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Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
8 months ago
RA in jaw
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!đź‘Ť
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!đź‘Ť
Mybirthday1975
in
NRAS
5 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
8 months ago
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Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
8 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
8 months ago
Ectopic atrial Bradycardia
My last ECG before I saw EP said that Ectopic atrial Bradycardia treatment shad replaced Afib . I have an ablation scheduled end of month and he didn’t say anything about this? Does anyone have the same thing? I had a cardio version Sept and small Afib Nov but way overdue now for an Afib and wondering
My last ECG before I saw EP said that Ectopic atrial Bradycardia treatment shad replaced Afib . I have an ablation scheduled end of month and he didn’t say anything about this? Does anyone have the same thing? I had a cardio version Sept and small Afib Nov but way overdue now for an Afib and wondering
Krissy55
in
Atrial Fibrillation Support
5 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
8 months ago
lesley
I have been diagnosed with an underactive thyroid. I do suffer with bad anxiety & it’s been getting worse over the last year. Can taking thyroxine help the anxiety as I’m living on adrenaline!!! im told it dores help. Anyone else had this?
I have been diagnosed with an underactive thyroid. I do suffer with bad anxiety & it’s been getting worse over the last year. Can taking thyroxine help the anxiety as I’m living on adrenaline!!! im told it dores help. Anyone else had this?
Lesley2357
in
Anxiety Support
5 months ago
Not PMR
I have been told that I don't have PMR from my rheumatologist but rheumatoid arthritis so must I leave this invaluable site and find one more suitable for my ailment? If so I will be sorry to miss my family of helpers.
I have been told that I don't have PMR from my rheumatologist but rheumatoid arthritis so must I leave this invaluable site and find one more suitable for my ailment? If so I will be sorry to miss my family of helpers.
Petertaffy
in
PMRGCAuk
5 months ago
travelling as Lupus patient
hi everyone, Been long time since I wrote here. please I will like some advice regarding travelling in Africa. I have been here in Europe for over 15 years and I haven’t been to Africa all this years. Was diagnosed with lupus 2018 in Italy. I wanted to ask for any advice on sun cream and any
hi everyone, Been long time since I wrote here. please I will like some advice regarding travelling in Africa. I have been here in Europe for over 15 years and I haven’t been to Africa all this years. Was diagnosed with lupus 2018 in Italy. I wanted to ask for any advice on sun cream and any
Saralife
in
LUPUS UK
5 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
8 months ago
Update on AFIB after Doctor visit
Update from my Electrophylogist Doc. Yesterday. He said since the afib just started and was persistent he wanted to start slowly and start with cardio version. Will be scheduled within next two weeks. Said ekg showed afib with heart rate from 70 to 92 beats per minute. Said afib has no cure but many
Update from my Electrophylogist Doc. Yesterday. He said since the afib just started and was persistent he wanted to start slowly and start with cardio version. Will be scheduled within next two weeks. Said ekg showed afib with heart rate from 70 to 92 beats per minute. Said afib has no cure but many
Stetson
in
AF Association
5 months ago
Xarelto and enoxaprin sodium at the same time
Is there anyone in this community that is taking Xarelto and enoxaprin sodium at the same time. I am looking for an alternative to aspirin and I’m already on enoxaprin sodium. just wanted to know if there’s anyone else in our group who might be taking both
Is there anyone in this community that is taking Xarelto and enoxaprin sodium at the same time. I am looking for an alternative to aspirin and I’m already on enoxaprin sodium. just wanted to know if there’s anyone else in our group who might be taking both
Thick_Blood
in
Hughes Syndrome APS Forum
5 months ago
Nicorandil and AF.
i have periodic AF and on pill in pocket bisoprolol but i take half of a small one daily which keeps the attacks at bay, Blood thinners, Statins lansoprosole. Now as i am getting breathless saw my GP and he is more or less sure he says i have angina too (but not diagnosed by cardio as yet) he has
i have periodic AF and on pill in pocket bisoprolol but i take half of a small one daily which keeps the attacks at bay, Blood thinners, Statins lansoprosole. Now as i am getting breathless saw my GP and he is more or less sure he says i have angina too (but not diagnosed by cardio as yet) he has
Nightmare2
in
AF Association
5 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
8 months ago
Research Lounge FREE Online Event: Does knowledge of liver scarring affect drinking behaviour?
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Multiple mechanisms to clear a-synuclein with natural substances (in mice).
 For informational purposes only Alpha Synuclein  1.   INTRODUCTION:  There are no effective treatments nor drugs available to modify disease progression
 For informational purposes only Alpha Synuclein  1.   INTRODUCTION:  There are no effective treatments nor drugs available to modify disease progression
House2
in
Cure Parkinson's
8 months ago
Scientists have discovered a new cause of Parkinsons disease
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
NextStage
in
Cure Parkinson's
8 months ago
Heavy legs and low energy feeling
My recent thyroid results showed a below range T3, and I have been having trouble with a brand of thyroxine and feeling generally unwell as previously posted with some helpful advice. But, I have a feeling of heavy legs and low energy and wondered whether when the T3 is low it can cause this? I am
My recent thyroid results showed a below range T3, and I have been having trouble with a brand of thyroxine and feeling generally unwell as previously posted with some helpful advice. But, I have a feeling of heavy legs and low energy and wondered whether when the T3 is low it can cause this? I am
Sailing14
in
Thyroid UK
8 months ago
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