Search
Search
About
Log in
Join
Experiences with
Prostap SR
Posts
Communities
18,037 public posts
Filter results
PMR or PsA or both
I'm on prednisone since last April and have managed to get down from 35 to 10 mg with a few minor flares. My Rheumatologist thinks it could be PMR or PsA or both. Can't get a definite answer. It started overnight after a fall I had. Now I wake up really achy all over and after about an hour feel fine
I'm on prednisone since last April and have managed to get down from 35 to 10 mg with a few minor flares. My Rheumatologist thinks it could be PMR or PsA or both. Can't get a definite answer. It started overnight after a fall I had. Now I wake up really achy all over and after about an hour feel fine
Seal49
in
PMRGCAuk
3 months ago
what now failed R223
‘what now’ failed R223 My husband this week because of low Hb 83 had a blood transfusion + iron infusion. He has suffered ‘Proctitis’ rectal bleeding since having radiotherapy 2019 and although complaining to Oncologist, GP, Gastroenterologist had endoscopy (found Barrett’s disease and has difficulty
‘what now’ failed R223 My husband this week because of low Hb 83 had a blood transfusion + iron infusion. He has suffered ‘Proctitis’ rectal bleeding since having radiotherapy 2019 and although complaining to Oncologist, GP, Gastroenterologist had endoscopy (found Barrett’s disease and has difficulty
Janhpr
in
Advanced Prostate Cancer
3 months ago
Minor psa increase again
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Runner1957
in
Prostate Cancer Network
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA vs Testosterone plot has large scatter, but still confirms Morgentaler's Saturation Model.
Here are two plots comparing PSA values to Testosterone levels taken from a pair of large data sets. What is striking is the large amount of scatter in the individual data from both datasets, with factors of 2-6 X deviations from the average (or median) values. The upper plot has N = 255 data points
Here are two plots comparing PSA values to Testosterone levels taken from a pair of large data sets. What is striking is the large amount of scatter in the individual data from both datasets, with factors of 2-6 X deviations from the average (or median) values. The upper plot has N = 255 data points
janebob99
in
Prostate Cancer Network
7 months ago
Low-T is associated with worse Prostate Cancer Specific Mortality probability after 6 months of ADT: Part III
Here are comparisons of the
Prostate Cancer Specific Mortality (PCSM) probability (%
) for two different testosterone levels (
Low-T and Normal-T
) and four different
Times After PSA Failure
from the Kaplan-Meier plot previously posted. (Atkins 2018). The median testosterone for
Here are comparisons of the
Prostate Cancer Specific Mortality (PCSM) probability (%
) for two different testosterone levels (
Low-T and Normal-T
) and four different
Times After PSA Failure
from the Kaplan-Meier plot previously posted. (Atkins 2018). The median testosterone for
janebob99
in
Prostate Cancer Network
7 months ago
Low-T is associated with worse Prostate Cancer Specific Mortality probability after 6 months of ADT: Part II
Here are comparisons of the Prostate Cancer Specific Mortality (PCSM) probability (%) for two different testosterone levels (Low-T and Normal-T)and three different Times After PSA Failure from Atkins (2018). he median testosterone for the Low-T group is T = 162 ng/dL [120-236], and I assumed an average
Here are comparisons of the Prostate Cancer Specific Mortality (PCSM) probability (%) for two different testosterone levels (Low-T and Normal-T)and three different Times After PSA Failure from Atkins (2018). he median testosterone for the Low-T group is T = 162 ng/dL [120-236], and I assumed an average
janebob99
in
Prostate Cancer Network
7 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
7 months ago
Anyone out there start Pluvicto at 85 or older?…Oncologist wants me to try but I’m Hesitant due to side effects possible…
I’m 10 years into the battle …Last 4 1/2 Metastatic….my oncologist wants me to try Pluvicto….Im feeling pretty good right now and can do most things…..I’ve had chemo and 78 proton beam treatments and also 7 months of BAT…He says I’ll tolerate it good and if not we can just quit….I know you just can’t
I’m 10 years into the battle …Last 4 1/2 Metastatic….my oncologist wants me to try Pluvicto….Im feeling pretty good right now and can do most things…..I’ve had chemo and 78 proton beam treatments and also 7 months of BAT…He says I’ll tolerate it good and if not we can just quit….I know you just can’t
Hidden
in
Advanced Prostate Cancer
3 months ago
Phase 1b: FOR46, a novel antibody-drug conjugate targeting a tumor-specific epitope of CD46, in combination with Enza in patients with mCRPC
"Preliminary anti-tumor activity was observed with PSA declines in 13/16 (81.3%) of evaluable pts, and a disease control rate (stable disease ≥ 6 months) of 41.2%" But side effects could be very hard on heavily pretreated patients https://ascopubs.org/doi/10.1200/JCO.2024.42.16_suppl.5066
"Preliminary anti-tumor activity was observed with PSA declines in 13/16 (81.3%) of evaluable pts, and a disease control rate (stable disease ≥ 6 months) of 41.2%" But side effects could be very hard on heavily pretreated patients https://ascopubs.org/doi/10.1200/JCO.2024.42.16_suppl.5066
Maxone73
in
Advanced Prostate Cancer
3 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
8 months ago
TRUST IN HEALTHCARE : free virtual conference for patients, friends and those you care about
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
LGBT Cancer Community
3 months ago
DO YOU TRUST YOUR DOCTOR? Free registration at malecare.org/trust-in-healthcare
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
Active Surveillance - Prostate Cancer
3 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
8 months ago
Should I do chemotherapy?
