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Experiences with
Progressive cardiac conduction defect (PCCD)
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Communities
11 public communities
Sudden Cardiac Arrest & Heart Attack
2,215 members
We are a peer support community for sudden cardiac arrest and heart attack survivors. Join to talk about cardiac rehab, lifestyle changes, heart healthy lifestyle, and heart-related news - everyone is welcome!
British Heart Foundation
50,164 members
We are the British Heart Foundation (BHF), the largest independent funder of cardiovascular research. We fund research into life saving cures to beat heart disease, stroke and vascular dementia, and stop conditions like diabetes from causing them, to help people and families live longer, better lives. Over the years, our pioneering research has helped to transform the lives of people living with heart and circulatory conditions. As well funding ground-breaking research, we’re here to support people affected by heart and circulatory diseases and their risk factors. So whether you're living with a heart or circulatory disease, or just want to find out more about them, this is the place to be. If you have any questions or concerns, and would like to speak with one of our cardiac nurses, please do contact our Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm or email hearthelpline@bhf.org.uk This community is moderated by HU_Moderator
PSP Association
9,266 members
PSPA is a national charity offering information, practical and emotional support to people affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), while supporting research into treatments for the future. Our aim is that people affected by PSP & CBD do not feel they have to face the future alone. We offer support through our helpline and information service via telephone or email, our network of local groups and volunteers. We also offer a wide range of resources and publications. As well as events for people affected by both conditions. If you require information or support contact our confidential helpline and email service Monday to Friday 9am- 9pm. Tele: 0300 0110 122 Email: helpline@pspassociation.org.uk
Living Positively with Cerebral Palsy
461 members
I have Cerebral Palsy. I have had it since birth. I'm adult now. What I have found is that there is a lot of information out there for parents who have children with Cerebral Palsy. However, there is not a lot of support and information for adults with the condition. This is bad because Cerebral Palsy is treated like a childhood condition. This is surprising as it is not a progressive condition. People with Cerebral Palsy do not fall off the face of the earth when they hit eighteen years old. 1 in every 400 children are affected by cerebral palsy. These children will have this chronic condition for life. So if you want to share your experiences of Cerebral Palsy in adulthood. This is the place to do it. Connect with others who understand your situation!
Heart Valve Voice
348 members
Heart Valve Voice is the UK's dedicated heart valve disease charity. Heart Valve Voice is a collection of people with real experiences of heart valve disease, including a multi-disciplinary group of experts in the field (cardiologists, cardiac surgeons, GPs), cardiac patient societies and, most importantly, patients. We work with patients and clinicians to help increase the awareness of heart valve disease in the UK and improve diagnosis and treatment. Heart valve disease affects over 1.5 million people over the age of 65 in the UK and while there have been many advancements in the treatment of this disease the unfortunate fact is that far too many people are not being diagnosed and treated early enough. As a patient organisation, the power of our voice comes from the lived experiences of our patient community. Their stories are our lifeblood, and we use those experiences to affect change for future valve disease patients. Our community is a place where people can share their experiences, support each other and learn about heart valve disease treatment. You can read some of our heart valve disease stories here <https://heartvalvevoice.com/heart-valve-disease/stories> Our aim is to ensure that more of the population is aware of the importance of having their heart checked for heart valve disease, which can often be detected through a simple stethoscope check. With increased awareness, we hope to see many more heart valve disease patients get the treatment they need to go on to live full and happy lives.
Infertility Support
1,472 members
CHADD's Adult ADHD Support
23,669 members
CHADD's Adult ADHD Support community is a place to discuss the impact of ADHD on you or someone you care about. Talking about the challenges you face as an adult with ADHD can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
CHADD's ADHD Parents Together
23,098 members
The ADHD Parents Together community is a place to discuss the impact of ADHD on both you and your child. Talking about the challenges you face as a parent of a child with ADHD can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
Heart Failure Support
811 members
We are an international charity working to support early diagnosis and improve outcomes for heart failure patients and carers worldwide. Please share your experiences below or give us a call on +44 (0)1789 867 501 if you would like further info or advice on arrhythmia care and treatments. We are here to help.
Heart Rhythm Disorders Support
6,761 members
We are an international charity working to support early diagnosis and improve outcomes for arrhythmia patients and carers worldwide. Please share your experiences below or give us a call on +44 (0)1789 867 501 if you would like further info or advice on arrhythmia care and treatments. We are here to help.
Atrial Fibrillation Support
31,322 members
AF Association supports individuals affected by, or involved in the care of atrial fibrillation (AF). We are an international charity providing support through various means, including a helpline and comprehensive resources written by experts in the field and endorsed by the Department of Health.