Search
Search
About
Log in
Join
Experiences with
Polycythaemia vera
Posts
Communities
528 public posts
Filter results
Video of the MPN Voice ‘virtual’ forum focussing on PV, held on Thu 27 Jul 2023
This ‘virtual’ forum focussed on
Polycythaemia
Vera
(PV) and features talks from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Prof Mary Frances McMullin, Queen’s University Belfast and Dr Rebecca Frewin, Gloucestershire Hospitals NHS FT, and
This ‘virtual’ forum focussed on
Polycythaemia
Vera
(PV) and features talks from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Prof Mary Frances McMullin, Queen’s University Belfast and Dr Rebecca Frewin, Gloucestershire Hospitals NHS FT, and
Mazcd
MPNVoice
in
MPN Voice
1 year ago
polycythaemia anaemia
has anyone with
polycythaemia
Vera
had their severe anaemia treated
has anyone with
polycythaemia
Vera
had their severe anaemia treated
Luger1067
in
MPN Voice
2 years ago
Molloscum Contagious
hi this isn’t a question but I suffered from molloscum for a nearly a year but tried using savlon and also Aloe vera gel I’m not sure which one works best but I used both of them daily after one dried I used the other and within a week or so the bumps was finally gone
hi this isn’t a question but I suffered from molloscum for a nearly a year but tried using savlon and also Aloe vera gel I’m not sure which one works best but I used both of them daily after one dried I used the other and within a week or so the bumps was finally gone
Veractic12
in
Men's Health Forum
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Allergy / antihistamines after egg transfer? Other options?
Hi all, I had an IVF fresh transfer yesterday, EC was 4 days prior. But concerned as Sunday I developed a rash on my calf's, it's a rash I've had before and does seem to take a week or so to go away, I think it's after shaving legs then wearing trousers with a slight texture, like linen. Normally
Hi all, I had an IVF fresh transfer yesterday, EC was 4 days prior. But concerned as Sunday I developed a rash on my calf's, it's a rash I've had before and does seem to take a week or so to go away, I think it's after shaving legs then wearing trousers with a slight texture, like linen. Normally
ttcsolomummytobe
in
Fertility Network UK
1 year ago
Chorea and PV
It is second hand experience as it is my mother who suffers with
Polycythaemia
vera
(PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications).
It is second hand experience as it is my mother who suffers with
Polycythaemia
vera
(PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications).
PFR1937
in
MPN Voice
1 year ago
reflux help please
hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I developed changes to my voice and some issues swallowing. I had had a tube down my nose to check for swallowing issues before this happened and all
hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I developed changes to my voice and some issues swallowing. I had had a tube down my nose to check for swallowing issues before this happened and all
Happysmile
in
Pernicious Anaemia Society
1 year ago
reflux help please
hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I developed changes to my voice and some issues swallowing. I had had a tube down my nose to check for swallowing issues before this happened and all
hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I developed changes to my voice and some issues swallowing. I had had a tube down my nose to check for swallowing issues before this happened and all
Happysmile
in
Thyroid UK
1 year ago
Following LeoPa's “On CLL, diet and possible connections.”
I am also curious about the preferred energy source of CLL cells. Particularly the cholesterol role. If the CLL cells use cholesterol do they use whatever is present, or is there a signaling going on telling/initiating production—that causes cholesterol to rise? Below are a few articles I found on
I am also curious about the preferred energy source of CLL cells. Particularly the cholesterol role. If the CLL cells use cholesterol do they use whatever is present, or is there a signaling going on telling/initiating production—that causes cholesterol to rise? Below are a few articles I found on
Lavinia-Blue
in
CLL Support
15 days ago
Tequila!!! For your health and longevity?
Yesterday I had a interesting conversation with spider 54 and one of the topics we talked about was tequila.I am not advocating for anyone to start drinking alcohol spirits but if you do consume them I think it is a no-brainer to switch to Tequila. Tequila is made from the blue agave plant which is
Yesterday I had a interesting conversation with spider 54 and one of the topics we talked about was tequila.I am not advocating for anyone to start drinking alcohol spirits but if you do consume them I think it is a no-brainer to switch to Tequila. Tequila is made from the blue agave plant which is
Scout4answers
in
Advanced Prostate Cancer
1 year ago
CoVid and Polycythaemia Vera
I tested positive on 17 December 2022 and still showing positive after further test on 23 December. Has anyone with PV fell to CoVid and how long did it take to clear?
I tested positive on 17 December 2022 and still showing positive after further test on 23 December. Has anyone with PV fell to CoVid and how long did it take to clear?
Edinburgh1953
in
MPN Voice
2 years ago
Real world experience with Besremi in ET and PV following exposure to Pegasys.
Third generation pegylated IFNα, ropeginterferon alfa-2b (ropegIFN; Besremi), was recommended by the European Medicine Authority (EMA) for treatment of
Polycythaemia
Vera
(PV) following a Phase III trial (PROUD-PV / CONTINUATION-PV).
