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Starting Pegasys
hi all, I’m about to start the next stage of my treatment journey, 45mg Pegasys fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start. I’ll update this thread over the next 12 months with various updates from how the first injection went and
hi all, I’m about to start the next stage of my treatment journey, 45mg Pegasys fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start. I’ll update this thread over the next 12 months with various updates from how the first injection went and
Steve_Essex
in
MPN Voice
2 months ago
Tilt Table Test
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Wewo01
in
MPN Voice
2 months ago
Great progress on Pegasys!
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
Minify
in
MPN Voice
2 months ago
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Adalimumab
I have been on Hydroxychloroquine for 2 years and methotrexate for 6 months. Today I had to have bloods and chest x-ray as they want to start me on Adalimumab. Really hate the thought of another medication. I just wonder exactly what the medication is doing to my body. Already had a blip last month
I have been on Hydroxychloroquine for 2 years and methotrexate for 6 months. Today I had to have bloods and chest x-ray as they want to start me on Adalimumab. Really hate the thought of another medication. I just wonder exactly what the medication is doing to my body. Already had a blip last month
Granblue
in
NRAS
2 months ago
Pulmonary Tuberculosis
I have been under treatment for Pulmonary Tb for about 11 months, however since ladt 4 days i have been experiencing low grade fever again. Should i be worried or does this happen sometimes
I have been under treatment for Pulmonary Tb for about 11 months, however since ladt 4 days i have been experiencing low grade fever again. Should i be worried or does this happen sometimes
Premika
in
TB Alert
2 months ago
mucus
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
devon29
in
Lung Conditions Community Forum
2 months ago
Pegasys skin?
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions
dogsandhorses
in
MPN Voice
3 months ago
Flagyl ( Metronidazole) Side Effects
Hi my friends, I was given Flagyl to treat my digestive system after an episode of food poisoning but this medicine caused a lot of annoying side effects like heartburn and bloating. Did any one had this medicine and how did you feel. Many thanks
Hi my friends, I was given Flagyl to treat my digestive system after an episode of food poisoning but this medicine caused a lot of annoying side effects like heartburn and bloating. Did any one had this medicine and how did you feel. Many thanks
Shoosh_kw
in
IBS Network
3 months ago
Pneumonia vaccines
hello all My question is about the Pneumovax-23 and Prevnar 13. I got the Prevnar 13 in 2015 The Pneumovax-23 in 2015 as well. Is it time to get these again? I live in the US. On W/W for over 20 years. Having immune globulin infusions for the last 5 years or so. Thank you for any insight.
hello all My question is about the Pneumovax-23 and Prevnar 13. I got the Prevnar 13 in 2015 The Pneumovax-23 in 2015 as well. Is it time to get these again? I live in the US. On W/W for over 20 years. Having immune globulin infusions for the last 5 years or so. Thank you for any insight.
Mother1943
in
CLL Support
3 months ago
Do you want to know more about.. Bradycardia?
Bradycardia is a term that describes a number of different conditions in which the heart beats at an unusually slow rate. If impulses are sent from the sinoatrial node at a slow rate, or if the impulses are delayed as they travel through the conduction system, the heartbeat will be slow. For further
Bradycardia is a term that describes a number of different conditions in which the heart beats at an unusually slow rate. If impulses are sent from the sinoatrial node at a slow rate, or if the impulses are delayed as they travel through the conduction system, the heartbeat will be slow. For further
SamAdmin
Administrator
in
Heart Rhythm Disorders Support
3 months ago
Coping with being constantly poorly
Hi to you all I’m currently on MTX 15mgs administered by weekly metojet and although I have some uncomfortable days now and again, I feel I’m fairly stable and I feel lucky that the treatment is working. ….. however ……. Since last October I have been constantly ill with virus/colds/chest infections
Hi to you all I’m currently on MTX 15mgs administered by weekly metojet and although I have some uncomfortable days now and again, I feel I’m fairly stable and I feel lucky that the treatment is working. ….. however ……. Since last October I have been constantly ill with virus/colds/chest infections
Feelingpoorly
in
NRAS
3 months ago
electric toothbrush, and Trigeminal Neuralgia
hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.
hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.
