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Needing Advice Please- Didn’t get the results I wanted
Hello all this is my first post, and I am glad to have this forum. My PCa backstory: DX 5/22 Metastatic to bones, PSMA- PET- PSA 30. Lupron+ Zytiga+ Prednisone 6/22 Change to Orgovyx 9/22 LU177 2x- 10 GBq - 7/22 and 9/22 PSA .240 - 10/22 PSMA PET - 10/22- several spots of increased SUV
Hello all this is my first post, and I am glad to have this forum. My PCa backstory: DX 5/22 Metastatic to bones, PSMA- PET- PSA 30. Lupron+ Zytiga+ Prednisone 6/22 Change to Orgovyx 9/22 LU177 2x- 10 GBq - 7/22 and 9/22 PSA .240 - 10/22 PSMA PET - 10/22- several spots of increased SUV
Steel67
in
Advanced Prostate Cancer
2 years ago
Newbie here, tests/symptoms suggest PA or AAG
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Pante
in
Pernicious Anaemia Society
2 years ago
ADT or no ADT
Diagnosed with 4+3, mri shows 2 lesions in prostate only. Starting proton therapy soon, urologist and oncologist recommend 6 mos of ADT. The latest stody for unfavorable is a difference of .7 years?( hard to understand the study results). Trying to make the decision whether or not to do the ADT.
Diagnosed with 4+3, mri shows 2 lesions in prostate only. Starting proton therapy soon, urologist and oncologist recommend 6 mos of ADT. The latest stody for unfavorable is a difference of .7 years?( hard to understand the study results). Trying to make the decision whether or not to do the ADT.
progman
in
Prostate Cancer Network
2 years ago
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Prostap injection
Hey, my first post. I’m sorry to read so many people are struggling with pain. I had my first prostap injection just over a week ago and was wondering how long it takes to work. I’ve had some symptoms like head aches and woken the past 2 nights sweating, so something must be settling in. I’m due on
Hey, my first post. I’m sorry to read so many people are struggling with pain. I had my first prostap injection just over a week ago and was wondering how long it takes to work. I’ve had some symptoms like head aches and woken the past 2 nights sweating, so something must be settling in. I’m due on
AmyPeeps
in
Endometriosis UK
2 years ago
prostap injections
morning ladies, I had my second prostap injection a week ago. My first one after a week, settled down and I was okay for a couple of weeks, but this one I am struggling with. I seem to be constipated, my stomach is swollen, I keep getting sharp pains in my stomach and side. The tenderness of my stomach
morning ladies, I had my second prostap injection a week ago. My first one after a week, settled down and I was okay for a couple of weeks, but this one I am struggling with. I seem to be constipated, my stomach is swollen, I keep getting sharp pains in my stomach and side. The tenderness of my stomach
Kay92jay
in
Endometriosis UK
2 years ago
Current PCa treatment options in the UK do NOT include Triplet Therapy!
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Benkaymel
in
Advanced Prostate Cancer
2 years ago
prostap advice
So I had gynae appt yesterday and feeling deflated she didn’t really listen to my concerns my endo may be worse and on my bowel as Iv been having trouble for few years constipation, bloating, painful bowel movement (gp just says ibs) thought she might send for mri but all she suggested was prostap and
So I had gynae appt yesterday and feeling deflated she didn’t really listen to my concerns my endo may be worse and on my bowel as Iv been having trouble for few years constipation, bloating, painful bowel movement (gp just says ibs) thought she might send for mri but all she suggested was prostap and
Kobes
in
Endometriosis UK
2 years ago
Cost of going private for a hysterectomy!!
Hi Everyone I’m currently on the waiting list for a total laparoscopic hysterectomy on the NHS but have seen a private consultant because I suspect the NHS waiting time is going to be really long and I haven’t been given a date yet although I am on Prostap injections in preparation, but as I’m constantly
Hi Everyone I’m currently on the waiting list for a total laparoscopic hysterectomy on the NHS but have seen a private consultant because I suspect the NHS waiting time is going to be really long and I haven’t been given a date yet although I am on Prostap injections in preparation, but as I’m constantly
Jingles11
in
Endometriosis UK
2 years ago
Latest Blood Test Results Good BUT ...
Having been on Prostap (ADT) now for almost 3 months (I get my second shot next week), I had another blood test today. Testosterone was down from 9.8 in July to 0.88 today. Frustratingly, my PSA from today's test won't be revealed until Nov 7th but my bone mets feel more pronounced now than 3 months
Having been on Prostap (ADT) now for almost 3 months (I get my second shot next week), I had another blood test today. Testosterone was down from 9.8 in July to 0.88 today. Frustratingly, my PSA from today's test won't be revealed until Nov 7th but my bone mets feel more pronounced now than 3 months
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Still bleeding on Prostap injections!!
Hi ladies Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods, flooding/clots with a lot of accompanying pain. I’ve had problems since my late 30s and now at 51 have decided to have a total hysterectomy.I saw a private
Hi ladies Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods, flooding/clots with a lot of accompanying pain. I’ve had problems since my late 30s and now at 51 have decided to have a total hysterectomy.I saw a private
Jingles11
in
Endometriosis UK
2 years ago
Another post with latest results.
