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Experiences with
Progressive cardiac conduction defect (PCCD)
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No TV and no internet make Lucy go crazy...
Well it will eventually. From tomorrow I no longer have internet (no wi-fi connection in the house) and because I have no money, I can't afford a TV license so I will also not have TV... unless I watch it downstairs with the others. I will still be able to access the internet occasionally in the local
Well it will eventually. From tomorrow I no longer have internet (no wi-fi connection in the house) and because I have no money, I can't afford a TV license so I will also not have TV... unless I watch it downstairs with the others. I will still be able to access the internet occasionally in the local
LittleClapham
in
Tourettes Action
12 years ago
Have any of you been given nabilone?
For a while a few years ago I was given nabilone for my TS. As it was a while ago and during a particularly bad year for the tics I can't remember much about it! I had to stop because at the time I was on a university course that needed 100% concentration and I do remember that it made me very fuzzy
For a while a few years ago I was given nabilone for my TS. As it was a while ago and during a particularly bad year for the tics I can't remember much about it! I had to stop because at the time I was on a university course that needed 100% concentration and I do remember that it made me very fuzzy
alexfrombath
in
Tourettes Action
12 years ago
There is a Light That Never Goes Out
Really I should be going to bed, but I have no inclination to sleep whatsoever, my body is slightly tired but my mind is still in overdrive. It has been for a couple of days now after been very low and delicate. Actually my hearing has taken on new superpowers today. At this very moment I’m listening
Really I should be going to bed, but I have no inclination to sleep whatsoever, my body is slightly tired but my mind is still in overdrive. It has been for a couple of days now after been very low and delicate. Actually my hearing has taken on new superpowers today. At this very moment I’m listening
catherinem
in
Tourettes Action
12 years ago
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Hearing about others' experiences is just the tonic (weird, I know; sory!)
Gosh, I so hope this isn't a piece of major tactlesness - I do mean it in the best posible way as a thank you to everyone for sharing their experiences! When I went through all the things I did (see my blog about TIAs and misdiagnosis with postantal psychosis below) I was furious about what happend
Gosh, I so hope this isn't a piece of major tactlesness - I do mean it in the best posible way as a thank you to everyone for sharing their experiences! When I went through all the things I did (see my blog about TIAs and misdiagnosis with postantal psychosis below) I was furious about what happend
Eliza_E
in
Hughes Syndrome APS Forum
13 years ago
Anyone get psychiatric dxs requiring Seroquel, Depakote only w/ onset of PD dx?
I never had these, understand getting depression, anxiety, but do not understand why these?
I never had these, understand getting depression, anxiety, but do not understand why these?
sabadad
in
Cure Parkinson's
12 years ago
Tempus fugit
May I ask you to remain is silence for a moment? Please listen ... Can you hear it? Can't you? Try again. Pay more attention ... Do you hear it now? Tic...... Tac........ Tic....... Tac..... It's the sound of time passing by. But listen now: Tic Tac Tic Tac Tic Tac Tic Tac It's
May I ask you to remain is silence for a moment? Please listen ... Can you hear it? Can't you? Try again. Pay more attention ... Do you hear it now? Tic...... Tac........ Tic....... Tac..... It's the sound of time passing by. But listen now: Tic Tac Tic Tac Tic Tac Tic Tac It's
FulvioC
in
Cure Parkinson's
13 years ago
cardiac ablation
Has anyone had this done? I had it last week and am feeling quite rough still and was wondering if how i feel is normal ? Anyone shed some light?
Has anyone had this done? I had it last week and am feeling quite rough still and was wondering if how i feel is normal ? Anyone shed some light?
Hidden
in
Asthma Community Forum
15 years ago
So you think you’re Funny?
This is a message to all those poor, poor people that find themselves on the internet, mainly Youtube and Facebook following the rest of the crowd and thinking that your “well funny” well, sadly you’re not, you won’t see me laughing, you won’t see any of my friends laughing either, that’s because at
This is a message to all those poor, poor people that find themselves on the internet, mainly Youtube and Facebook following the rest of the crowd and thinking that your “well funny” well, sadly you’re not, you won’t see me laughing, you won’t see any of my friends laughing either, that’s because at
catherinem
in
Tourettes Action
14 years ago
Measuring Tourette's
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
sternj
in
Tourettes Action
14 years ago
23, Blonde, 4'10", Tourettes, Aspergers = undateable
Read this article from the Sun (noteably the worlds' best newspaper... but only on page 3...) http://www.thesun.co.uk/sol/homepage/showbiz/tv/3708755/TV-love-show-for-sufferers-of-Tourettes-Syndrome.html?allComments=true I just so happen to have two out of the three conditions this programme has decided
Read this article from the Sun (noteably the worlds' best newspaper... but only on page 3...) http://www.thesun.co.uk/sol/homepage/showbiz/tv/3708755/TV-love-show-for-sufferers-of-Tourettes-Syndrome.html?allComments=true I just so happen to have two out of the three conditions this programme has decided
LittleClapham
in
Tourettes Action
13 years ago
More labels than a label maker
It's been over a month since I lost Jenifer. Every day is a struggle because I have become very depressed. The stress also induced a nasty case of IBS (Irritable bowel syndrome) which was diagnosed by a GP last week. I have had it for years I believe but this is the first time I have had a name for it
It's been over a month since I lost Jenifer. Every day is a struggle because I have become very depressed. The stress also induced a nasty case of IBS (Irritable bowel syndrome) which was diagnosed by a GP last week. I have had it for years I believe but this is the first time I have had a name for it
LittleClapham
in
Tourettes Action
13 years ago
Is not being able to speak a vocal or phone tic?
