Experiences with

Pentosan

my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol …(hospital will no longer supply the Elmiron pentosan polysulphate).

., 2019) • Other treatments: One study suggested that methenamine hippurate may be more effective than other treatments, such as pentosan polysulfate sodium, for reducing symptoms and improving quality of life (Johnson et al., 2019) Limitations: While methenamine hippurate appears to be a moderately

Hi all,Newbie here. I started with symptoms of lower abdominal pain, food intolerances that seemed to appear overnight, bloating, nausea and diarrhea in Dec. Over the last 5 months I've had an endoscopy (normal) CT scan (normal) and a colonoscopy which presented normal on the visual check. Biopsies

Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form

Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can

I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then

Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH

Hi everyone I've recently been diagnosed with ulcerative colitis (sept) I have been taking mesalazine tablets since June and now I have seen a gastroenterologist (mid Nov) he has added new medication which is a pentasa enama and a prednisolone enama which I am 3 weeks into I have been asked to do another

In short my daughter has IBD which is under control at the moment with Pentasa and Steroids. She is working and living abroad but is coming home for August. During the time since diagnosis (April) she has lost quite a lot of weight. I am aiming to get her some ‘build up ‘health drinks ….like Complan

My daughter has been taking Pentasa for a few weeks and it has been very effective. Last weekend she sat in the sun having coffee and the following day had an angry rash on her neck and forearms. (Unfortunately she lives in Cyprus )Her chemist has given her something like Piriton so she will wait and

Hello, everyone. I hope you are all well. I'm sorry about posting so regularly. I received the letter below this morning. The letter is from my cardiologist after a recent telephone appointment. This contains a little more detail about my recent Myocardial Perfusion Scan, 24-hour monitor, and

hello. I was diagnosed with proctitis in April 2022 and was prescribed Pentasa suppositories and it cleared up after a month. I haven’t had symptoms since, however I am now 7 weeks pregnant and since the positive pregnancy test I’ve had some mild symptoms. The IBD team have represcribed me Pentasa suppositories

My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved

Hi, I’m new to this group but am an undetermined IBD sufferer of 26 years. My last colonoscopy in May suggested a 60/40 chance that I have Crohn’s disease over Ulcerative Colitis. For the last 15 years I have managed my symptoms well with Pentasa. Prior to this I was on Azathoprine but had to stop

Morning Wondered if anyone else has had issues with immune system since being diagnosed with an Mpn and being treated with peg interferon I started on 45mcg of peg in Jan 2021 thus was increased to 90mcg in May 2021 In June I had a positive Ena profile and was diagnosed with Sjogrens syndrome - not

9 days into taking Pentasa (alongside budesonide 3mg) in an attempt to stop taking budesonide and I experienced side effects of the pentasa. Feeling sick, no appetite, bloating, burping, chills/hot sweats and the worst diarrhoea. I’ve decided to stop taking it and continue with the 3mg budesonide for

Hi not been on here for a while, I was in hospital at the beginning of December for a week losing blood and going to the loo a lot , put me on prednisone steroids tapering down over eight weeks. I was on Pentasa granules 2g morning and night. I ask to go back on to octasa which I have had before and

Been taking Pentasa since August and have had resurgance of my Thyroid problems. Gastroman says no link! Any other Hashi sufferers had difficulties?

Does anyone on here suffer with diverticula disease and ulcerative colitis. Pretty sure the uc is under control with pentasa granules but the last couple of days I’ve woken up with bloody type mucus. I’m not flaring but because this is a symptom of both diseases how can you define which one. Lynda

Hi all, on Friday evening, after putting myself through extreme shock and distress, I found out something I’d just like to share so nobody who doesn’t know, like myself at the time, experiences the distress caused. I’m currently taking pentasa (mesalazine) and I found out this reacts to certain bleaches