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A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
1 month ago
Help interpreting results please
Hello, I wondered if anyone could help me out with interpreting the results I've just obtained from Blue Horizons, please? Blood taken at 9am (earliest I could book nurse, as I failed to draw blood successfully myself), after fasting. I take 100mg Levothyroxine (in the night, well after and before
Hello, I wondered if anyone could help me out with interpreting the results I've just obtained from Blue Horizons, please? Blood taken at 9am (earliest I could book nurse, as I failed to draw blood successfully myself), after fasting. I take 100mg Levothyroxine (in the night, well after and before
BornFlippy
in
Thyroid UK
1 month ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
1 month ago
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ADT side effects
Which has worse side effects : Bacalumatide or Lupron ?
Which has worse side effects : Bacalumatide or Lupron ?
Bacalutamide
in
Prostate Cancer Network
1 month ago
HRt - side effects
Hi I’ve recently started 2 pumps of oestrogel per day. Has anyone else experienced strong nausea and loss of appetite when starting this? It is concerning me. Kind Regards Lara
Hi I’ve recently started 2 pumps of oestrogel per day. Has anyone else experienced strong nausea and loss of appetite when starting this? It is concerning me. Kind Regards Lara
Lara1244
in
Menopause and Perimenopause Support
1 month ago
Chemo Docetaxel
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
JolleySprings
in
Advanced Prostate Cancer
1 month ago
ADT prior to RT
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
FredNick
in
Prostate Cancer Network
1 month ago
Does HBOT stimulate cancerous tissue?
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
SongofFred
in
Advanced Prostate Cancer
1 month ago
Seeking to connect, share, support and heal this anxiety
Howdy all: I am TS—my nickname, so it's all good. I have experienced depression for 34 years, when I was first diagnosed. About 5 months ago, I was also diagnosed with general anxiety disorder, Since that time, I have experienced a combination of anxiety, fear and deep loneliness. I am currently on
Howdy all: I am TS—my nickname, so it's all good. I have experienced depression for 34 years, when I was first diagnosed. About 5 months ago, I was also diagnosed with general anxiety disorder, Since that time, I have experienced a combination of anxiety, fear and deep loneliness. I am currently on
LittleShik
in
Anxiety and Depression Support
9 months ago
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
APCFighter
in
Advanced Prostate Cancer
1 month ago
Still depressed after ECT
I recently had ECT done (14treatments) I was feeling like it had changed my life and I was able to live again. But now I am back to feeling low moods, no motivation, and all the other symptoms associated with depression and anxiety. I was in a treatement facility and recently came back home, so maybe
I recently had ECT done (14treatments) I was feeling like it had changed my life and I was able to live again. But now I am back to feeling low moods, no motivation, and all the other symptoms associated with depression and anxiety. I was in a treatement facility and recently came back home, so maybe
Jersey24
in
Anxiety and Depression Support
6 months ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
Advanced Prostate Cancer
2 months ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
PCOS UK (Verity)
2 months ago
Blood in urine/uti symptoms but no infection
I'm currently in a flare up, following a hysterectomy nearly 5 months ago for Fibroids and Adenomyosis. They now think I have Occult endometriosis, as my pelvic pain has flared up again since starting hrt. Ive been referred to a bsge centre.My bladder symptoms are awful I feel like I have a raging uti
I'm currently in a flare up, following a hysterectomy nearly 5 months ago for Fibroids and Adenomyosis. They now think I have Occult endometriosis, as my pelvic pain has flared up again since starting hrt. Ive been referred to a bsge centre.My bladder symptoms are awful I feel like I have a raging uti
Mindfullness4791
in
Endometriosis UK
2 months ago
Darolutamide (Nubeqa) Vs Enzalutamide ( Xtandi)
Are there any studies comparing efficacy and side effect profile of darolutamide Vs enzalutamide when given together with first generation ADT ? I read that darolutamide does not cross blood brain barrier so may have lesser side effects ?
Are there any studies comparing efficacy and side effect profile of darolutamide Vs enzalutamide when given together with first generation ADT ? I read that darolutamide does not cross blood brain barrier so may have lesser side effects ?
Tinkudi
in
Advanced Prostate Cancer
2 months ago
Parkinson's Nurse update
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Loveispatient23
in
PSP Association
9 months ago
Low TSH advice and breast cancer
I’ve been hypo for 25 years . October 23, non fasted , 12 hours after last dose of Levi , annual bloods showed TSH 0.1 (0.2-6) and T4 18.9.(12-22). Recommended retest in 6 months . I saw private endo ( useless ) who did fasted bloods . TSH 4.5 , T4 16.8 and T3 3.9 Levo was 24 hours before bloods
I’ve been hypo for 25 years . October 23, non fasted , 12 hours after last dose of Levi , annual bloods showed TSH 0.1 (0.2-6) and T4 18.9.(12-22). Recommended retest in 6 months . I saw private endo ( useless ) who did fasted bloods . TSH 4.5 , T4 16.8 and T3 3.9 Levo was 24 hours before bloods
farrellkl68
in
Thyroid UK
2 months ago
PD and Prostate Cancer
...that is, there is never an end to the worst. I will soon have to undergo radiotherapy for prostate cancer. I am currently undergoing hormone therapy. I am looking for similar experiences and above all advice on how to manage this new situation in cohabitation with PD. Thank you very much.
...that is, there is never an end to the worst. I will soon have to undergo radiotherapy for prostate cancer. I am currently undergoing hormone therapy. I am looking for similar experiences and above all advice on how to manage this new situation in cohabitation with PD. Thank you very much.
Fed1000
in
Cure Parkinson's
2 months ago
Ritalin
I’ve been trying a new regime of Clonidine 100mcg at night and 30mg Elvanse on waking. I don’t think it’s working and as before the Elvanse seems to give my a physical feeling of angst which is hard to not focus on…also somebody wrote on hear recently that they feel they ruminate more especially in
I’ve been trying a new regime of Clonidine 100mcg at night and 30mg Elvanse on waking. I don’t think it’s working and as before the Elvanse seems to give my a physical feeling of angst which is hard to not focus on…also somebody wrote on hear recently that they feel they ruminate more especially in
Greenbeeps
in
CHADD's Adult ADHD Support
2 months ago
Memory issues ??
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues. To start it was around a year ago ,my gp thought I'd had a stroke as I
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues. To start it was around a year ago ,my gp thought I'd had a stroke as I
Weemillie
in
NRAS
6 months ago
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