Search
Search
About
Log in
Join
Experiences with
Proton Therapy
Posts
Communities
17,543 public posts
Filter results
Armpits? Yeah, armpits.
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
Lewellen
in
Advanced Prostate Cancer
10 months ago
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
9 months ago
Ruxolitinib
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Ameliav
in
MPN Voice
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Surgical Castration ?
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
Bigmaristuff
in
Advanced Prostate Cancer
10 months ago
ADT or not?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
FortyWinks
in
Advanced Prostate Cancer
10 months ago
UserName Change Search Link
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
JohnInTheMiddle
in
Advanced Prostate Cancer
10 months ago
ADT duration data measures
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
SimMartin
in
Advanced Prostate Cancer
10 months ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
9 months ago
RLS - Q&A
Hi RLS survivors I am continuing my Pregabalin journey and wanted to check in with this community to ask out loud various questions circling around my head. The good news is that Pregabalin is making a difference. I get some relief from jumpy legs at night even on a low dose (75mg) What I am experiencing
Hi RLS survivors I am continuing my Pregabalin journey and wanted to check in with this community to ask out loud various questions circling around my head. The good news is that Pregabalin is making a difference. I get some relief from jumpy legs at night even on a low dose (75mg) What I am experiencing
careerSquirrel
in
Restless Legs Syndrome
10 months ago
Synthetic Hormones, Chemo & Radiotherapy
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
CraftySpider
in
MPN Voice
10 months ago
Introducing Myself
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Simswim
in
Care Community
1 year ago
NHS agrees to roll out Olaparib (Lynparza) April 2023.
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
Sailing-Todd
in
Advanced Prostate Cancer
1 year ago
Orgovyx Insurance Approval
Anyone who is not on Medicare but relying on private insurance in getting approval for Orgovyx? I really want to avoid Lupron or Eligard since I take two blood pressure meds, one statin and Metformin for type 2 diabetes already. Plus, I have heard nothing but bad things about both. Yes, I realize
Anyone who is not on Medicare but relying on private insurance in getting approval for Orgovyx? I really want to avoid Lupron or Eligard since I take two blood pressure meds, one statin and Metformin for type 2 diabetes already. Plus, I have heard nothing but bad things about both. Yes, I realize
805guy
in
Prostate Cancer Network
10 months ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
9 months ago
HRT question.
Hi, I’m been on HRT for about 5 weeks now but my anxiety has just got worse. I’m having hot flashes today too, i feel my head is about to explode. Shouldn’t I be feeling a little bit better by now or is it too soon. Any thoughts please?
Hi, I’m been on HRT for about 5 weeks now but my anxiety has just got worse. I’m having hot flashes today too, i feel my head is about to explode. Shouldn’t I be feeling a little bit better by now or is it too soon. Any thoughts please?
BjAli
in
Menopause and Perimenopause Support
10 months ago
undiagnosed, unwell and with other autoimmune conditions .
hello, new here but user of HU due to other diagnosed AI condition in rheumatology field. Tests just starting to eliminate conditions, gastroscopy found nothing, abdominal scan pending, omeprazole prescribed. Existing condition Adult onset Stills Disease (1979) med free except pain relief, constant
hello, new here but user of HU due to other diagnosed AI condition in rheumatology field. Tests just starting to eliminate conditions, gastroscopy found nothing, abdominal scan pending, omeprazole prescribed. Existing condition Adult onset Stills Disease (1979) med free except pain relief, constant
Stills
in
Thyroid UK
10 months ago
Hot flushes and night sweats
Hi everyone I would like some advice please. I had been in HRT for 22 years (implants) but when I moved 8 years ago I couldn’t find a gynaecologist to do implants so I decided to stop using HRT. All was fine for 4/5years then I suddenly start having flushes during the day and night sweats which have
Hi everyone I would like some advice please. I had been in HRT for 22 years (implants) but when I moved 8 years ago I couldn’t find a gynaecologist to do implants so I decided to stop using HRT. All was fine for 4/5years then I suddenly start having flushes during the day and night sweats which have
Allot
in
Menopause and Perimenopause Support
10 months ago
hormones
Any post-menopausal women out there? My symptoms of ADD -for me it’s really MDD motivation deficit disorder, have gotten much worse over the past couple of years. I am looking to go on Hormone Replacement Therapy- was wondering if anyone has experienced this and did it help?
Any post-menopausal women out there? My symptoms of ADD -for me it’s really MDD motivation deficit disorder, have gotten much worse over the past couple of years. I am looking to go on Hormone Replacement Therapy- was wondering if anyone has experienced this and did it help?
ADDSufferer
in
CHADD's Adult ADHD Support
10 months ago
grade and normal embryos link? help!?
Hi I am 27, no fertility issue (that i know of) non smoker, non drinking, took vitamins for 6 months prior to egg collection. Donor sperm used. I got 3 - 5day blastocysts from short protocol (8 eggs retrieved 6 fertilised) but all grade 3bb/3bc/3bc. 1st transfer failed - other 2 frozen. Someone
Hi I am 27, no fertility issue (that i know of) non smoker, non drinking, took vitamins for 6 months prior to egg collection. Donor sperm used. I got 3 - 5day blastocysts from short protocol (8 eggs retrieved 6 fertilised) but all grade 3bb/3bc/3bc. 1st transfer failed - other 2 frozen. Someone
Tryingforbabynow
in
Fertility Network UK
1 year ago
Regret going to group therapy. Overwhelmed, another day wasted and money wasted. Why do all my attempts to get help backflip?
So i had a crisis some days ago and texted and old therapist that i loved. Told her it passed but now I'm wondering whether to go to group therapy. She said i deside but maybe it could be beneficial. At the last moment i went. Late. Saw people who just didn't feel right. Much older than me and with different
So i had a crisis some days ago and texted and old therapist that i loved. Told her it passed but now I'm wondering whether to go to group therapy. She said i deside but maybe it could be beneficial. At the last moment i went. Late. Saw people who just didn't feel right. Much older than me and with different
Against_the_current
in
Anxiety and Depression Support
1 year ago
1
...
91
92
93
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4482 results
Thyroid UK
2895 results
Endometriosis UK
1861 results
View top 10 communities
Sort by
Most Relevant
Newest