Malecare and Prostate Cancer Research (UK) Virtual Conference:
TRUST AND HEALTHCARE
WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare
12 PM ET to 6:10 PM ET (New York time)
Register with your email for free at malecare.org/trust-in-healt...
Prostate Cancer Research (PCR) is a patient-centric research charity dedicated to saving and improving lives by supporting the best research and ensuring it reaches every part of society.
Malecare is America’s leading men’s cancer patient support and advocacy nonprofit organization. Malecare is known for innovation in psycho-oncology and for it’s focus on underserved communities.
The conference will be introduced by Naomi Elster, PhD. from PCR
and Darryl Mitteldorf, LCSW from Malecare
Presentations will be moderated by Darryl Mitteldorf, LCSW and Oliver Kemp, CEO of PCR
Opening remarks:
12:00 PM ET
Naomi Elster, PhD
12:05 PM ET
Darryl Mitteldorf, LCSW
12:15 PM ET
Dr. Callen Baker, a renowned public policy expert and the executive director of the Whitman Walker Institute. explores the importance of creating a trusting, inclusive, and welcoming environment in healthcare settings for LGBTQ+ patients, particularly those seeking care for cancer. Dr. Baker emphasizes the significance of visual cues like rainbow flags, inclusive intake forms, and culturally competent staff in making LGBTQ+ patients feel recognized and respected. He is interviewed by Darryl Mitteldorf, LCSW. Together, they delve into issues of homophobia, transphobia, and the historical mistrust of medical institutions by marginalized communities. Their conversation also covers the legal and policy frameworks that protect LGBTQ+ patients from discrimination, the need for diversity in clinical trials, and the challenges faced by LGBTQ+ individuals in hospice and home nursing environments. Dr. Baker shares personal insights and stresses the importance of inclusive practices and policies in improving healthcare experiences for LGBTQ+ individuals.
1:00 PM ET
Tom shares his personal journey from diagnosis to treatment, and the role trust plays in healthcare. Tom also delves into the implications of prostate cancer on sexual function and how he and his husband have navigated these changes together. Learn about Tom's insights on the importance of being out to your healthcare providers and the specific support gay men might require during this journey.
1:30 PM ET
Jonathan, a long-time member of the Malecare community. Diagnosed in 2018 at the age of 70, Jonathan recounts the moment he received the life-changing call from his primary care doctor and the subsequent steps he took, including seeking a second opinion at Johns Hopkins. He discusses the importance of trust in healthcare, the benefits of consensus-based treatment decisions, and the invaluable support from peer-to-peer communities like Malecare. Jonathan also reflects on his experiences as a healthcare reporter and the role of peer-reviewed journals in informing patient decisions.
2:00 PM ET
Dr. Hughes Halbert, a professor of population and health sciences at the University of Southern California and a specialist at the Norris Cancer Center. The discussion revolves around the critical role of trust in healthcare, especially among black communities, and how it affects healthcare decisions, treatment options, and overall well-being. Interviewed by Darryl Mitteldorf, LCSW, we talk about the importance of transparent communication between patients and healthcare providers, the impact of participation in clinical trials without proper feedback, and strategies to improve trustworthiness in healthcare systems. We also discuss incorporating patient lived experiences and diversifying genomic databases to enhance cancer care and treatment outcomes. The conversation concludes with insights into patient navigation programs and the need for empowering patients to make informed healthcare decisions.
2:30 PM ET
Oliver Kemp interviews Patrick Nyikavaranda, Doctoral Researcher and Managing Director of Diversity Resource International, on the topic of trust in the healthcare sector amongst the Black community to educate and spread awareness to the public, particularly patients, academics, and healthcare professionals.
3:15 PM ET
Stephanie, a nurse with 40 years of experience and a de novo metastatic breast cancer patient, discusses the intersection of race and healthcare. Diagnosed in 2015, she explores her initial lack of knowledge about her condition, early experiences with healthcare providers, and the realization of racial biases within the medical system. Stephanie shares personal anecdotes to highlight issues of mistrust in healthcare among the African American community, challenges with physician-patient communication, and the struggle for culturally sensitive care. The conversation also touches on systemic issues, including the impact of geography on healthcare access and the concerning dynamics of pharmaceutical marketing towards Black communities. Stephanie emphasizes the importance of advocating for oneself within the healthcare system and the need for a more inclusive approach to patient care that addresses racial biases directly.
3:45 PM ET
Oliver Kemp interviews prostate cancer patient Brian, about trust in healthcare in Black communities and the struggle to educate and spread awareness to the public, particularly patients, academics, and healthcare professionals.
4:30 PM ET
Mical was diagnosed with prostate cancer in his thirties. Coming from Texas, Mical discusses his symptoms, the significance of early detection, and his difficult experiences with healthcare professionals. Mical also emphasizes the importance of having a supportive partner and stresses the need for self-advocacy in healthcare. Michel reflects on his journey, from diagnosis to treatment, and how he's giving back by mentoring others newly diagnosed with prostate cancer.
5:00 PM ET
Mark, a Malecare community member who lives in Paris, talks about his diagnosis and seven-year journey with prostate cancer. Mark shares his initial reaction to his high PSA levels, the stress of waiting for diagnosis confirmation, and the challenging decision-making process between different treatments. He discusses the impact of ADT and abiraterone on his life, the importance of getting second opinions, and how he found support and information through an online prostate cancer community. Mark emphasizes the need for transparent communication with doctors and the patient's role in understanding their condition.
5:30 PM ET
Oliver Kemp interviews Jonah Rusere, an Advanced Nurse Practitioner, on the topic of trust in the healthcare sector amongst the Black community to educate and spread awareness to the public, particularly patients, academics, and healthcare professionals. They explore the importance of trust, understanding cultural backgrounds, and the need for healthcare professionals to connect with patients on a personal level. The conversation highlights the importance of addressing patients' anxieties, the role of traditional medicine, and the necessity of spending time to build meaningful patient relationships. They propose potential solutions to increase inclusivity and trust within healthcare systems, emphasizing the value of patient voices in shaping effective care strategies.
Closing remarks:
6:00 PM ET
Naomi Elster, PhD
6:05 PM ET
Darryl Mitteldorf, LCSW
Biopsies
