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Require a Lupus Specialist
Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for the best specialist in UK. Any idea whom I could approach? Thnk. U
Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for the best specialist in UK. Any idea whom I could approach? Thnk. U
Hurtingpains
in
LUPUS UK
11 days ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
5 months ago
Southampton Lupus Centre of Excellence
Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?
Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?
IsleofWight1
in
LUPUS UK
11 days ago
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Can B12 injections help with tinnitus symptoms?
Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully treated with NDT medication. I have also recently been diagnosed with b12 deficiency and have started b12 injections every other day for 3 weeks
Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully treated with NDT medication. I have also recently been diagnosed with b12 deficiency and have started b12 injections every other day for 3 weeks
MissMonty
in
Pernicious Anaemia Society
11 days ago
T4 High TSH Normal
I feel so unwell and fatigued. I was on 120 Levothyroxine and was reduced to 100 my Dr said my T4 was high but my TSH was normal. I can't sleep at night but tired all the time. My face is puffy and my stomach distended I have had an underactive thyroid for 28 years and was told my thyroid was the size
I feel so unwell and fatigued. I was on 120 Levothyroxine and was reduced to 100 my Dr said my T4 was high but my TSH was normal. I can't sleep at night but tired all the time. My face is puffy and my stomach distended I have had an underactive thyroid for 28 years and was told my thyroid was the size
Culnacille
in
Thyroid UK
12 days ago
What is an Autoimmune disease?
What is an Autoimmune disease? Answered by Samantha Lebsock Pharm D https://youtu.be/eWsU7CiY5a4 For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list
What is an Autoimmune disease? Answered by Samantha Lebsock Pharm D https://youtu.be/eWsU7CiY5a4 For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list
Shewulf
Administrator
in
LDN Research Trust
12 days ago
Shingles or lupus rash ?
Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?
Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?
Ava0
in
LUPUS UK
13 days ago
I feel like crying ...
Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom. I had lots of symptoms including neurological symptoms such as heart palpitations, pins and needles, visual disturbances, facial neuralgia, extreme
Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom. I had lots of symptoms including neurological symptoms such as heart palpitations, pins and needles, visual disturbances, facial neuralgia, extreme
Wwwdot
in
Pernicious Anaemia Society
14 days ago
Query of whether I have Pernicious Anaemia
I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year
I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year
Jacklover
in
Pernicious Anaemia Society
15 days ago
13. The Grain of Truth [Coeliac disease]
[i]
13. The Grain of Truth
[/i] [i]Uncharted with Hannah Fry[/i] [i]Amid the desperation of war-starved Netherlands a doctor finds a way of curing a group of gravely ill children. His finding challenges accepted medical wisdom, and provokes opposition from Catholics. But why had the rest of
[i]
13. The Grain of Truth
[/i] [i]Uncharted with Hannah Fry[/i] [i]Amid the desperation of war-starved Netherlands a doctor finds a way of curing a group of gravely ill children. His finding challenges accepted medical wisdom, and provokes opposition from Catholics. But why had the rest of
helvella
Thyroid UK
in
Thyroid UK
15 days ago
No diagnosis
Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?
Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?
Pastalasta
in
LUPUS UK
16 days ago
Inherited APS ?
Hi everyone, I hope you are having the best day you can! I have APS, being Lupus Anticoagulant Positive. As some of you will remember, the day we moved back home on the 3/6/23 (after the post-fire refurb) my husband had a stroke. Luckily not a serious stroke. He was hospitalised and off work a while
Hi everyone, I hope you are having the best day you can! I have APS, being Lupus Anticoagulant Positive. As some of you will remember, the day we moved back home on the 3/6/23 (after the post-fire refurb) my husband had a stroke. Luckily not a serious stroke. He was hospitalised and off work a while
WendyWoo50
in
Hughes Syndrome APS Forum
16 days ago
Help with test results
Thyroid function test Serum TSH level < 0.01 mu/L [0.3 - 5.0]; Below low reference limit Serum free T4 level 50.4 pmol/L [7.9 - 16.0]; Above high reference limit Thyroid function test Serum free triiodothyronine level 13.1 pmol/L |3.8 - 6.0]; Above high reference limit ANTI THYROID PEROXIDASE 65
Thyroid function test Serum TSH level < 0.01 mu/L [0.3 - 5.0]; Below low reference limit Serum free T4 level 50.4 pmol/L [7.9 - 16.0]; Above high reference limit Thyroid function test Serum free triiodothyronine level 13.1 pmol/L |3.8 - 6.0]; Above high reference limit ANTI THYROID PEROXIDASE 65
Capture1
in
Thyroid UK
16 days ago
Underactive thyroid???
I was diagnosed recently with underactive thyroid and prescribed Levothyroxine. I wasn’t happy about taking any medication without further investigation so requested a T3 blood test. My results were T4 = 10.9, TSH = 2.82, T3 = 3.1 From this I gather that the TSH and T3 are within the normal range
I was diagnosed recently with underactive thyroid and prescribed Levothyroxine. I wasn’t happy about taking any medication without further investigation so requested a T3 blood test. My results were T4 = 10.9, TSH = 2.82, T3 = 3.1 From this I gather that the TSH and T3 are within the normal range
Sperlonga7
in
Thyroid UK
17 days ago
fell kt/v test
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
Beachgirl32
in
Kidney Dialysis
6 months ago
FDA grants fast track designation to CAR T-cell therapy for SLE
FDA grants fast track designation to CAR T-cell therapy for SLE Caribou's CB-010 candidate designed for treatment-resistant lupus by Andrea Lobo, PhD The U.S. Food and Drug Administration (FDA) has granted fast track designation to Caribou Biosciences‘ CAR T-cell therapy CB-010 for systemic lupus
FDA grants fast track designation to CAR T-cell therapy for SLE Caribou's CB-010 candidate designed for treatment-resistant lupus by Andrea Lobo, PhD The U.S. Food and Drug Administration (FDA) has granted fast track designation to Caribou Biosciences‘ CAR T-cell therapy CB-010 for systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
17 days ago
pmr, arthritis and fibromyalgia
would like to know if any one out there has been diagnosed with fibromyalgia, and can develop from all the other pain issues we experience ie, arthritis, pmr, degenerative disease, and taking prednisone long term, 8!years
would like to know if any one out there has been diagnosed with fibromyalgia, and can develop from all the other pain issues we experience ie, arthritis, pmr, degenerative disease, and taking prednisone long term, 8!years
arvine
in
Pain Concern
18 days ago
Support for men living with lupus
We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we will be inviting eight men living with lupus to join an online listening group to share and explore the physical and emotional impact of living
We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we will be inviting eight men living with lupus to join an online listening group to share and explore the physical and emotional impact of living
nakita_cambow
Moderator
in
LUPUS UK
19 days ago
?PMR onset Rheumatoid Arthritis
I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all
I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all
bronigel
in
PMRGCAuk
19 days ago
Anaemia anyone?
I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm
I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm
DogAgilityObsessed
in
PMRGCAuk
20 days ago
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