Here are my Medicheks results from 14 November, all done correctly. TSH 0.02 mIU/L (0.27 - 4.2) -6.4% Free T4 (fT4) 13.2 pmol/L (12 - 22) 12.0% Free T3 (fT3) 5.2 pmol/L (3.1 - 6.8) 56.8% T4:T3 Ratio 2.538 Thyroglobulin Antbodies (TgAb) 25.2 IU/mL (0 - 115) 21.9% Thyroid Peroxidase Antibodies
Here are my Medicheks results from 14 November, all done correctly. TSH 0.02 mIU/L (0.27 - 4.2) -6.4% Free T4 (fT4) 13.2 pmol/L (12 - 22) 12.0% Free T3 (fT3) 5.2 pmol/L (3.1 - 6.8) 56.8% T4:T3 Ratio 2.538 Thyroglobulin Antbodies (TgAb) 25.2 IU/mL (0 - 115) 21.9% Thyroid Peroxidase Antibodies
Snoopydog11
in
Thyroid UK
2 years ago
Endometriosis in lungs, does anyone else experiencing this?
Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for years before i had a hysterectomy 3 years ago with only 1 ovary left, for a while everything was great, but the ovary started burning and feeling
Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for years before i had a hysterectomy 3 years ago with only 1 ovary left, for a while everything was great, but the ovary started burning and feeling
Jendn83
in
Endometriosis UK
2 years ago
Endo stage 4, Prostap & HRT
Hi, lm currently being treated with Prostap & Livial HRT & lm finding the pain is turned up to 11, l am on my 2nd injection now. I have spoken with my endo nurse & she says this is all normal & l probably wont feel relief until number 3 or 4. I guess l am looking for some advice on how to get through
Hi, lm currently being treated with Prostap & Livial HRT & lm finding the pain is turned up to 11, l am on my 2nd injection now. I have spoken with my endo nurse & she says this is all normal & l probably wont feel relief until number 3 or 4. I guess l am looking for some advice on how to get through
SarahAnne81
in
Endometriosis UK
2 years ago
Help on latest blood results please.
TSH 1.84 mIU/L (0.27 - 4.2) 39.9% Free T4 (fT4) 16.4 pmol/L (12 - 22) 44.0% Free T3 (fT3) 4.4 pmol/L (3.1 - 6.8) 35.1% T4:T3 Ratio 3.727 Thyroglobulin Antbodies (TgAb) 4000 IU/mL (0 - 115) 3478.3% Thyroid Peroxidase Antibodies (TPO) 79.6 IU/mL (0 - 34) 234.1% C-Reactive Protein (CRP) 1.11 mg/L
TSH 1.84 mIU/L (0.27 - 4.2) 39.9% Free T4 (fT4) 16.4 pmol/L (12 - 22) 44.0% Free T3 (fT3) 4.4 pmol/L (3.1 - 6.8) 35.1% T4:T3 Ratio 3.727 Thyroglobulin Antbodies (TgAb) 4000 IU/mL (0 - 115) 3478.3% Thyroid Peroxidase Antibodies (TPO) 79.6 IU/mL (0 - 34) 234.1% C-Reactive Protein (CRP) 1.11 mg/L
Hexagon74
in
Thyroid UK
2 years ago
2nd biopsy, just started on prednisolone. Dietary help pls.
So my doctor had just started me on 25mg of prednisolone indefinitely due to the inflammation (in my kidneys?) as a result of my igA nephropathy acting more aggressively on my body. I am taking effort to abide by a low protein diet at 0.8g/protein/kg body weight per day. Aside from feeling very hungry
So my doctor had just started me on 25mg of prednisolone indefinitely due to the inflammation (in my kidneys?) as a result of my igA nephropathy acting more aggressively on my body. I am taking effort to abide by a low protein diet at 0.8g/protein/kg body weight per day. Aside from feeling very hungry
agirlwithhope95
in
Early CKD Support
2 years ago
Whey protein powder
Did whey protein powder make make you better or worse?
Did whey protein powder make make you better or worse?
Discogs_discogs
in
Cure Parkinson's
2 years ago
Thank you and update
Thank you to admin and to members who have messaged with answers to my earlier query re T3 Admin you suggested posting blood results so I thought I would, at this stage post my most recent results. As advised I have just ordered another comprehensive test from one of your suggested laboratories (different
Thank you to admin and to members who have messaged with answers to my earlier query re T3 Admin you suggested posting blood results so I thought I would, at this stage post my most recent results. As advised I have just ordered another comprehensive test from one of your suggested laboratories (different
Shebbie
in
Thyroid UK
2 years ago
First monthly Prostap injection - side effects two weeks in…
Hi lovely people! Not really a question, but let me know if your experience was similar to mine… Had my first monthly Prostap injection at my GP surgery two weeks ago. Got told I could choose between arm, thigh & buttock for an injection site, so opted for arm. Painless injection and didn’t give me
Hi lovely people! Not really a question, but let me know if your experience was similar to mine… Had my first monthly Prostap injection at my GP surgery two weeks ago. Got told I could choose between arm, thigh & buttock for an injection site, so opted for arm. Painless injection and didn’t give me
Purple_Badgers
in
Endometriosis UK
2 years ago
Seeking Data ???
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Advanced Prostate Cancer
2 years ago
Seeking Data ????
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Prostate Cancer Network
2 years ago
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