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Dialysis Port
Any advice for receiving a dialysis port? Regarding care and dialysis?
Any advice for receiving a dialysis port? Regarding care and dialysis?
AlexysB
in
Kidney Dialysis
7 years ago
My latest life happenings.
I am having difficult times. My sweet husband passed away September 20.He had struggled with COPD for the past 6 months. So now I have to face dialysis on my own. With God's help, I know I can. I need your prayers and good thoughts. I am totally stressed out and soooo tired.
I am having difficult times. My sweet husband passed away September 20.He had struggled with COPD for the past 6 months. So now I have to face dialysis on my own. With God's help, I know I can. I need your prayers and good thoughts. I am totally stressed out and soooo tired.
judystuddard
in
Kidney Dialysis
7 years ago
Declining GFR
Just got my 3 month bloodwork and my GFR dropped from 14 to 11. My doctor is waiting for me to tell him it's time to start dialysis. I work full time and I am wondering what the recovery time is when you have the peritoneal port put in? I have my bad days, but so far, I am hanging on.
Just got my 3 month bloodwork and my GFR dropped from 14 to 11. My doctor is waiting for me to tell him it's time to start dialysis. I work full time and I am wondering what the recovery time is when you have the peritoneal port put in? I have my bad days, but so far, I am hanging on.
Cettaroo
in
Kidney Disease
7 years ago
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"The goal, whenever possible, is to avoid dialysis completely. ...
... "When this is not possible, the goal is to shorten the time on dialysis. As a transplant candidate, it is not in your best interest to not make getting your transplant a priority. The longer you wait, the greater the risk of losing a transplant eligibility." I've been researching ways to make kidney
... "When this is not possible, the goal is to shorten the time on dialysis. As a transplant candidate, it is not in your best interest to not make getting your transplant a priority. The longer you wait, the greater the risk of losing a transplant eligibility." I've been researching ways to make kidney
Zay-KidneyDonorGuru
in
Kidney Dialysis
7 years ago
AOSD - Read what it did to my wife
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
AOSD
in
NRAS
7 years ago
Life Is horrible
Hi ๐๐ฝ I'm Sal and I just started dialysis ๐ I'm finding it kinda hard, somedays it's ok and others it's not.. if you have any advice on dialysis please share with me thank you
Hi ๐๐ฝ I'm Sal and I just started dialysis ๐ I'm finding it kinda hard, somedays it's ok and others it's not.. if you have any advice on dialysis please share with me thank you
Sal6395
in
Kidney Dialysis
7 years ago
Kidneys kidneys kidneys kidneys
I was diagnosed when I was 2. Started dialysis when I was 12 had my first kidney transplant at 13. I have had a total of 4 kidney transplants and have been on dialysis before and after all my kidney transplants. 2 cadavers and 2 family members. My life and my health is complicated. But I feel blessed
I was diagnosed when I was 2. Started dialysis when I was 12 had my first kidney transplant at 13. I have had a total of 4 kidney transplants and have been on dialysis before and after all my kidney transplants. 2 cadavers and 2 family members. My life and my health is complicated. But I feel blessed
yayaca
in
Kidney Donation
7 years ago
Scared of my dialysis center
I am beside myself. Been doing dialysis for almost two years. I do real good with it. But where i go is horrid. The techs are brutal mean. I have bruises in my legs where they rammed me with chairs and I have been bruised for months. I reported it to higher ips and was just ignored Ive been left fifty
I am beside myself. Been doing dialysis for almost two years. I do real good with it. But where i go is horrid. The techs are brutal mean. I have bruises in my legs where they rammed me with chairs and I have been bruised for months. I reported it to higher ips and was just ignored Ive been left fifty
Hidden
in
Kidney Dialysis
7 years ago
Dad has stage 5 CKD
My Dad has chronic nephritis and now he is down to only 14% function which puts him at stage 5 :( The Dr is not suggesting dialysis, my dad is 86 and has not really asked why it's not being offered. I am looking at diet etc and any supplements that might help him but everything I read online seems to
My Dad has chronic nephritis and now he is down to only 14% function which puts him at stage 5 :( The Dr is not suggesting dialysis, my dad is 86 and has not really asked why it's not being offered. I am looking at diet etc and any supplements that might help him but everything I read online seems to
HeatherBatch
in
Early CKD Support
7 years ago
Praying for a miracle
Hello everyone my name is Crystal. My 15 year old son has had kidney disease since he was 2 years old. He started with nephrotic syndrome that later developed into end stage renal disease. He was put on dialysis in 2009 but he was not in total renal failure. It has been a complicated journey where we
