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Recent diagnosis questions & concerns, please respond to any that you can
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
G6AS
in
Prostate Cancer Network
26 days ago
Essential read & listen (watch) resources for ALL PCa patients - The 2023 Walsh Guide & Peter Attia's podcast with Dr. Ed. Schaeffer -10/23
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
cujoe
in
Fight Prostate Cancer
28 days ago
HRT post ovarian cancer
Hi, does anyone have anything on HRT post ovarian cancer and radical hysterectomy? I’m 14 years post diagnosis and struggling with brain fog and fatigue. Is HRT an option?
Hi, does anyone have anything on HRT post ovarian cancer and radical hysterectomy? I’m 14 years post diagnosis and struggling with brain fog and fatigue. Is HRT an option?
ruthc
in
My Ovacome
1 month ago
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The role of PSMA PET/CT in predicting downgrading in patients with Gleason score 4+4 prostate cancer in prostate biopsy - W Jour Uro 5/21/24
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
cujoe
in
Fight Prostate Cancer
1 month ago
Blood in urine
Hi all. This is my first post here. I had a robotic radical prostatectomy three months ago. In the first few weeks after surgery, my urine was clear, but then I started showing blood on my pads during walks. This has continued ever since and I'm now at 12 weeks after surgery. These are pink spots, not
Hi all. This is my first post here. I had a robotic radical prostatectomy three months ago. In the first few weeks after surgery, my urine was clear, but then I started showing blood on my pads during walks. This has continued ever since and I'm now at 12 weeks after surgery. These are pink spots, not
LoveDrumming
in
Prostate Cancer Network
1 month ago
Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
2 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
2 months ago
THIS IS NOT GOOD over 40 Liver Lesions
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
2 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
Advice on my results please.
Hi there, I have the results of my Thyroid tests and wondered if anyone could help me out please (shown in photo)? Someone has looked at them for me and said my FT3 isn't great but wouldn't necessarily be classed as low Thyroid. This person flagged my B12 and Folate results which they said were low
Hi there, I have the results of my Thyroid tests and wondered if anyone could help me out please (shown in photo)? Someone has looked at them for me and said my FT3 isn't great but wouldn't necessarily be classed as low Thyroid. This person flagged my B12 and Folate results which they said were low
Sunnyyellowlady
in
Thyroid UK
8 months ago
Alternatively this information may be helpful
Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and depression Paw paw capsules for anxiety Okra Greek vegetable with many health benefits and helps the liver and kidneys how to possibly get off thyroxine
Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and depression Paw paw capsules for anxiety Okra Greek vegetable with many health benefits and helps the liver and kidneys how to possibly get off thyroxine
RLSSCARER
in
Restless Legs Syndrome
9 months ago
Any proof that removing a tumor off prostate bed by radiation or surgery is better than just systemic therapy ?
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
2 months ago
Iron and sleep
Moringa is loaded with iron and many healthy vitamins and minerals, no other plant in the world gives more nutrients than moringa, organic black strap molasses is loaded with iron vitamin B and minerals, 5htp is one of my favourite products followed by Valerian and kava, take all things in moderation
Moringa is loaded with iron and many healthy vitamins and minerals, no other plant in the world gives more nutrients than moringa, organic black strap molasses is loaded with iron vitamin B and minerals, 5htp is one of my favourite products followed by Valerian and kava, take all things in moderation
RLSSCARER
in
Restless Legs Syndrome
9 months ago
10-year update still shows no benefit to ART vs early SRT
ART
= adjuvant radiation therapy, within 6 months after radical prostatectomy (RP)
early SRT
= salvage radiation therapy, after PSA ≥ 0.1ng/ml or 3 consecutive rises. Median was 0.2 ng/ml. Median 1 ½ years after RP. Patients risked nothing by waiting, and gained urinary and fecal continence
ART
= adjuvant radiation therapy, within 6 months after radical prostatectomy (RP)
early SRT
= salvage radiation therapy, after PSA ≥ 0.1ng/ml or 3 consecutive rises. Median was 0.2 ng/ml. Median 1 ½ years after RP. Patients risked nothing by waiting, and gained urinary and fecal continence
Tall_Allen
in
Advanced Prostate Cancer
2 months ago
Suddenly Urinary Leakage just walking around, then I have to push / strain to urinate, PSA rising, prostatectomy leakage resolved
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
magnesium
Can anyone advise when is the best time to take magnesium? I currently take Ferrous Fumarate in the morning on an empty stomach with a glass of orange juice. With breakfast I take 75 mg Sertraline plus Vitamin B complex and Vitamin D. At lunchtime I take Thyroxine as it has to be taken 4 hours apart
Can anyone advise when is the best time to take magnesium? I currently take Ferrous Fumarate in the morning on an empty stomach with a glass of orange juice. With breakfast I take 75 mg Sertraline plus Vitamin B complex and Vitamin D. At lunchtime I take Thyroxine as it has to be taken 4 hours apart
NJB71
in
Restless Legs Syndrome
9 months ago
INVOLVEMENT OPPORTUNITY – CENTRAL LONDON (Hepatitis B)
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
BritishLiverTrust1
Partner
in
British Liver Trust
9 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
3 months ago
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