Paresthesia is back, even with Plaquenil !!

[Bettyboop71345]

Hi everyone...

Lucky you, get Trump today 😅

Anyway I haven't complained in a while...Paresthesia is back...RLS is back...Pain in joints a tad better but still get shooting pain in my fingers..Am also on 4 mg. oripinole nightly. Oh yeah, the mandibular dystonia is a bit better

Thanks

Betty👩🏻‍🦰

[Joaclp]

So sorry for all your pain. I have Sjögrens and neuropathy, and RA. Etc, and oddly got some relief from finger pain through carpal tunnel injections. I thought any approach to neuropathy had to be centralized and deal with causes, so I had resisted treatment of individual symptoms. Just a thought about your hands. I have tendonitis and arthritis in mine as well but the shooting pains were capal tunnel. All the best.

[Bettyboop71345 in reply to Joaclp]

Thank you ! seeing PCP tomorrow... Rheumatologist wasn't helpful🤦🏼‍♀️ Will mention CT...

[Joaclp in reply to Bettyboop71345]

I asked my neurologist to refer me to a hand surgeon and got injections in the wrists. A year ago EMG and nerve conduction test showed carpal tunnel as well as small and large fiber damage. I resisted, because of a lack of dx for progressive neuropathy. Now, I am grateful for any relief I can get! Good luck!

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I just saw this. You know you posted this three months but I still don’t know how this chat thing works. But I saw that you take plaquenil. I have been taking that since I was 16 for my Lupus. It saved my life. Put me right in remission.