Hello everyone my name is Crystal. My 15 year old son has had kidney disease since he was 2 years old. He started with nephrotic syndrome that later developed into end stage renal disease. He was put on dialysis in 2009 but he was not in total renal failure. It has been a complicated journey where we
crystaleffexx
in
Kidney Disease
7 years ago
Financial help
Hi I was wondering if anyone had any suggestions. I work 3 days a week and my partner works full time due to this our joint income is above theach rate to qualify for any means tested benefit. We have a house with a mortgage and we live within our means However as I now work part time due to dialysis
Hi I was wondering if anyone had any suggestions. I work 3 days a week and my partner works full time due to this our joint income is above theach rate to qualify for any means tested benefit. We have a house with a mortgage and we live within our means However as I now work part time due to dialysis
fashiongee
in
Dialysis Support
7 years ago
Confused about fluid restriction
Hi all hope you are all doing well My gfr is 7% and not on dialysis but have my fistula ready for action. For the last 15months I've been on fluid restriction of 1000mls and 160mg of diuretic. All was going well until the last 10 weeks and all I seem to do is gain fluid. Saw my consultant Wednesday and
Hi all hope you are all doing well My gfr is 7% and not on dialysis but have my fistula ready for action. For the last 15months I've been on fluid restriction of 1000mls and 160mg of diuretic. All was going well until the last 10 weeks and all I seem to do is gain fluid. Saw my consultant Wednesday and
Charlene_Coxhead
in
Dialysis Support
7 years ago
No hope and we don't understand why
Well, fully armed with all the information about lung cancer protocols etc, we returned to see the Oncologist this week. We had such a bizarre conversation that I really feel we are in a catch 22 situation . We were told that my husbands stage 4 adenocarcinoma was not going to be treated as he is negative
Well, fully armed with all the information about lung cancer protocols etc, we returned to see the Oncologist this week. We had such a bizarre conversation that I really feel we are in a catch 22 situation . We were told that my husbands stage 4 adenocarcinoma was not going to be treated as he is negative
alice111
in
The Roy Castle Lung Cancer Foundation
7 years ago
Has anyone had Removal of 1 kidney. Being Prepped for dialysis
My mum has just been told that she needs to have one kidney taken out and is soon to be prepped for dialysis which will be 3x a week. They want to operate before Christmas. She is scared and I'm going out of my mind. She has been told that the surgery has many complications. She is on the transplant
My mum has just been told that she needs to have one kidney taken out and is soon to be prepped for dialysis which will be 3x a week. They want to operate before Christmas. She is scared and I'm going out of my mind. She has been told that the surgery has many complications. She is on the transplant
YasmeenK
in
PKD Charity for Autosomal Dominant PKD
7 years ago
Yes, there is such a thing as a "living donor".
There are so many questions to be asked and answered regarding kidney disease, dialysis & donating. Check out the link below for some info on increasing living donors! https://transplantfirst.org/increasing-living-kidney-donor-transplants/
There are so many questions to be asked and answered regarding kidney disease, dialysis & donating. Check out the link below for some info on increasing living donors! https://transplantfirst.org/increasing-living-kidney-donor-transplants/
Zay-KidneyDonorGuru
in
Kidney Disease
7 years ago
Decisions
My phone has not stopped ringing today... has anyone ever heard of starting dialysis while in stage 3 or 4 instead of waiting due to other health complications.... everything I have read says not til stage 5????
My phone has not stopped ringing today... has anyone ever heard of starting dialysis while in stage 3 or 4 instead of waiting due to other health complications.... everything I have read says not til stage 5????
Rmchan3
in
Kidney Disease
7 years ago
New to Unlocked
Listing for transplant and surgeon wants to remove both kidneys before hand to reduce infection risks. Anyone ever been in this situation? Could be some time before I get a match. Still have a little function, but I am on dialysis. Not sure about this.
Listing for transplant and surgeon wants to remove both kidneys before hand to reduce infection risks. Anyone ever been in this situation? Could be some time before I get a match. Still have a little function, but I am on dialysis. Not sure about this.
Kokoczka
in
Early CKD Support
7 years ago
In Search of A Living Donor
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
teamtank
in
Kidney Dialysis
7 years ago
In Search of A Living Donor
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
teamtank
in
Kidney Dialysis
7 years ago
In Search of A Living Donor
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
teamtank
in
Kidney Dialysis
7 years ago
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