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I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
new blood results
help needed with new blood test results. It is 6 weeks since i have been on 100 levothyroxine and introduced Liothyronine 10mcg daily. Before the test I followed protocol, no medication before, no b vitamins for week before etc. I am pleased that my ferritin has improved but unsure about T3 levels?
help needed with new blood test results. It is 6 weeks since i have been on 100 levothyroxine and introduced Liothyronine 10mcg daily. Before the test I followed protocol, no medication before, no b vitamins for week before etc. I am pleased that my ferritin has improved but unsure about T3 levels?
Hopeful129
in
Thyroid UK
1 year ago
B12 testing...don't know what to do...
Hello all ... I've been looking into possible pernacious anemia, following the advice of a member on my blood test results...my levels have varied a lot over the past few years and despite increasing my dose of Thorne basic B, my overall levels have not increased. (See screenshot attached - the lowest
Hello all ... I've been looking into possible pernacious anemia, following the advice of a member on my blood test results...my levels have varied a lot over the past few years and despite increasing my dose of Thorne basic B, my overall levels have not increased. (See screenshot attached - the lowest
Molly161018
in
Thyroid UK
1 year ago
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Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Firstglantz
in
Prostate Cancer And Gay Men
9 months ago
Could I try BAT to restore sensitivity to previously used antiandrogen treatments.
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
B vitamin absorbtion
Given that individuals with PA cannot absorb B12 via tablet form are we able to absorb the other B vitamins this way? I'm unclear as to whether IF is needed for all B vitamins absorption.Thanks.
Given that individuals with PA cannot absorb B12 via tablet form are we able to absorb the other B vitamins this way? I'm unclear as to whether IF is needed for all B vitamins absorption.Thanks.
doityourself
in
Pernicious Anaemia Society
1 year ago
Enzalutamide any advice/tips for dealing with side effects
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since scans
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since scans
Ronnie7C
in
Advanced Prostate Cancer
9 months ago
Results support please
Hi, I'm a 45 yr old female and I went to the GP last week with a range of symptoms, including onset of pins and needles, limb weakness, tired, mouth sores. They ordered full bloods and I've got the results. The GP has only picked out low Vitamin D and advised me to start on a daily supplement and have
Hi, I'm a 45 yr old female and I went to the GP last week with a range of symptoms, including onset of pins and needles, limb weakness, tired, mouth sores. They ordered full bloods and I've got the results. The GP has only picked out low Vitamin D and advised me to start on a daily supplement and have
Lampy66
in
Pernicious Anaemia Society
1 year ago
The other B vitamins
Hello, I've just read that B6 deficiency can cause pins and beedles and possibly other symptoms similar to B12 deficiency. It's made me wonder about the need to test for other B vits besides Folate and B12. So far my daughter and I have tested B12, Folate, Vit D, Iron Panel, Thyroid antibodies, CRP
Hello, I've just read that B6 deficiency can cause pins and beedles and possibly other symptoms similar to B12 deficiency. It's made me wonder about the need to test for other B vits besides Folate and B12. So far my daughter and I have tested B12, Folate, Vit D, Iron Panel, Thyroid antibodies, CRP
Sneedle
in
Pernicious Anaemia Society
1 year ago
Test results
Hi I've just had a range of bloods done by my Gp as I'm feeling so tired and keep falling a sleep during the day. They all look OK apart from low end for calcium and my ggt liver one. Which could be because of antibiotics I'm permanently on for my cuti or my gallbladder which I'm waiting to be removed
Hi I've just had a range of bloods done by my Gp as I'm feeling so tired and keep falling a sleep during the day. They all look OK apart from low end for calcium and my ggt liver one. Which could be because of antibiotics I'm permanently on for my cuti or my gallbladder which I'm waiting to be removed
France92
in
Thyroid UK
9 months ago
Question….
It seems to me there was a post not too long ago about the Vitamin B complex, low in B6, to use with the high dose Vitamin B1 protocol. I thought I saved it but I can’t find it here or on Facebook. Can someone help me out. Thank you.
It seems to me there was a post not too long ago about the Vitamin B complex, low in B6, to use with the high dose Vitamin B1 protocol. I thought I saved it but I can’t find it here or on Facebook. Can someone help me out. Thank you.
GrandmaBug
in
Cure Parkinson's
1 year ago
Managing post surgery expectations
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
Shopnot
in
Prostate Cancer Network
9 months ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
9 months ago
B1 Therapy question
Six months ago, my neurologist diagnosed me with early stage PD. My prominent symptoms included hand tremors and stiffness. I am on a low dosage of sinemet and it has helped to regulate but not eliminate those symptoms.. I was very intrigued by the testimonials in the book, Parkinson's and the B1
Six months ago, my neurologist diagnosed me with early stage PD. My prominent symptoms included hand tremors and stiffness. I am on a low dosage of sinemet and it has helped to regulate but not eliminate those symptoms.. I was very intrigued by the testimonials in the book, Parkinson's and the B1
jalapeno1
in
Cure Parkinson's
1 year ago
Test results
Hi , Could any one tell me if these indicate hypo. I have increased my b vitamins and vit d but not much has changed with my thyroid results . Last test was January . Could I possibly be needing medication ? Thankyou .
Hi , Could any one tell me if these indicate hypo. I have increased my b vitamins and vit d but not much has changed with my thyroid results . Last test was January . Could I possibly be needing medication ? Thankyou .
moljanie
in
Thyroid UK
1 year ago
Bit of a Laugh for Today
Firstly let me tell those who don't already know, that Radiographers are NOT permitted to talk to you about anything they may or may not see on a Scan. They are qualified to take Pictures, nothing else. The Images are sent to the Consultant Radiologist who reports on the Scans to your Consultant. One
Firstly let me tell those who don't already know, that Radiographers are NOT permitted to talk to you about anything they may or may not see on a Scan. They are qualified to take Pictures, nothing else. The Images are sent to the Consultant Radiologist who reports on the Scans to your Consultant. One
maddie_1234
in
Pelvic Radiation Disease Association
9 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
9 months ago
Thorne vitamin B complex question
Question for anyone who is taking the above supplement. Has it changed the colour of your wee? Mine is a different colour to what it was before I sat taking the tablet it does return to normal colour as the day goes on but thought I would check to see if this was normal
Question for anyone who is taking the above supplement. Has it changed the colour of your wee? Mine is a different colour to what it was before I sat taking the tablet it does return to normal colour as the day goes on but thought I would check to see if this was normal
Dadof5
in
Thyroid UK
1 year ago
avocado - anyone else ?
Hi and happy summer solstice, I’ve recently been trying to improve my diet and read that avocado has many good features, such as high fiber, good fat, vitamin c, b vitamins, folate, vitamin k, and something about it helps the body produce glutathione (an antioxidant which helps protect the liver.)
Hi and happy summer solstice, I’ve recently been trying to improve my diet and read that avocado has many good features, such as high fiber, good fat, vitamin c, b vitamins, folate, vitamin k, and something about it helps the body produce glutathione (an antioxidant which helps protect the liver.)
Greengal314
in
British Liver Trust
1 year ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
10 months ago
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