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Experiences with
Pernicious anaemia
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blood test results
Is there a test for
pernicious
anaemia
?
Is there a test for
pernicious
anaemia
?
Tattlee
in
Pernicious Anaemia Society
5 months ago
Wolffenbuttel replies - PAS article
Only One Chance https://
pernicious
-
anaemia
-society.org/blog/only-one-chance/
Only One Chance https://
pernicious
-
anaemia
-society.org/blog/only-one-chance/
Sleepybunny
in
Pernicious Anaemia Society
2 months ago
B12 def and itchy skin?
Can B12 deficency /
pernicious
anaemia
cause itchy skin.
Can B12 deficency /
pernicious
anaemia
cause itchy skin.
Whiskymack
in
Pernicious Anaemia Society
5 months ago
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Sydney doctor for PA
Hi Does anyone know of a haematologist or any doctor in Sydney who treats
Pernicious
Anaemia
? Thanks
Hi Does anyone know of a haematologist or any doctor in Sydney who treats
Pernicious
Anaemia
? Thanks
Grandbella
in
Pernicious Anaemia Society
4 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with
pernicious
anaemia
18 years ago.
I have been having B12 injections since being diagnosed with
pernicious
anaemia
18 years ago.
Suesue246
in
Pernicious Anaemia Society
7 months ago
Only One Chance - PAS blog post by B. Wolffenbuttel
Bruce Wolffenbuttel wrote a blog post for PAS (
Pernicious
Anaemia
Society)in December 2023. https://
pernicious
-
anaemia
-society.org/blog/only-one-chance/ It's very detailed and well worth a read. Wish he'd been my doctor.... Comments can be left under the article.
Bruce Wolffenbuttel wrote a blog post for PAS (
Pernicious
Anaemia
Society)in December 2023. https://
pernicious
-
anaemia
-society.org/blog/only-one-chance/ It's very detailed and well worth a read. Wish he'd been my doctor.... Comments can be left under the article.
Sleepybunny
in
Pernicious Anaemia Society
4 months ago
Atypical Pernicious Anaemia
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical
pernicious
anaemia
".
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical
pernicious
anaemia
".
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
What type of consultant is able to help with P.A.
if you do suspect you have
pernicious
Anaemia
, and the GP is willing to accept the possibility, what is the best type of consultant to see. Gastroenterologist or immunologist? Or other. I am willing to pay private if that is what it takes to get some answers.
if you do suspect you have
pernicious
Anaemia
, and the GP is willing to accept the possibility, what is the best type of consultant to see. Gastroenterologist or immunologist? Or other. I am willing to pay private if that is what it takes to get some answers.
Chickens44
in
Pernicious Anaemia Society
1 month ago
Pulse article 11th July re draft guidelines for B12 - gp's comments. Words fail me.
Neil Banik "...We have well over 150 patients with B12 deficiency and None of them had
anaemia
..." - and he knows this because ....? Someone needs to tell him about IFAB accuracy
Neil Banik "...We have well over 150 patients with B12 deficiency and None of them had
anaemia
..." - and he knows this because ....? Someone needs to tell him about IFAB accuracy
newlandvale
in
Pernicious Anaemia Society
10 months ago
feeling depressed and disheartened
So I'm having my 2 weeks loading injections (6 injections) for
pernicious
anaemia
at the GP I had no relief of symptoms until yesterday my 4th injection I had it at 4pm and by 8 that night I was absolutely wired all my symptoms went off for the first time in 3 years ( I have multiple spinal lesions
So I'm having my 2 weeks loading injections (6 injections) for
pernicious
anaemia
at the GP I had no relief of symptoms until yesterday my 4th injection I had it at 4pm and by 8 that night I was absolutely wired all my symptoms went off for the first time in 3 years ( I have multiple spinal lesions
mully
in
Pernicious Anaemia Society
2 months ago
support the Pernicious Anaemia Society
you can donate here: https://www.justgiving.com/page/leannenivenruns and if you are not already, please become a member of the
Pernicious
Anaemia
Society via our website. Our March newsletter will be out soon! thank you to those who consistently support us here and in other media.
you can donate here: https://www.justgiving.com/page/leannenivenruns and if you are not already, please become a member of the
Pernicious
Anaemia
Society via our website. Our March newsletter will be out soon! thank you to those who consistently support us here and in other media.
