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Lymphoproliferative disorder diagnosis following PET scan
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
Kimlescam
in
British Liver Trust
12 days ago
Most effective ablation method?
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
Jafib
in
Atrial Fibrillation Support
1 month ago
PAF … ? Further echo
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Sniggetts
in
Atrial Fibrillation Support
2 months ago
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Open Heart Surgery Ahead
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Jafib
in
Atrial Fibrillation Support
2 months ago
Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
3 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
3 months ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
3 months ago
Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
3 months ago
Return of the Duck. The Saga Continues.......
Good morning guys and gals.Hope everyone is as well as they can be. Well, here's the promised update from a couple of years ago but to be fair, nothing much had happened on the heart surgery front, I'd been in nsr and I have still been contributing replies. Settle down with a strong drink of choice,
Good morning guys and gals.Hope everyone is as well as they can be. Well, here's the promised update from a couple of years ago but to be fair, nothing much had happened on the heart surgery front, I'd been in nsr and I have still been contributing replies. Settle down with a strong drink of choice,
Ducky2003
in
Atrial Fibrillation Support
4 months ago
INR readings
Can anyone explain INR reading and their importance please? My wife needs to be at a 1.8 but is currently at a 1.6. They've put her on a shot to raise her level but we're not sure what that really means. We're very new to this new lifestyle change. 1 week ago she had mitral valve replacement. Thanks
Can anyone explain INR reading and their importance please? My wife needs to be at a 1.8 but is currently at a 1.6. They've put her on a shot to raise her level but we're not sure what that really means. We're very new to this new lifestyle change. 1 week ago she had mitral valve replacement. Thanks
scooterLOVE
in
Anticoagulation Support
2 days ago
Persistent Atrial Fibrillation
I caught a bad cold (tested negative for COVID) in November 2022 and on the day that started, I went into AFib. I wasn’t given any treatment because I was already on Warfarin due to my aortic valve replacement in March 2015. I finally saw a consultant about the AFib in May 2023 and was put on Isosorbide
I caught a bad cold (tested negative for COVID) in November 2022 and on the day that started, I went into AFib. I wasn’t given any treatment because I was already on Warfarin due to my aortic valve replacement in March 2015. I finally saw a consultant about the AFib in May 2023 and was put on Isosorbide
Gill123
in
Atrial Fibrillation Support
5 months ago
Robotic surgery?
My mitral valve is deteriorating and surgery is in my future. I’m 72, in good health besides aFib and my valve. I’m interested in robotic surgery and if I would qualify. Curious what other folks experience is.
My mitral valve is deteriorating and surgery is in my future. I’m 72, in good health besides aFib and my valve. I’m interested in robotic surgery and if I would qualify. Curious what other folks experience is.
Ptschannen
in
Atrial Fibrillation Support
5 months ago
Incruse Elipta 55 advice ?
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Kiki54
in
Lung Conditions Community Forum
5 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Anticoagulation Support
5 months ago
Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
5 months ago
Mike H
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
Georgeorwell1959
in
Atrial Fibrillation Support
5 months ago
Outdoor working
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
ApusApus
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Mitral Valve Regurgitation?
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
nikonBlue
in
Atrial Fibrillation Support
5 months ago
Open heart surgery
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
Hammerboy
in
Atrial Fibrillation Support
5 months ago
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