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Radioactive iodine
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Success (I hope) with Gabapentin
I have had RLS for more years than I can remember. For years I took mirapexin till I augmented. I tried Pregabalin but I felt dizzy all the time and I put on a lot of weight quickly. I started tramadol and then alternated between that and mirapexin ( yes I went back on it). I coped like this for a long
I have had RLS for more years than I can remember. For years I took mirapexin till I augmented. I tried Pregabalin but I felt dizzy all the time and I put on a lot of weight quickly. I started tramadol and then alternated between that and mirapexin ( yes I went back on it). I coped like this for a long
Coeso
in
Restless Legs Syndrome
7 months ago
Graves disease and RAI
Hi I was diagnosed with Graves disease 16 months ago. I have been on carbimazole on reducing doses and T levels were almost normal but then went up. So I am now on 15mg per day. They asked me to think about radio active iodine. I am very unsure about this. From the little I have read it can make your
Hi I was diagnosed with Graves disease 16 months ago. I have been on carbimazole on reducing doses and T levels were almost normal but then went up. So I am now on 15mg per day. They asked me to think about radio active iodine. I am very unsure about this. From the little I have read it can make your
KoKo30
in
Thyroid UK
1 year ago
Poor communication or misunderstanding?
So... I saw my NHS Consultant on Monday about my leg pain and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated. Long story short she's told me I have to go on the progesterone only pill while I wait for my 1st Lap (hopefully less than 6
So... I saw my NHS Consultant on Monday about my leg pain and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated. Long story short she's told me I have to go on the progesterone only pill while I wait for my 1st Lap (hopefully less than 6
endo_the_stigma
in
Endometriosis UK
7 months ago
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Opioids
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
RLSdaily
in
Restless Legs Syndrome
7 months ago
lower t4 super low tsh armour
Hello! I am 20 years deep at age 40 into basically helping doctors regulate my thyroid after a horrible medical overdose at age 17 my thyroid was never the same ….perhaps it was like that as a kid from a traumatic move because I gained 40 pounds seemingly overnight, however I didn’t become medicated
Hello! I am 20 years deep at age 40 into basically helping doctors regulate my thyroid after a horrible medical overdose at age 17 my thyroid was never the same ….perhaps it was like that as a kid from a traumatic move because I gained 40 pounds seemingly overnight, however I didn’t become medicated
DeedellaD
in
Thyroid UK
11 months ago
Should I apply sick day rules following a foot operation?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
Mfaepink1973
in
PMRGCAuk
7 months ago
Stress - I ignored the obvious ...
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
Predderman2020
in
PMRGCAuk
7 months ago
Oxycodone - the way forward or a dead end?
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
etchea33
in
Restless Legs Syndrome
7 months ago
Urgently seeking pain management tips
Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a couple of separate posts, so this does not become convoluted, but my most immediate need is finding some resolution for the increasing pain I am
Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a couple of separate posts, so this does not become convoluted, but my most immediate need is finding some resolution for the increasing pain I am
13plus
in
SHARE Metastatic Breast Cancer
7 months ago
Help please
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
Liseann
in
Endometriosis UK
7 months ago
Blood test results
Help! I received my blood test results today and had a little panic!! I wondered if I was over medicated. I’m on 50 micrograms Levothyroxine which I realise now that I shouldn’t have taken on the morning of the test. I took the Levo at 5.20am and had the blood test at 10.20am. The results were:- Serum
Help! I received my blood test results today and had a little panic!! I wondered if I was over medicated. I’m on 50 micrograms Levothyroxine which I realise now that I shouldn’t have taken on the morning of the test. I took the Levo at 5.20am and had the blood test at 10.20am. The results were:- Serum
5ESU
in
Thyroid UK
1 year ago
help with gp
hi everyone. I was diagnosed with fibromyalgia a couple of years ago and initially just told to take paracetamol and pace myself by my gp. Early 2023 I saw my gp as my pain was so bad I was off work. I wasn’t sleeping and was prescribed amitriptalyne 10-20 mg each night and my gp made a referral to the
hi everyone. I was diagnosed with fibromyalgia a couple of years ago and initially just told to take paracetamol and pace myself by my gp. Early 2023 I saw my gp as my pain was so bad I was off work. I wasn’t sleeping and was prescribed amitriptalyne 10-20 mg each night and my gp made a referral to the
NannaMillie21
in
Fibromyalgia Action UK
7 months ago
steroid injection for back pain with pain team?