MSbeGone
in
My MSAA Community
3 months ago
low stomach acid
Post from lady on here earlier caught my attention and I wonder if any of you knowledgable people can throw some light on this? I done the home test - some baking soda & water first thing and no burp at all which indicates low stomach acid. Thankfully I do not have discomfort but I’m concerned about
Post from lady on here earlier caught my attention and I wonder if any of you knowledgable people can throw some light on this? I done the home test - some baking soda & water first thing and no burp at all which indicates low stomach acid. Thankfully I do not have discomfort but I’m concerned about
FoxyTed
in
Thyroid UK
3 months ago
Prucalopride
I had an appointment with the gastroenterologist last week and she has advised that I have IBS-C. Previously she advised I had SIBO and was prescribed rifaximin. That antibiotic did not solve my problem. I am suffering with excessive gas, trapped wind and bloating. I have been on laxido for around
I had an appointment with the gastroenterologist last week and she has advised that I have IBS-C. Previously she advised I had SIBO and was prescribed rifaximin. That antibiotic did not solve my problem. I am suffering with excessive gas, trapped wind and bloating. I have been on laxido for around
Profound15
in
IBS Network
3 months ago
HSV-1 Hepatitis
Has anyone in the UK been diagnosed with HSV-1 Hepatitis? I've had an two week stay in hospital. Diagnosed with Accute Hepatitis. I have been tested for all the obvious viruses which cause Hepatitis, all with negative results. Ultrasound & CT's of the liver, pancreas & gall bladder, all clear. I was
Has anyone in the UK been diagnosed with HSV-1 Hepatitis? I've had an two week stay in hospital. Diagnosed with Accute Hepatitis. I have been tested for all the obvious viruses which cause Hepatitis, all with negative results. Ultrasound & CT's of the liver, pancreas & gall bladder, all clear. I was
AutumnMoon1
in
British Liver Trust
3 months ago
Dad, 77, in ICU, double pneumonia, now issues with kidneys
Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to Intensive Care and intubated due to double pneumonia. Normally a health, active 77 year old. They said he wouldn't make it through the
Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to Intensive Care and intubated due to double pneumonia. Normally a health, active 77 year old. They said he wouldn't make it through the
Preciousfamily
in
ICUsteps
3 months ago
Alvesco 160
Hi. the doctor changed my inhaler to Alvesco 160, one dose twice a day. Does anyone of you have experience with this inhaler? How long does it take for the inhaler to start working? And I wonder if this is a sufficient dose if I have severe asthma? Thank you for all your replies. Regards
Hi. the doctor changed my inhaler to Alvesco 160, one dose twice a day. Does anyone of you have experience with this inhaler? How long does it take for the inhaler to start working? And I wonder if this is a sufficient dose if I have severe asthma? Thank you for all your replies. Regards
ewusia28
in
Asthma Community Forum
3 months ago
Ivermectin
I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?
I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?
Bornagain514
in
CLL Support
3 months ago
pain in jaw sent home by hospital OBS ok
just recently diagnosed PMR however having increasingly often jaw and ear ache my daughter insisted I go to Aand E but was told my obs ok go back to gp - any ideas or experiences of jaw pain please
just recently diagnosed PMR however having increasingly often jaw and ear ache my daughter insisted I go to Aand E but was told my obs ok go back to gp - any ideas or experiences of jaw pain please
Gotryit
in
PMRGCAuk
3 months ago
Getting a cold/sore throat just as tapering about to start- would you advise delaying the taper till cold is better?
I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks using DLady slow taper, then from 12.5 to 10mg, and just about to start next taper from 10mg to 9mg… but woke up yesterday with sore throat and aching lower back that persisted all day. Took Covid test just in case but that
I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks using DLady slow taper, then from 12.5 to 10mg, and just about to start next taper from 10mg to 9mg… but woke up yesterday with sore throat and aching lower back that persisted all day. Took Covid test just in case but that
Preposterous
in
PMRGCAuk
3 months ago
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