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SLE Patients Stake a Claim on Hydroxychloroquine
The American College of Rheumatology has issued a series of recommendations to ensure a steady supply of hydroxychloroquine (
Plaquenil
, Sanofi) for patients with systemic lupus erythematosus who depend on the medication to control flares.
The American College of Rheumatology has issued a series of recommendations to ensure a steady supply of hydroxychloroquine (
Plaquenil
, Sanofi) for patients with systemic lupus erythematosus who depend on the medication to control flares.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Plaquenil and dry mouth
Plaquenil
is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of
plaquenil
? Or could it possibly be Sjögrens?
Plaquenil
is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of
plaquenil
? Or could it possibly be Sjögrens?
loopy4me
in
LUPUS UK
4 years ago
PMR, Actemra, and IgM antibodies
Started with methotrexate and
plaquenil
for a few months, and then started monthly Actemra infusions. I'm pretty much pain free these days, primarily because of the Actemra, I think, and I'm now getting an infusion every two months. Blood tests indicate that the inflammation is under control.
Started with methotrexate and
plaquenil
for a few months, and then started monthly Actemra infusions. I'm pretty much pain free these days, primarily because of the Actemra, I think, and I'm now getting an infusion every two months. Blood tests indicate that the inflammation is under control.
grandemr
in
PMRGCAuk
4 years ago
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Does Plaquenil Hydroxychloroquine) help with Sjorgens
Has
Plaquenil
helped your Sjogrens?
Has
Plaquenil
helped your Sjogrens?
Miamigirl305
in
The Australian Sjögren's Syndrome Association
4 years ago
mixed connective tissue disease , no inflammation
Have been taking low dose
plaquenil
for several years. Have issues with joint pain, but no inflammation shows up in blood work. Doctor dismisses pain because no inflammation. Anyone else have this issue?
Have been taking low dose
plaquenil
for several years. Have issues with joint pain, but no inflammation shows up in blood work. Doctor dismisses pain because no inflammation. Anyone else have this issue?
traveler2019
in
LUPUS UK
4 years ago
Sjogrens
My rheumatologist confirmed the diagnosis and now put me on
plaquenil
.
My rheumatologist confirmed the diagnosis and now put me on
plaquenil
.
Miamigirl305
in
Hughes Syndrome APS Forum
4 years ago
Spine
Plaquenil
has significantly reduced the peripheral joint pain but does nothing for my spine. When I take higher doses of anti-inflammatories, the spine pain, and Neuro symptoms (ataxia, swallowing, neuropathy, muscle weakness) are better controlled.
Plaquenil
has significantly reduced the peripheral joint pain but does nothing for my spine. When I take higher doses of anti-inflammatories, the spine pain, and Neuro symptoms (ataxia, swallowing, neuropathy, muscle weakness) are better controlled.
maye1
in
LUPUS UK
5 years ago
Using Hydroxychloroquine for Less Than 1 Year Raises Patients’ Likelihood of Flares, Study Suggests
Based on evidence of fewer flares in comparison with a placebo, hydroxychloroquine (sold as
Plaquenil
, among other names) is recommended as a safe, daily and long-term treatment for SLE patients.
Based on evidence of fewer flares in comparison with a placebo, hydroxychloroquine (sold as
Plaquenil
, among other names) is recommended as a safe, daily and long-term treatment for SLE patients.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Head fullness /swollen legs
Hi there wondering if anyone has advice on head fullness , ive been getting the worst of it the last 3 months or so , i get whooshing in my head and nearly faint at times almost like im about to black out but i dont , ive only started
plaquenil
about 2 weeks ago this was going on beforehand also and
Hi there wondering if anyone has advice on head fullness , ive been getting the worst of it the last 3 months or so , i get whooshing in my head and nearly faint at times almost like im about to black out but i dont , ive only started
plaquenil
about 2 weeks ago this was going on beforehand also and
Emfrenette
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Tacrolimus for lupus nephritis Class V? Cellcept isnt working.
Quick summary-At 22 dg with lupus, was on
plaquenil
, then age 44 ie this year out of the blue dg with lupus nephritis-biopsy showed Class 5-membranous nephropathy. May 19 put on cellcept and enalapril.
Quick summary-At 22 dg with lupus, was on
plaquenil
, then age 44 ie this year out of the blue dg with lupus nephritis-biopsy showed Class 5-membranous nephropathy. May 19 put on cellcept and enalapril.
NewEngland3
in
LUPUS UK
5 years ago
Second post and update.
He has confirmed onset of RA and started me on
Plaquenil
200mg and Ixprim for pain relief. Were it not for this forum I would not have had the confidence to go further with this issue and assert myself. Many thanks to you all for information provided and support.
