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Permanent atrial fibrillation
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Brachycardia attacks help.2 days on the trot.In persistent AFib.Dont know how to deal with it.
I have been in persistent AFib for 18 months and HR has been fairly Stable.Last 2days I have over excercised HR Up to140 temporarily with twinges in my chest. I rested until down to normal and few hours later Dizzy spells Visual migraine aura & HR 58 to 6 0.Should I be contacting anyone? Or shall
I have been in persistent AFib for 18 months and HR has been fairly Stable.Last 2days I have over excercised HR Up to140 temporarily with twinges in my chest. I rested until down to normal and few hours later Dizzy spells Visual migraine aura & HR 58 to 6 0.Should I be contacting anyone? Or shall
kkatz
in
Atrial Fibrillation Support
2 years ago
KEYNOTE-B96 Clinical trial
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Vilinew
in
My Ovacome
1 year ago
Cardiac Care
Hi there ! Is everyone with A/F supposed to have access to have a cardiologist or access to an A/F nurse? I was diagnosed with A/F in 2011 and have not seen a cardiologist since. I paid for a private consultation with an EP who was keen for an ablation - I was not at that time - and I haven’t
Hi there ! Is everyone with A/F supposed to have access to have a cardiologist or access to an A/F nurse? I was diagnosed with A/F in 2011 and have not seen a cardiologist since. I paid for a private consultation with an EP who was keen for an ablation - I was not at that time - and I haven’t
123Elizabeth
in
AF Association
2 years ago
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ORION -4
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Sizzlerman
in
British Heart Foundation
1 year ago
Interesting
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
wateron
in
MPN Voice
1 year ago
Better measures of disease severity needed in lupus, study says
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Are there any clinical trials currently using mRNA technologies to fight PC?
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Rocketman1960
in
Advanced Prostate Cancer
1 year ago
What do you wish people knew about pancreatitis? | Rare Disease Day
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
helvella
Thyroid UK
in
Thyroid UK
1 year ago
FILSPARI (sparsentan)
Hi All - Sorry if this has already been posted, but below is a copy and paste of an email I received from NephCure. Dear NephCure friends, Today marks an incredibly promising day for the rare kidney disease (RKD) community: the FDA has announced that the drug FILSPARI (sparsentan) has been granted
Hi All - Sorry if this has already been posted, but below is a copy and paste of an email I received from NephCure. Dear NephCure friends, Today marks an incredibly promising day for the rare kidney disease (RKD) community: the FDA has announced that the drug FILSPARI (sparsentan) has been granted
Boulder98
in
Kidney Disease
1 year ago
Beat Prostate Cancer
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
Todd1963
in
Advanced Prostate Cancer
1 year ago
📚 Research 101: Placebos
A placebo is a sugar pill that does not cause harm or good. In many trials testing an investigational medication, a proportion of the people recruited will receive a placebo without knowing if they are receiving the investigational medication or the placebo. [u]
When you may not get a placebo
[
A placebo is a sugar pill that does not cause harm or good. In many trials testing an investigational medication, a proportion of the people recruited will receive a placebo without knowing if they are receiving the investigational medication or the placebo. [u]
When you may not get a placebo
[
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
Goat Weed - Neuroprotective
Neuroprotective
Epimedium has been shown to improve cognition and memory and to boost energy.
The anti-inflammatory and antioxidant effects of icariin in the brain reduce various conditions associated with neurodegeneration. This activity, combined with its ability to improve neuronal energy
Neuroprotective
Epimedium has been shown to improve cognition and memory and to boost energy.
The anti-inflammatory and antioxidant effects of icariin in the brain reduce various conditions associated with neurodegeneration. This activity, combined with its ability to improve neuronal energy
Gcf51
in
Cure Parkinson's
1 year ago
Update
I diagnosed with Flutter end of June 22 after a couple of trips to A&E. prescribed Edoxaban 30mg with Bisosporol 2.5 daily reduced to 1.25 mg daily as I already have low BP. Episodes of possible Flutter are happening at least once a week. I do have etopics apparently and one ECG showed narrow tachycardia
I diagnosed with Flutter end of June 22 after a couple of trips to A&E. prescribed Edoxaban 30mg with Bisosporol 2.5 daily reduced to 1.25 mg daily as I already have low BP. Episodes of possible Flutter are happening at least once a week. I do have etopics apparently and one ECG showed narrow tachycardia
fairyfeathers
in
Heart Rhythm Disorders Support
2 years ago
nefopam and acute angle closure glaucoma
Hello, I am a health care worker and I have just been diagnosed with arthritis in my hips. My gp has just prescribed nefopam and since starting them I have not been able to sleep. I have acute glaucoma and I am worried that taking this medication might damage my eyesight further. Has anyone else had
Hello, I am a health care worker and I have just been diagnosed with arthritis in my hips. My gp has just prescribed nefopam and since starting them I have not been able to sleep. I have acute glaucoma and I am worried that taking this medication might damage my eyesight further. Has anyone else had
Sickofpain140
in
British Liver Trust
2 years ago
If you live in the US - Arrhythmia Alliance need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
If you live in the US - AF Association need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
Partner
in
AF Association
2 years ago
Upcoming Events of Interest
[i]Just received an announcement from our friends at MPN Advocacy & Education International of some interesting upcoming events. [/i] [u]
Webinars
[/u] A Conversation with an MPN Specialist: Everything You Should Know About Clinical Trials Tuesday, February 28, 2023 1:30 - 3:00 pm EST
[i]Just received an announcement from our friends at MPN Advocacy & Education International of some interesting upcoming events. [/i] [u]
Webinars
[/u] A Conversation with an MPN Specialist: Everything You Should Know About Clinical Trials Tuesday, February 28, 2023 1:30 - 3:00 pm EST
hunter5582
in
MPN Voice
1 year ago
IRL1117, Potential Improvement on Levodopa, May Enter Clinical Trial
IRLAB Therapeutics has selected a dopamine receptor agonist candidate called IRL1117 to advance as a Parkinson’s disease treatment, potentially as a longer-lasting alternative to levodopa with lesser side effects. IRL1117 is designed to be a once-daily oral therapy for the hallmark symptoms of Parkinson
IRLAB Therapeutics has selected a dopamine receptor agonist candidate called IRL1117 to advance as a Parkinson’s disease treatment, potentially as a longer-lasting alternative to levodopa with lesser side effects. IRL1117 is designed to be a once-daily oral therapy for the hallmark symptoms of Parkinson
Farooqji
in
Cure Parkinson's
1 year ago
Unusual AF episode
I went out to post a letter this afternoon and was out for about 15 minutes. On my return I experienced what I thought were ectopics with some very mild chest discomfort. I took a 1lead Kardia to check and was surprised to see the "Atrial Fibrillation" indication with a heart rate of 93bpm. The AF
I went out to post a letter this afternoon and was out for about 15 minutes. On my return I experienced what I thought were ectopics with some very mild chest discomfort. I took a 1lead Kardia to check and was surprised to see the "Atrial Fibrillation" indication with a heart rate of 93bpm. The AF
Samazeuilh2
in
Atrial Fibrillation Support
2 years ago
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