I have pudendal neuralgia, interstitial cystitis, endometriosis and sacroiliac joint dysfunction. The endometriosis came first had all my life and was misdiagnosed and now it is too far gone to treat. Had surgery 4 times with no success. Scar tissue is severe. Then I developed sacroliac joint dysfunction and extreme pain in my sacroiliac joint on the left side. I was told that it looked like I had been in a car accident as my pelvis was out of line. Did pilates which improved it slightly but it comes and goes. Now it is back worse than ever and is on both sides, both joints hurt. Had buttock pain for 4 years of unknown cause, no doctor knows what that is. I cannot sit down very long without getting excrutiating pain in my buttock muscles. I have now developed interstitial cystitis (although it may not be that!) or the symptoms of it and it is extremely painful, it is the worse thing yet. I have also been told that it could be the pudendal nerve causing interstitial cystitis symptoms. I have tried numerous drugs with no help but I cannot tolerate the side effects as I am sensitive to medication. I have had Pregabalin, Amitriptyline, Dihydracodeine, Codeine, Tramadol, Carbamazepine etc. My pelvic floor squeezes very tight on biofeedback tests but if I do any type of kegal then relax it makes the pain so much worse in my bladder. I feel the pelvic floor may have knots in and need to find a physio that could help. I have researched this condition for 10 months and I am sure this is the cause of the bladder pain and pudendal nerve pain. I also have trouble with bowel movements ever since I had surgery 4 years ago. I wish I had never had surgery. I see consultants in Oxford, Birmingham, Worcester and they all say different things regarding what the bladder pain is. I really want to find a specialist in these problems who may help me. I have been told that surgery is not an option because of the scar tissue so I feel I am being fobbed off to live in pain for the rest of my life. I beleive Thiele massage may help but cannot find anyone who does it. Please help thanks
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.