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Permanent atrial fibrillation
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ecg and low blood pressure
I have had a ecg this morning and it was fine but it says that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a little low but it has never been low until today. I am not sure why. anyway, I hope that there is nothing bad wrong with me. I hope you
I have had a ecg this morning and it was fine but it says that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a little low but it has never been low until today. I am not sure why. anyway, I hope that there is nothing bad wrong with me. I hope you
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
New Clinical Trial for Non-diabetic CKD
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
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A study record is now available on the Clinical Trials website for the big (N=330) Ambroxol Phase 3 trial (NCT05778617)
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
jeffreyn
in
Cure Parkinson's
1 year ago
Ectopics/Possible Afib
Hi, hoping for some advice please. Was on PIP Bisoprolol 1.25mg for SVT and ectopics until cancer diagnosis in 2019, when I started taking Bisoprolol 1.25mg daily on doctor's insistence, upped to 2.5mg a year ago. Also on Amlodopine 5mg for BP. This has worked a treat and I completed surgery, chemo,
Hi, hoping for some advice please. Was on PIP Bisoprolol 1.25mg for SVT and ectopics until cancer diagnosis in 2019, when I started taking Bisoprolol 1.25mg daily on doctor's insistence, upped to 2.5mg a year ago. Also on Amlodopine 5mg for BP. This has worked a treat and I completed surgery, chemo,
Auntielala
in
AF Association
2 years ago
Using modified virus to awaken your immune system to attack tumor
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
Running out of med and other intervention options?
Long history of being in AF for 12 hrs +. Several ablations including PVI .4/5.CardioVersions. Warfarins initially,current on Edoxaban and changing to Epixaban. Switched from Digoxin to Amioderone several weeks before CV last week as Cardiology advised by Eleccardiophysiology., Reduced Bisoprolol
Long history of being in AF for 12 hrs +. Several ablations including PVI .4/5.CardioVersions. Warfarins initially,current on Edoxaban and changing to Epixaban. Switched from Digoxin to Amioderone several weeks before CV last week as Cardiology advised by Eleccardiophysiology., Reduced Bisoprolol
BasG
in
Atrial Fibrillation Support
2 years ago
chemotherapy
I had 3 round of taxol developed neuropathy and discontinued treatment but completed the 6 rounds of carboplatin. Neither treatments helped my cancer. Did Keytruda infusion with Lenvima pills not working. No approved therapists left, except for a clinical trial if I qualify and am accepted? Good luck
I had 3 round of taxol developed neuropathy and discontinued treatment but completed the 6 rounds of carboplatin. Neither treatments helped my cancer. Did Keytruda infusion with Lenvima pills not working. No approved therapists left, except for a clinical trial if I qualify and am accepted? Good luck
blondiec
in
British Heart Foundation
1 year ago
Possibly Failing Calquence - what’s next?
Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008 with cll, Started treatment in 2011 after biopsy of mass in nasopharynx turned out to be CLL related. Had 6 cycles of B& R, then maintenance Rituxan
Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008 with cll, Started treatment in 2011 after biopsy of mass in nasopharynx turned out to be CLL related. Had 6 cycles of B& R, then maintenance Rituxan
ReneeSusan
in
CLL Support
1 year ago
Clinical trial discussion with Black and African American men in the USA
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
Darryl
Partner
in
Advanced Prostate Cancer
1 year ago
Paroxysmal AF getting worse
I was diagnosed with PAF last spring and put on bisoprolol plus a blood thinner. The dosage of bisoprolol has since crept up to the maximum 10mg per day as the PAF has become more frequent and longer lasting. I have been struggling to get my GP to get me an appt with cardiology for a meds review and/
I was diagnosed with PAF last spring and put on bisoprolol plus a blood thinner. The dosage of bisoprolol has since crept up to the maximum 10mg per day as the PAF has become more frequent and longer lasting. I have been struggling to get my GP to get me an appt with cardiology for a meds review and/
LAPHM
in
AF Association
2 years ago
Buntanetap Clinical Trial
Is anyone participating at this trial, or knows someone that is. What's the lastest news. Are any results already published?