Is not speaking or not able to speak a type of vocal tic or phone tic? Is it different from selective mutism? (a question from Tourettes Action's Research Conference 'Understanding TS' 30 Nov 2010 - 5)
Is not speaking or not able to speak a type of vocal tic or phone tic? Is it different from selective mutism? (a question from Tourettes Action's Research Conference 'Understanding TS' 30 Nov 2010 - 5)
Hidden
in
Tourettes Action
14 years ago
Trainspotting
This an annual stress of mine but this last year and this one to come it's going to be alot more than once a year I have to travel up to Liverpool, by rail, from the South Coast tommorrow Most times I have to book in advance but not always Anyway I normally go via London and catch the Virgin Trains
This an annual stress of mine but this last year and this one to come it's going to be alot more than once a year I have to travel up to Liverpool, by rail, from the South Coast tommorrow Most times I have to book in advance but not always Anyway I normally go via London and catch the Virgin Trains
Nomad
in
Tourettes Action
13 years ago
Not Going Out? Stay in and Watch Television.
Whilst our American cousins are in the middle of TS Awareness month, us Brits have something else to look forward to. Yep, you’ve guessed, quite the opposite of awareness and education, we get THAT sitcom with THAT episode AGAIN! Yet again a rather dated, so-called comedic view of disability and in particular
Whilst our American cousins are in the middle of TS Awareness month, us Brits have something else to look forward to. Yep, you’ve guessed, quite the opposite of awareness and education, we get THAT sitcom with THAT episode AGAIN! Yet again a rather dated, so-called comedic view of disability and in particular
catherinem
in
Tourettes Action
13 years ago
International Imstaringatyou syndrome Awareness Day
I don’t know if you are aware that today is International Imstaringatyou syndrome awareness day today. Imstaringatyou syndrome or IS for short is a condition that there is very little information available about in the public domain. Surprisingly, IS is fairly common and the numbers of patients being
I don’t know if you are aware that today is International Imstaringatyou syndrome awareness day today. Imstaringatyou syndrome or IS for short is a condition that there is very little information available about in the public domain. Surprisingly, IS is fairly common and the numbers of patients being
catherinem
in
Tourettes Action
13 years ago
Fertility Europe Launch Special Families
One in every six couple’s find out that they cannot achieve a pregnancy and have a child just like they thought they would. They keep trying; go through emotional and physical pain; medical investigations and treatments; and periods of hope and hopelessness. The road to a family life is a bumpy one for
One in every six couple’s find out that they cannot achieve a pregnancy and have a child just like they thought they would. They keep trying; go through emotional and physical pain; medical investigations and treatments; and periods of hope and hopelessness. The road to a family life is a bumpy one for
Hidden
in
Fertility Network UK
13 years ago
Take a Ticcer Out
Here’s a quick guide for statues (people without TS) to help them when making decisions about evenings out with a ticcer. I should have done this earlier but like a lot of my good ideas I have them too late, like the sadly cancelled Christmas Dinner in Birmingham. Choosing an activity This is quite
Here’s a quick guide for statues (people without TS) to help them when making decisions about evenings out with a ticcer. I should have done this earlier but like a lot of my good ideas I have them too late, like the sadly cancelled Christmas Dinner in Birmingham. Choosing an activity This is quite
catherinem
in
Tourettes Action
14 years ago
Croeso cynnes i'n cyfeillion Cymraeg
Helô a chroeso i'n cyfeillion ar yr ochr iawn o Bont Hafren. Mae'n pleser i weld fod grwp Tourettes Action newydd mewn bodolaeth a dyma fe Tourette’s South Wales Family Support, os hoffech chi cysylltu a ni dyma'r grwp facebook - http://www.facebook.com/groups/174964755888105/?id=216616948389552¬if_t
Helô a chroeso i'n cyfeillion ar yr ochr iawn o Bont Hafren. Mae'n pleser i weld fod grwp Tourettes Action newydd mewn bodolaeth a dyma fe Tourette’s South Wales Family Support, os hoffech chi cysylltu a ni dyma'r grwp facebook - http://www.facebook.com/groups/174964755888105/?id=216616948389552¬if_t
catherinem
in
Tourettes Action
13 years ago
Measuring Tourette's
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
sternj
in
Tourettes Action
14 years ago
Alcohol and TS medications - What's the effect?
Can I drink alcohol with all the medication I take, i.e. risperidone, concerta, clonidine? What effects will it have? Could it make me ill – the interaction of medication and alcohol? Question from Tourettes Action's Research Conference 'Understanding TS' 30 Nov 2010
Can I drink alcohol with all the medication I take, i.e. risperidone, concerta, clonidine? What effects will it have? Could it make me ill – the interaction of medication and alcohol? Question from Tourettes Action's Research Conference 'Understanding TS' 30 Nov 2010
Hidden
in
Tourettes Action
14 years ago
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