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Permanent atrial fibrillation
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Confused (like a lot of us!)
After an Afib episode when I ended up calling an ambulance, the cardio put me on Flecainide 2x50mg daily, without actually seeing me. It has worked (touch wood) and I no longer have Afib episodes. A friend who also discovered he had Afib was immediately sent for an ablation. My question is what makes
After an Afib episode when I ended up calling an ambulance, the cardio put me on Flecainide 2x50mg daily, without actually seeing me. It has worked (touch wood) and I no longer have Afib episodes. A friend who also discovered he had Afib was immediately sent for an ablation. My question is what makes
Montsauton
in
AF Association
1 year ago
Try the Clinical Trial Navigator on ChatGPT
It will be super helpful if you test out the Clinical Trial Navigator on ChatGPT Please search for trials that interest you, and let me know how useful the results were. You'll need the $20/month version of ChatGPT to use this. https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
It will be super helpful if you test out the Clinical Trial Navigator on ChatGPT Please search for trials that interest you, and let me know how useful the results were. You'll need the $20/month version of ChatGPT to use this. https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Exciting Announcement!
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Caregivers
6 months ago
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Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer And Gay Men
6 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Erectile Dysfunction Support
6 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Network
6 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Active Surveillance - Prostate Cancer
6 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Wondering if I should get a Partial Thyroidectomy?
I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to 14 x 9 x 7 mm over the last 6 months. My endocrinologist and ENT believe it’s cancer. No impact on my lymph nodes. My surgery is in a few days and I’m just nervous I’m removing a part of my body that could be fine. Any
I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to 14 x 9 x 7 mm over the last 6 months. My endocrinologist and ENT believe it’s cancer. No impact on my lymph nodes. My surgery is in a few days and I’m just nervous I’m removing a part of my body that could be fine. Any
happycamper143
in
Thyroid Cancer Support
6 months ago
Atrial Flutter?
I had a very similar experience. About four weeks after my RF ablation my heart rate jumped from a very steady 60 to a very steady 135. ( I have an I CD that maintains my heart rate at 60) my EP called, said I was in atrial flutter, and did a cardioversion the next day to shock me back into a normal
I had a very similar experience. About four weeks after my RF ablation my heart rate jumped from a very steady 60 to a very steady 135. ( I have an I CD that maintains my heart rate at 60) my EP called, said I was in atrial flutter, and did a cardioversion the next day to shock me back into a normal
AblatedCyclist
in
AF Association
1 year ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Stemregen in clinical trial
There is a clinical trial in Spain researching the efficace of Stemregen natural caps in PD. https://clinicaltrials.gov/study/NCT05699694 Has anyone tried Stemregen caps? https://www.stemregen.co/
There is a clinical trial in Spain researching the efficace of Stemregen natural caps in PD. https://clinicaltrials.gov/study/NCT05699694 Has anyone tried Stemregen caps? https://www.stemregen.co/
michelagvolpe
in
Cure Parkinson's
6 months ago
where I’m at and what docs suggest
hello all I have occasional episodes of AFib up to 5 days a couple of times a year but have been having more shorter episodes for a few seconds or minutes at times, very occasionally at night when sleeping on my stomach. So a change. I take apixaban. My life is normal other than tiredness probably
hello all I have occasional episodes of AFib up to 5 days a couple of times a year but have been having more shorter episodes for a few seconds or minutes at times, very occasionally at night when sleeping on my stomach. So a change. I take apixaban. My life is normal other than tiredness probably
FiveMilesSouth
in
Atrial Fibrillation Support
1 year ago
PC no longer castrate resistant
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
brokenyoyo
in
Advanced Prostate Cancer
6 months ago
Expediting phase 3 trials: using rPFS and cPFS as surrogates
"We investigated whether radiographic progression-free survival (rPFS) and clinical PFS (cPFS) are valid surrogates for OS in men with mHSPC and could potentially be used to expedite future phase III clinical trials."...and it seems that they can be used as surrogate! https://ascopubs.org/doi/full/10.1200
"We investigated whether radiographic progression-free survival (rPFS) and clinical PFS (cPFS) are valid surrogates for OS in men with mHSPC and could potentially be used to expedite future phase III clinical trials."...and it seems that they can be used as surrogate! https://ascopubs.org/doi/full/10.1200
Maxone73
in
Advanced Prostate Cancer
6 months ago
WHOOPS
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
DawnTX
in
AF Association
1 year ago
Tanta Anna Updatw
I’m hoping you remember my past posts I’ve been on a series of meditation trials - is what I’ll call them After my four ablations last one from the highly recognized Dr Natalie., I’m having thus strange spikes from being in NSR and HR in the 70’s. to 120 and back continuing on and with the
I’m hoping you remember my past posts I’ve been on a series of meditation trials - is what I’ll call them After my four ablations last one from the highly recognized Dr Natalie., I’m having thus strange spikes from being in NSR and HR in the 70’s. to 120 and back continuing on and with the
Tantaanna
in
AF Association
1 year ago
blood transfusions
My husband has high risk MF and takes RUX/jackifi which he started last March since his disease has progressed and HU did not work for him any longer. He has had to rely on monthly blood transfusions since last June which normally last him around a month before he needs another transfusion since
My husband has high risk MF and takes RUX/jackifi which he started last March since his disease has progressed and HU did not work for him any longer. He has had to rely on monthly blood transfusions since last June which normally last him around a month before he needs another transfusion since
Bainbridge
in
MPN Voice
6 months ago
about aspirin
in absence of a good amount of clinical trials, we rely on the source reputation https://www.nature.com/articles/s41416-023-02506-5
in absence of a good amount of clinical trials, we rely on the source reputation https://www.nature.com/articles/s41416-023-02506-5
Maxone73
in
Fight Prostate Cancer
6 months ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
TimothyHLuff
in
MPN Voice
7 months ago
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