PAScomms
in
Pernicious Anaemia Society
2 months ago
Llais - Feedback on NHS in Wales
https://www.llaiswales.org/news-and-reports I wondered if PAS (
Pernicious
Anaemia
Society) had had contact with Llais. PAS head office is in Bridgend, Wales. https://
pernicious
-
anaemia
-society.org/
https://www.llaiswales.org/news-and-reports I wondered if PAS (
Pernicious
Anaemia
Society) had had contact with Llais. PAS head office is in Bridgend, Wales. https://
pernicious
-
anaemia
-society.org/
Sleepybunny
in
Pernicious Anaemia Society
4 months ago
Blood test results..interpretation/advice.
anaemia
.
anaemia
.
Betwelvepatient
in
Pernicious Anaemia Society
5 months ago
New pernicious anaemia diagnosis
Hi, I am a 20 year old female who has recently been diagnosed with
pernicious
anaemia
(around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels.
Hi, I am a 20 year old female who has recently been diagnosed with
pernicious
anaemia
(around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels.
Ellamae2
in
Pernicious Anaemia Society
1 year ago
Fundraising
We need
Pernicious
Anaemia
or B12 deficiency on everybody’s lips. It rolls off the tongue and is at the forefront of people’s MINDS. For it not to be the forgotten disease. We want it short, smart, stylish and sexy. Justin Timberlake sang, ‘I am Bringing Sexy Back.’
We need
Pernicious
Anaemia
or B12 deficiency on everybody’s lips. It rolls off the tongue and is at the forefront of people’s MINDS. For it not to be the forgotten disease. We want it short, smart, stylish and sexy. Justin Timberlake sang, ‘I am Bringing Sexy Back.’
Narwhal10
in
Pernicious Anaemia Society
8 months ago
what type of folate to take with b12 injections
Hi I was diagnosed with
Pernicious
Anaemia
in 2017 and am on 8 weekly injections now. I also SI usually once a week. I still have lots of symptoms and still suffering with Iron Deficiency Anaemia which I can't seem to get better from.
Hi I was diagnosed with
Pernicious
Anaemia
in 2017 and am on 8 weekly injections now. I also SI usually once a week. I still have lots of symptoms and still suffering with Iron Deficiency Anaemia which I can't seem to get better from.
Cn13
in
Pernicious Anaemia Society
9 months ago
Why do I have a high pulse?
I was diagnosed with
pernicious
anaemia
after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany.
I was diagnosed with
pernicious
anaemia
after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany.
Bluemuffin
in
Pernicious Anaemia Society
1 year ago
Hypothyroidism and Pernicious Anaemia assistance please
I was diagnosed with
Pernicious
Anaemia
a year ago and also have vitamin B12 hydroxocobalamin injections regularly to treat it.
I was diagnosed with
Pernicious
Anaemia
a year ago and also have vitamin B12 hydroxocobalamin injections regularly to treat it.
yorkshiregirl4
in
Thyroid UK
1 month ago
slippery elm & pernicious anaemia
If you have
pernicious
anaemia
& have absorption issues, is it ok to take slippery elm & marshmallow extract to line the stomach? I have this awful gnawing pain in the left upper back that I’m trying to ease & these herbal remedies were recommended. Does anyone else get this pain?
If you have
pernicious
anaemia
& have absorption issues, is it ok to take slippery elm & marshmallow extract to line the stomach? I have this awful gnawing pain in the left upper back that I’m trying to ease & these herbal remedies were recommended. Does anyone else get this pain?
Winniepoo15
in
Pernicious Anaemia Society
6 months ago
B12 and menopause?
I’ve been advised to take vitamin b complex for menopause symptoms but is there any point if I have
pernicious
anaemia
? Might be a silly question but if my body can’t absorb it (I have injections every 3 months) isn’t my body just getting rid of it every day? Some advice would be good!
I’ve been advised to take vitamin b complex for menopause symptoms but is there any point if I have
pernicious
anaemia
? Might be a silly question but if my body can’t absorb it (I have injections every 3 months) isn’t my body just getting rid of it every day? Some advice would be good!
Clare2502
in
Pernicious Anaemia Society
4 months ago
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