Question….

[GrandmaBug]

It seems to me there was a post not too long ago about the Vitamin B complex, low in B6, to use with the high dose Vitamin B1 protocol. I thought I saved it but I can’t find it here or on Facebook. Can someone help me out. Thank you.

[Boscoejean]

images of B complex vitamins without B6

google.com/search?rlz=1C1JZ...

[GrandmaBug in reply to Boscoejean]

Thank you.

[Gcf51]

High Dose Thiamine (B1). I recommend Dap1948 ’s book and her Facebook Group.

amazon.com/gp/product/B09TZ...

facebook.com/groups/parkins...

[GrandmaBug in reply to Gcf51]

I’ve read her book twice and am on her FB page. I tried searching for what was said and I couldn’t find it. Also, the low dose B6 ibrand she recommended for B complex. Thank you.

[Patrickk]

BE WARY OF VITAMIN B6

journeywithparkinsons.com/2...

Beware of taking a huge excess of vitamin B6 in the presence of carbidopa/levodopa, a cautionary tale: I started taking a supplement that had relatively large amounts of complex B vitamins (specifically the one labeled number two below) had 100% (400 mcg) folate, 1667% (100 mcg) vitamin B12 and 5000% (100 mg) of vitamin B6 (based on daily requirement from our diet). Over a period of several days I started feeling stiffer, weaker as if my medicine had stopped treating my Parkinson’s. I especially noticed it one day while playing golf because I had lost significant yardage on my shots, I was breathing heavily, and I was totally out of sync with my golf swing. Just in general, my entire body was not functioning well. Timing wise, I was taking the complex B vitamin pill with my early morning carbidopa/levodopa pill on an empty stomach. Something was suddenly (not subtly) wrong with the way I was feeling, and the only new addition to my treatment strategy was this complex B vitamin pill. There had to be an explanation.

To take or not to take, complex B vitamin supplementation: I literally have been writing and working on this post since July; it started as a simple story about the use of complex B vitamins to reduce homocysteine levels as a consequence of chronic carbidopa/levodopa use to manage Parkinson’s. If you eat a good healthy diet you’re getting plenty of B vitamins. Do you need mega-doses of complex B vitamins? My cautionary note described taking very large amounts of vitamin B6 may be compromising both carbidopa and/or levodopa. You should talk with your Neurologist because it’s straightforward to measure folate, vitamin B6 and B12, and homocysteine levels to see if they are in the normal range if you are taking carbidopa/levodopa. The hidden subplot behind the story is the growing awareness and importance of managing homocysteine levels and also knowing the levels of folate, B6 and B12 to help maintain your neurological health. Bottom line, if you need it, take a multiple vitamin with only 100 to 200% of your daily need of vitamin B6 (what is shown in panel three and four above). And please be careful if you decide to take a larger dose of vitamin B6 (between 10-100 mg/day).

[Buckholt]

Because I don’t use Levodopa overnight, I take low dose B Complex before bedtime allowing the body the benefits without interfering with my LD in the morning

[Juliegrace in reply to Buckholt]

I thought b vitamins were not supposed to be taken at night. I take a low dose b complex, but I have to take it early in the morning to avoid it interfering with my c/l. I also have to take it with food, usually a banana or I will start itching like crazy from the b3.