advice

[jogordon]

i am after some other lupus help

recently diagnosed but lupus been dormant but not had my first lupus flare and have started taking plaquenil for three weeks

however the pain in my right leg is awful - its not moving and I wake up in agony every day

How long did the medication take to work for anyone else

if i havent seen an approvement should i speak about stopping

[Hidden]

I just started plaquenil the 5th of Sept. The doctor told me it would take ‘at least’ a month before feeling the effects help. In the meantime it caused terrible stomach cramps while my body adjusted.

Hang in there jogordon, hopefully you will start feeling the effects in about a week. After that, hopefully each week you will feel more improvements. Best of luck.

[Oshgosh]

Do you have access to a helpline.

The hospital I attend has a rheumatology helpline,run by rheumatology nurses.its usuall answerphone,but they do get back to you.or perhaps you could send a message to your consultant via-their secretary.hope things work out for you

[loopy4me]

After 15 days, I noticed some pain reduction in legs, jaws, and feet. Not much, but there was an improvement

[jogordon]

Thanks everyone but I have decided to stop my medication and look at alternative health

Anyone gone down this path

[Hidden in reply to jogordon]

I have been doing ‘alternative’ the past 4 1/2 years. Just started meds about 4 weeks ago. But good for you! My prayers will be with you 🙏, and keep us posted on your success.

I’m still doing alternative even though I’m using plaquenil. I’m seeing a Foot Zoner in Utah at the end of this month as well as lots of supplements, exercise (except on really bad days), not eating the no-no stuff and eating a lot of the ‘should’ stuff, hot soaks with Epsom instead of pain meds, and compression clothing for extra aches and pains. Trying... always trying.

All my best to you.

BK

[jogordon in reply to Hidden]

What supplements x

[Hidden in reply to jogordon]

OMGoodness, a long list.

Liquid vitamin B, under tongue

Liquid vitamin D under tongue

CoQ10

Biotin

Ginger Root

Turmeric

Cat’s Claw Bark

Magnesium

& Fish Oil