Is anyone participating at this trial, or knows someone that is. What's the lastest news. Are any results already published?
Veravrida
in
Cure Parkinson's
1 year ago
Gains seen in Parkinson’s with Symbyx’s red light therapy helmet
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Baron1
in
Cure Parkinson's
1 year ago
Trelstar
My urologist changed my eligard injections to Trelstar without my knowledge. It was given subq instead of IM as prescribed. Is that a problem?
My urologist changed my eligard injections to Trelstar without my knowledge. It was given subq instead of IM as prescribed. Is that a problem?
Altamontt
in
Advanced Prostate Cancer
2 years ago
PSMA PET-CT Ga68 Scan results
Profile recap: family history of PCa; RALP 5/18/09; post-surgery pathology Gleason 3+3; no evidence of PCa extracapsular or in pelvic lymph nodes. Post-surgery PSA undetectible until 2013, then reached 0.20 in 2017. Most recent PSA 0.56 in January 2023. Scan was performed on 3/9/23 by Department
Profile recap: family history of PCa; RALP 5/18/09; post-surgery pathology Gleason 3+3; no evidence of PCa extracapsular or in pelvic lymph nodes. Post-surgery PSA undetectible until 2013, then reached 0.20 in 2017. Most recent PSA 0.56 in January 2023. Scan was performed on 3/9/23 by Department
KeyboardGuy
in
Advanced Prostate Cancer
1 year ago
Update from Norwich - Sub Chondral Insufficiency Fracture
I was about to do a general update just to encourage people on the PMR journey as I think it helps to compare. So I will start with that. I have now seen my rheumatologist 3 times (Max Yates at NNUH) wh has been great. The first tme referred me for a biologic clinical trial but I wasn't accepted as not
I was about to do a general update just to encourage people on the PMR journey as I think it helps to compare. So I will start with that. I have now seen my rheumatologist 3 times (Max Yates at NNUH) wh has been great. The first tme referred me for a biologic clinical trial but I wasn't accepted as not
marionofnorwich
in
PMRGCAuk
1 year ago
B12 tablets better than injection!
Hi, after taking Hydroxocobalaminacetat 1000ug I.M. for over a year once every 12 days I decided to switch to tablets. Having been put on an anticoagulant for Afib I was suffering from pain and bruising at the injection sites. I started taking 1000ug Methylcobalamin standard tablets each day and within
Hi, after taking Hydroxocobalaminacetat 1000ug I.M. for over a year once every 12 days I decided to switch to tablets. Having been put on an anticoagulant for Afib I was suffering from pain and bruising at the injection sites. I started taking 1000ug Methylcobalamin standard tablets each day and within
john159
in
Pernicious Anaemia Society
1 year ago
Bayer subsidiary BlueRock taps Rune Labs for Parkinson's study software
Bayer subsidiary BlueRock Therapeutics has signed with Rune Labs to use the neurology software and data platform company’s clinical trial tech to get a sharper picture of Parkinson’s disease patient activity and encourage better engagement in its cell therapy study. https://www.fiercebiotech.com/cro/
Bayer subsidiary BlueRock Therapeutics has signed with Rune Labs to use the neurology software and data platform company’s clinical trial tech to get a sharper picture of Parkinson’s disease patient activity and encourage better engagement in its cell therapy study. https://www.fiercebiotech.com/cro/
Farooqji
in
Cure Parkinson's
1 year ago
An indicator in the blood could guide lupus treatment
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
clinical trials with Olaparib as a mono therapy in hormone sensitive prostate cancer?
does anyone know if this is happening anywhere at all Regards
does anyone know if this is happening anywhere at all Regards
Brysonal
in
Fight Prostate Cancer
1 year ago
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