Third generation pegylated IFNα, ropeginterferon alfa-2b (ropegIFN; Besremi), was recommended by the European Medicine Authority (EMA) for treatment of
Polycythaemia
Vera
(PV) following a Phase III trial (PROUD-PV / CONTINUATION-PV).
Manouche
in
MPN Voice
2 years ago
Chemotherapy for pv
Hi everyone, I am a 66 year old man and have suffered with
polycythaemia
vera
for the past 7 years. Over the last year my bloods have been up and down and not very stable. Before Christmas it was suggested that I have a bone marrow biopsy and have just received the results.
Hi everyone, I am a 66 year old man and have suffered with
polycythaemia
vera
for the past 7 years. Over the last year my bloods have been up and down and not very stable. Before Christmas it was suggested that I have a bone marrow biopsy and have just received the results.
Georgehb
in
MPN Voice
2 years ago
Question for the group
ruba
Vera
(features of MDS/MPN overlap cycling blood counts, Has anyone else had this diagnosis any information would be appreciated, many thanks.
ruba
Vera
(features of MDS/MPN overlap cycling blood counts, Has anyone else had this diagnosis any information would be appreciated, many thanks.
Regge
in
MPN Voice
1 year ago
Fatty Liver disease and Triglyceride levels
Is it common place for people with fatty liver disease to have elevated triglyceride levels? Would you expect triglyceride levels to correlate with a fibroscan CAP score? There's also a particular type of cholesterol associated with the liver called VLDL: Is this a test that an NHS GP can do or is
Is it common place for people with fatty liver disease to have elevated triglyceride levels? Would you expect triglyceride levels to correlate with a fibroscan CAP score? There's also a particular type of cholesterol associated with the liver called VLDL: Is this a test that an NHS GP can do or is
mickeymouse42
in
British Liver Trust
11 months ago
Second opinion
Hi,I suffer from
polycythaemia
vera
and have done so for the last 7 years. I am on hydroxycarbamide, which they have kept increasing the dosage, but it is failing to keep my platelet levels etc in check.
Hi,I suffer from
polycythaemia
vera
and have done so for the last 7 years. I am on hydroxycarbamide, which they have kept increasing the dosage, but it is failing to keep my platelet levels etc in check.
Georgehb
in
MPN Voice
2 years ago
Modified release vs. Sustained release
Good evening everyone :) Following on from my post a couple of days ago, I managed to get my hands on my original brand of medication, Vera-Til SR. However, I have noticed that this one does not say modified release on it and is a different colour to the one I originally take. This is probably a
Good evening everyone :) Following on from my post a couple of days ago, I managed to get my hands on my original brand of medication, Vera-Til SR. However, I have noticed that this one does not say modified release on it and is a different colour to the one I originally take. This is probably a
Tos92
in
British Heart Foundation
1 year ago
Same medicine, different brand?
Good evening. I take a calcium channel blocker called Vera-Til SR 120mg, also known as Verapamil however, this particular brand is currently out of stock and I have been given an alternative which is Half Securon SR. My GP has advised that I always stick to one brand (Vera-Til SR) and the pharmacist
Good evening. I take a calcium channel blocker called Vera-Til SR 120mg, also known as Verapamil however, this particular brand is currently out of stock and I have been given an alternative which is Half Securon SR. My GP has advised that I always stick to one brand (Vera-Til SR) and the pharmacist
Tos92
in
British Heart Foundation
1 year ago
Recommendations for travel sickness tablets to settle stomach before flying or journeys
I have
Polycythaemia
Vera
and take Hydroxycarbamide always suffer from tummy problems before travelling on any form of transport . Sometimes a need to go to loo mainly to poo and at times force myself to go.
I have
Polycythaemia
Vera
and take Hydroxycarbamide always suffer from tummy problems before travelling on any form of transport . Sometimes a need to go to loo mainly to poo and at times force myself to go.
Edinburgh1953
in
MPN Voice
2 years ago
Recommended safe vitamins
I have
Polycythaemia
Vera
and take Hydroxycarbamide 2x500mg daily. Any recommendations for vitamins that are safe to take
I have
Polycythaemia
Vera
and take Hydroxycarbamide 2x500mg daily. Any recommendations for vitamins that are safe to take
Edinburgh1953
in
MPN Voice
2 years ago
aloe Vera juice —— acid
has anyone tried a natural approach to try & stop acid ? I’ve read that aloe juice & also decent Manuka honey are good ?
has anyone tried a natural approach to try & stop acid ? I’ve read that aloe juice & also decent Manuka honey are good ?
Timso
in
Acid Reflux Support
2 years ago
1
2
3
...
27
Next page
10
20
Filter results
Clear filters
Posted in
All communities
MPN Voice
79 results
Diabetes India
72 results
Thyroid UK
59 results
View top 10 communities
Sort by
Most Relevant
Newest