New here. I am 81 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and xtandi. Chemo was not mentioned. Reading some posts here I wonder if chemo would be an important option for me ? I will turn 82 In a few
New here. I am 81 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and xtandi. Chemo was not mentioned. Reading some posts here I wonder if chemo would be an important option for me ? I will turn 82 In a few
Simpson80
in
Advanced Prostate Cancer
4 months ago
Abiraterone and Breathlessness
After around 7 months on Abiraterone, I developed high blood pressure and quite bad irregular heartbeats. My Oncologist took me off Abiraterone immediately, and I was subsequently diagnosed with Atrial Fibrillation. After seeing a Cardiology Consultant, I was prescribed Bisoporol and started back on
After around 7 months on Abiraterone, I developed high blood pressure and quite bad irregular heartbeats. My Oncologist took me off Abiraterone immediately, and I was subsequently diagnosed with Atrial Fibrillation. After seeing a Cardiology Consultant, I was prescribed Bisoporol and started back on
Dastardly
in
Advanced Prostate Cancer
7 months ago
Spam me with any stories of hope or guidance for my Dad - Gleason 10, bone mets in spine
Hello, I recently shared that my Dad was diagnosed with aggressive Gleason 10 prostate cancer. CT and bone scan confirmed this week he has bone mets in his spine (within L5 vertebrae). This is very shocking and heartbreaking to our family - his only symptom was more frequent urination - he does not
Hello, I recently shared that my Dad was diagnosed with aggressive Gleason 10 prostate cancer. CT and bone scan confirmed this week he has bone mets in his spine (within L5 vertebrae). This is very shocking and heartbreaking to our family - his only symptom was more frequent urination - he does not
LDC2024
in
Advanced Prostate Cancer
7 months ago
Relugolix/Orgovyx or Enzalutamide/Xtandi?
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
FaithOverFear104
in
Advanced Prostate Cancer
7 months ago
18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
8 months ago
Ckd with one kidney
I am on 10mg per day Amlodepine. My blood pressure readings are 123/65/63. With just one kidney, eGFR is 46 PSA is 0. 7ug/l and Creatinine is127umol/l. On food supplements for my kidney and liver from Japan. Very stable virtually no pain from area of kidney.
I am on 10mg per day Amlodepine. My blood pressure readings are 123/65/63. With just one kidney, eGFR is 46 PSA is 0. 7ug/l and Creatinine is127umol/l. On food supplements for my kidney and liver from Japan. Very stable virtually no pain from area of kidney.
Amsaved
in
Kidney Disease
4 months ago
Statin use and mortality risk in men on ADT.
New ADT study from Hong Kong (1). "A total of 4920 patients were included, consisting of 2578 statin users and 2342 non-users (mean age 76.1 ± 8.2 years). Over a mean follow-up period of 4.2 ± 3.3 years, it was observed that statin users had significantly lower risks of both PCa-related mortality
New ADT study from Hong Kong (1). "A total of 4920 patients were included, consisting of 2578 statin users and 2342 non-users (mean age 76.1 ± 8.2 years). Over a mean follow-up period of 4.2 ± 3.3 years, it was observed that statin users had significantly lower risks of both PCa-related mortality
pca2004
in
Fight Prostate Cancer
9 months ago
1
...
67
68
69
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
13117 results
Endometriosis UK
1670 results
Prostate Cancer Network
1342 results
View top 10 communities
Sort by
Most Relevant
Newest