the Retina doctor wants me to undergo a OCT+ICG+SPECTRALIS+FFA + OPDOS FUNDUS to decide the course of treatment. My concern is that since they are using dye injection for the Fundus Fluorescein Angiography
abaker
in
Early CKD Support
3 years ago
Red eye and GCA
I have had a red eye for 3 days. No pain just uncomfortable and not affectiing sight. I have had GCA diagnosed since March (second time around) and now on 6 mg for the last month and staying on that for next month. Went to pharmacy who told me to ring 111 and see dr. After 1 hour on phone waiting for
I have had a red eye for 3 days. No pain just uncomfortable and not affectiing sight. I have had GCA diagnosed since March (second time around) and now on 6 mg for the last month and staying on that for next month. Went to pharmacy who told me to ring 111 and see dr. After 1 hour on phone waiting for
MaryHelen2
in
PMRGCAuk
3 years ago
Covid anyone?
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
TonyiaR7
in
My MSAA Community
3 years ago
Improvement seen after giving Vitamin B2 (Riboflavin)
Wanted to share this information with the board. I have been giving my mother Vitamin B2 (Riboflavin) for almost 2 months now and there is definitely improvement in her energy levels, balance and walking. She is getting 50mg dose once in hours, 3 times a day (for a total of 150mg/day). Giving it
Wanted to share this information with the board. I have been giving my mother Vitamin B2 (Riboflavin) for almost 2 months now and there is definitely improvement in her energy levels, balance and walking. She is getting 50mg dose once in hours, 3 times a day (for a total of 150mg/day). Giving it
John_morris71
in
Cure Parkinson's
3 years ago
IBS-C & Sibo
I’ve got IBS-C and have recently been diagnosed with Sibo , I’ve had a 2 week course of antibiotics, Rifaximin, but they’ve done nothing , in fact I feel worse now , my stomach is in turmoil, so I’m assuming I still have it , but I haven’t been re tested yet , so I can’t be sure . I gather from my consultant
I’ve got IBS-C and have recently been diagnosed with Sibo , I’ve had a 2 week course of antibiotics, Rifaximin, but they’ve done nothing , in fact I feel worse now , my stomach is in turmoil, so I’m assuming I still have it , but I haven’t been re tested yet , so I can’t be sure . I gather from my consultant
Gardenlover2020
in
IBS Network
3 years ago
Down to 6mg but feeling it! Shall I persevere?
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to 6mg which I’ve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to 6mg which I’ve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
MiloCollie
in
PMRGCAuk
3 years ago
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