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Anyone have a dramatic drop in WBC bordering on neutropenia from pelvic radiation (not chemo)?
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
StephH72
in
Advanced Prostate Cancer
9 months ago
PSA reading
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
Formosan
in
Advanced Prostate Cancer
10 months ago
18 vs 24 mos ADT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
Oceankayaker
in
Advanced Prostate Cancer
10 months ago
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Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
10 months ago
metallic taste in mouth during pelvic radiation
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
StephH72
in
Advanced Prostate Cancer
9 months ago
HRT and cirrhosis
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
Turvy
in
British Liver Trust
10 months ago
Discrepancy in test results on same dose
I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with Monitor My Health. They’ve come back with quite different results (for FT4, at least) despite being on the same dose, tests done at the same time of day under the same conditions (24 hrs after levo, T3 dose
I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with Monitor My Health. They’ve come back with quite different results (for FT4, at least) despite being on the same dose, tests done at the same time of day under the same conditions (24 hrs after levo, T3 dose
Smorzando
in
Thyroid UK
10 months ago
Overweight with a high BMI
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries.My consultant is really good, however he has specified that I need to get my BMI down to 35 or below before I'd be considered for a full hysterectomy (I've already waited over three years for one)
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries.My consultant is really good, however he has specified that I need to get my BMI down to 35 or below before I'd be considered for a full hysterectomy (I've already waited over three years for one)
Em_46
in
Endometriosis UK
10 months ago
Still no period
hello everyone, first time writing on here😊 So basically I’ve got severe stage 4 Endo, I’ve had a lap done last year which showed the severe endo in vagina, bladder and bowel along with cysts and a blocked fallopian tube. This year i had that fallopian tube removed. I was on the Zoladex injection
hello everyone, first time writing on here😊 So basically I’ve got severe stage 4 Endo, I’ve had a lap done last year which showed the severe endo in vagina, bladder and bowel along with cysts and a blocked fallopian tube. This year i had that fallopian tube removed. I was on the Zoladex injection
Devongirl2022
in
Endometriosis UK
10 months ago
Brain metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
pca2004
in
Fight Prostate Cancer
9 months ago
Rux and IFN combo therapy
This recent report points to benefits of combining Rux and IFN. Of particular interest is the low doses that were enabled toward the end. -Notable: "The JAK2V617F allele burden was significantly reduced 3 months after the start of treatment, and continued to decline from a median of 47% to 6%." In
This recent report points to benefits of combining Rux and IFN. Of particular interest is the low doses that were enabled toward the end. -Notable: "The JAK2V617F allele burden was significantly reduced 3 months after the start of treatment, and continued to decline from a median of 47% to 6%." In
EPguy
in
MPN Voice
1 year ago
Can cancer grow while PSA stays undetectable ?
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
mynacho
in
Advanced Prostate Cancer
10 months ago
Menopause alternative to HRT
I am looking for advice regarding Black Cohosh. Has anyone successfully taken this for Menopause? I am worried if I try it it may effect Levo.
I am looking for advice regarding Black Cohosh. Has anyone successfully taken this for Menopause? I am worried if I try it it may effect Levo.
Noodibranks-7
in
Thyroid UK
10 months ago
Inspiration
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
Gym-rat
in
Advanced Prostate Cancer
10 months ago
ED No More (the prequel)
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
Bangkok
in
Advanced Prostate Cancer
9 months ago
Xgeva side effects?????
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
MydogisTed
in
Advanced Prostate Cancer
10 months ago
SBRT to Prostate and Lymph node ?
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
dudubaya
in
Advanced Prostate Cancer
10 months ago
Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Just needing a vent
I am feeling really fed up right now. I got diagnosed about 2 weeks ago with pots and then 2 days later was in hospital with kidney stones. Got released just on time to make a family trip to London so had lots of painkillers to get through it but still managed to enjoy it. I came home and went to gp
I am feeling really fed up right now. I got diagnosed about 2 weeks ago with pots and then 2 days later was in hospital with kidney stones. Got released just on time to make a family trip to London so had lots of painkillers to get through it but still managed to enjoy it. I came home and went to gp
Elizahl
in
Fibromyalgia Action UK
10 months ago
Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
10 months ago
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