He has confirmed onset of RA and started me on
Plaquenil
200mg and Ixprim for pain relief. Were it not for this forum I would not have had the confidence to go further with this issue and assert myself. Many thanks to you all for information provided and support.
Loopylu19
in
NRAS
5 years ago
advice
i am after some other lupus help recently diagnosed but lupus been dormant but not had my first lupus flare and have started taking
plaquenil
for three weeks however the pain in my right leg is awful - its not moving and I wake up in agony every day How long did the medication take to work for anyone
i am after some other lupus help recently diagnosed but lupus been dormant but not had my first lupus flare and have started taking
plaquenil
for three weeks however the pain in my right leg is awful - its not moving and I wake up in agony every day How long did the medication take to work for anyone
jogordon
in
LUPUS UK
5 years ago
irregular heartbeat
Plaquenil
in the a.m. I also take 81 mg. Aspirin in the a.m. At night I take 30 mg. Temazepam as I have severe issues. I have been experiencing a flare up for the past couple of weeks due to increased stress in my life.
Plaquenil
in the a.m. I also take 81 mg. Aspirin in the a.m. At night I take 30 mg. Temazepam as I have severe issues. I have been experiencing a flare up for the past couple of weeks due to increased stress in my life.
Jackiecnunez
in
Lupus Foundation of Florida
5 years ago
Reducing plaquenil dosage and the effects.
For the past decade I have been on 400mg of
plaquenil
and recently my rheumatologist decided that my lupus was under control and we could try reducing the dosage.
For the past decade I have been on 400mg of
plaquenil
and recently my rheumatologist decided that my lupus was under control and we could try reducing the dosage.
Shellhar
in
LUPUS UK
5 years ago
PMR vs. Rheumatoid or something else
He also mentioned methotrexate but then he changed his mind and he going to leave me on prednisone low-dose for now until I need more than 6 mg then he said we would revisit this.He made sure I’m taking
plaquenil
twice a day as well.
He also mentioned methotrexate but then he changed his mind and he going to leave me on prednisone low-dose for now until I need more than 6 mg then he said we would revisit this.He made sure I’m taking
plaquenil
twice a day as well.
Leilagirl
in
PMRGCAuk
5 years ago
Need help taking this decision :(
Hi Dears, 5 years back I had 6 consecutive chemical pregnancies, then did IVF with PGS tested embryos, took (intralipids +
Plaquenil
+ prednisolone + clexcane) the first round we transferred 2 and I had my sweet baby girl who is 2 years now.
Hi Dears, 5 years back I had 6 consecutive chemical pregnancies, then did IVF with PGS tested embryos, took (intralipids +
Plaquenil
+ prednisolone + clexcane) the first round we transferred 2 and I had my sweet baby girl who is 2 years now.
suzans
in
Fertility Network UK
5 years ago
Fustrated
Last appoimtmemt he tells me my edenscopy results were abnormal i was told i had GERD and gotnput on pantroprozol and pretty much ..here news meds to go on called "
plaquenil
" and tells me see you after xmas !
Last appoimtmemt he tells me my edenscopy results were abnormal i was told i had GERD and gotnput on pantroprozol and pretty much ..here news meds to go on called "
plaquenil
" and tells me see you after xmas !
Emfrenette
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Plaquenil - long term effects on children born to mothers taking it during pregnqncy
While i read everywhere that
Plaquenil
is safe during pregnancy, i wonder if anyone knows if there has been any long term follow up of children born to mothers taking
Plaquenil
during pregnancy? Or are there members with grown up children, that had taken
Plaquenil
during their pregnancies? Thanks!
While i read everywhere that
Plaquenil
is safe during pregnancy, i wonder if anyone knows if there has been any long term follow up of children born to mothers taking
Plaquenil
during pregnancy? Or are there members with grown up children, that had taken
Plaquenil
during their pregnancies? Thanks!
jemozne
in
LUPUS UK
5 years ago
CAPS or Primary APS with Alveolar Hemorrhage
Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids,
Plaquenil
, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience with any of this??
Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids,
Plaquenil
, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience with any of this??
kiminabmw
in
Hughes Syndrome APS Forum
5 years ago
Thoughts Needed
I just wonder if not going beyond aspirin/
plaquenil
is allowing my blood to be too thick and then causing all of my speaking/thinking problems. Do Drs just not consider the issues in the brain as a strong enough reason to anticoagulate?
I just wonder if not going beyond aspirin/
plaquenil
is allowing my blood to be too thick and then causing all of my speaking/thinking problems. Do Drs just not consider the issues in the brain as a strong enough reason to anticoagulate?
TwoH
in
Hughes Syndrome APS Forum
5 years ago
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