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
Louiseelaine
in
Stanmore Young Spine Group
8 months ago
Tinnitus louder than usual
I had inflammation in my right ear with headache, doctor gave me Otomize, but the headache was still there, went back to the doctor told me to see a pharmacist, they gave me nurofen, didn’t help, went back to the doctor again, they gave me antibiotics and codeine, this seemed to make my headaches worse
I had inflammation in my right ear with headache, doctor gave me Otomize, but the headache was still there, went back to the doctor told me to see a pharmacist, they gave me nurofen, didn’t help, went back to the doctor again, they gave me antibiotics and codeine, this seemed to make my headaches worse
Laineysim51
in
Tinnitus UK
8 months ago
Help!
In the last few years I have put on a lot of weight on my stomach.. but have very slim arms and legs. My waist is now 48 inches. I cannot wear anything that zips up etc around my waist. I am normally a 32 inch waist. I have had my pituitary gland looked at, and it is slightly enlarged, but nothing
In the last few years I have put on a lot of weight on my stomach.. but have very slim arms and legs. My waist is now 48 inches. I cannot wear anything that zips up etc around my waist. I am normally a 32 inch waist. I have had my pituitary gland looked at, and it is slightly enlarged, but nothing
PaulaGreene
in
Thyroid UK
1 year ago
At my wits end
Hi Everybody, Can I buy the Tirsint or not , on Tirosint. Com. I obviously haven't been Prescribed it, as in uk. It'll i can't get it .I'm at wits end . I ask before doctor if they can change it , and they say there is no other medicine .is this true ? How come , just got message say ask for other
Hi Everybody, Can I buy the Tirsint or not , on Tirosint. Com. I obviously haven't been Prescribed it, as in uk. It'll i can't get it .I'm at wits end . I ask before doctor if they can change it , and they say there is no other medicine .is this true ? How come , just got message say ask for other
Goldengirl69
in
Thyroid UK
1 year ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
8 months ago
Tramadol augmentation, what next?
I've received plenty of great info from previous posts and need some help again. I've been on tramadol periodically for last 2 years, currently take 50mg once in evening. I understand that's a low dose for RLS but it has been sufficient to eliminate my night time symptoms. Until recently. I've started
I've received plenty of great info from previous posts and need some help again. I've been on tramadol periodically for last 2 years, currently take 50mg once in evening. I understand that's a low dose for RLS but it has been sufficient to eliminate my night time symptoms. Until recently. I've started
TheGiz
in
Restless Legs Syndrome
8 months ago
Opioids for RLS- some useful information
Having put this in a recent Reply I thought that I'd add a Post to highlight the information from three key sources which may help members in discussion with a doctor: 1. "Where first line treatments have failed due to adverse effects or augmentation, low dose opioids are highly effective and do not
Having put this in a recent Reply I thought that I'd add a Post to highlight the information from three key sources which may help members in discussion with a doctor: 1. "Where first line treatments have failed due to adverse effects or augmentation, low dose opioids are highly effective and do not
ChrisColumbus
in
Restless Legs Syndrome
8 months ago
Fluctuating High Blood Pressure
I've had hypertension 140-150-160/90 for a while and I received treatment (Atacand 16mg)from a cardiologist, but I have the impression that the medicine interacts with my hormone level, as if it puts me in a hypo state. I take it in the morning 2 hours after the hormone dose(112 t4 and 6t3), as if my
I've had hypertension 140-150-160/90 for a while and I received treatment (Atacand 16mg)from a cardiologist, but I have the impression that the medicine interacts with my hormone level, as if it puts me in a hypo state. I take it in the morning 2 hours after the hormone dose(112 t4 and 6t3), as if my
hipolion
in
Thyroid UK
1 year ago
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