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RO 52 Positive
I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion, (ground glass opacities in lungs, waiting on a second CT) joint aches, mild gastro issues. Am I likely to have Lupus primarily, or some other autoimmune
I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion, (ground glass opacities in lungs, waiting on a second CT) joint aches, mild gastro issues. Am I likely to have Lupus primarily, or some other autoimmune
Graysonfur
in
LUPUS UK
5 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
7 months ago
eating gluten prior to biopsy
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
lauram1978
in
Gluten Free Guerrillas
6 months ago
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Arx517 updates about the trial for metastatic castration resistant prostate cancer
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
Maxone73
in
Advanced Prostate Cancer
7 months ago
Flecainide without Beta-Blocker
Hello everyone. I am worried about my Husband and the choices being offered to him for the treatment of his AF and I would welcome members thoughts and opinions on the matter. My husband is 75. His heart history as follows. 1. Palpitations, attributed to short salvoes of supraventricular tachycardia
Hello everyone. I am worried about my Husband and the choices being offered to him for the treatment of his AF and I would welcome members thoughts and opinions on the matter. My husband is 75. His heart history as follows. 1. Palpitations, attributed to short salvoes of supraventricular tachycardia
Peg99
in
Atrial Fibrillation Support
4 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
5 months ago
I don't have a magic wand
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
Peppermints
in
LUPUS UK
5 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
5 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
5 months ago
INSURANCE DENIED - STAGE 4 BREAST CANCER
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
Srikalakm
in
Breast Cancer India
4 months ago
A questionnaire for those with ANCA associated vasculitis and renal involvement in the UK
For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long term use of immunosuppressants to the ilness burden. Here's a very short questionnaire aims to find out if patients would consider participating
For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long term use of immunosuppressants to the ilness burden. Here's a very short questionnaire aims to find out if patients would consider participating
zoe69
Vasculitis UK
in
Vasculitis UK
4 months ago
What is BIG DATA? Demystifying the use of patient health data in research - FREE online Event
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
My Kardia has arrived.
Good morning - if you are in a similar time zone!My Kardia arrived yesterday morning so of course I took many readings to try it out. I also tried it on my husband to see if it was working properly and it appears to be fine. My own readings however are all over the shop, so I wondered if other people
Good morning - if you are in a similar time zone!My Kardia arrived yesterday morning so of course I took many readings to try it out. I also tried it on my husband to see if it was working properly and it appears to be fine. My own readings however are all over the shop, so I wondered if other people
Ilovedogs12
in
Atrial Fibrillation Support
4 months ago
Carvedilol and Urso bowl changes
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
Dexter786
in
British Liver Trust
7 months ago
PSA rising
Hi to the most incredible and informative group. I have been on hormone injections every 3 months. Abiraterone 500 mg with food and 5mg pred. psa 0.8 has increased to 0.17 in 2 months. questions. Should I up Abiraterone to 1000mg to help lower psa or am I on the downward slope now? Diagnosed 2019
Hi to the most incredible and informative group. I have been on hormone injections every 3 months. Abiraterone 500 mg with food and 5mg pred. psa 0.8 has increased to 0.17 in 2 months. questions. Should I up Abiraterone to 1000mg to help lower psa or am I on the downward slope now? Diagnosed 2019
Lion321
in
Advanced Prostate Cancer
7 months ago
hypertension stage 2 plus enlarged heart - is this linked to underactive thyroid? Help appreciated please
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
Mumsie22
in
Thyroid UK
5 months ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
5 months ago
varices grade 2
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
oap74
in
British Liver Trust
7 months ago
LAST CALL: In-person Liverpool workshop tomorrow for those living with advanced liver disease (and carers/relatives)
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Prednisolone for Lupus Flare
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Chris5530
in
LUPUS UK
5 months ago
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