Search
Search
About
Log in
Join
Experiences with
Pentosan
Posts
Communities
75 public posts
Filter results
15-Year-Old daughter level 3700+
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Eric_Cartman
in
Crohn's and Colitis Support
22 days ago
Bad urgency with little result
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
AGB111
in
IBS Network
2 months ago
colitis
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
Bluegirl1948
in
Crohn's and Colitis Support
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Thyroid - updated bloods - advice
Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH
Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH
MPG15
in
Thyroid UK
4 months ago
Calprotectin level
Hi everyone I've recently been diagnosed with ulcerative colitis (sept) I have been taking mesalazine tablets since June and now I have seen a gastroenterologist (mid Nov) he has added new medication which is a pentasa enama and a prednisolone enama which I am 3 weeks into I have been asked to do another
Hi everyone I've recently been diagnosed with ulcerative colitis (sept) I have been taking mesalazine tablets since June and now I have seen a gastroenterologist (mid Nov) he has added new medication which is a pentasa enama and a prednisolone enama which I am 3 weeks into I have been asked to do another
GRIMMEY1
in
Crohn's and Colitis Support
5 months ago
Supplement drinks
In short my daughter has IBD which is under control at the moment with Pentasa and Steroids. She is working and living abroad but is coming home for August. During the time since diagnosis (April) she has lost quite a lot of weight. I am aiming to get her some ‘build up ‘health drinks ….like Complan
In short my daughter has IBD which is under control at the moment with Pentasa and Steroids. She is working and living abroad but is coming home for August. During the time since diagnosis (April) she has lost quite a lot of weight. I am aiming to get her some ‘build up ‘health drinks ….like Complan
bones-bones
in
Crohn's and Colitis Support
10 months ago
Pentasa sun rash
My daughter has been taking Pentasa for a few weeks and it has been very effective. Last weekend she sat in the sun having coffee and the following day had an angry rash on her neck and forearms. (Unfortunately she lives in Cyprus )Her chemist has given her something like Piriton so she will wait and
My daughter has been taking Pentasa for a few weeks and it has been very effective. Last weekend she sat in the sun having coffee and the following day had an angry rash on her neck and forearms. (Unfortunately she lives in Cyprus )Her chemist has given her something like Piriton so she will wait and
bones-bones
in
Crohn's and Colitis Support
1 year ago
Letter from Cardiologist- Advice please
Hello, everyone. I hope you are all well. I'm sorry about posting so regularly. I received the letter below this morning. The letter is from my cardiologist after a recent telephone appointment. This contains a little more detail about my recent Myocardial Perfusion Scan, 24-hour monitor, and
Hello, everyone. I hope you are all well. I'm sorry about posting so regularly. I received the letter below this morning. The letter is from my cardiologist after a recent telephone appointment. This contains a little more detail about my recent Myocardial Perfusion Scan, 24-hour monitor, and
IamAli_R
in
British Heart Foundation
1 year ago
pregnancy and Pentasa
hello. I was diagnosed with proctitis in April 2022 and was prescribed Pentasa suppositories and it cleared up after a month. I haven’t had symptoms since, however I am now 7 weeks pregnant and since the positive pregnancy test I’ve had some mild symptoms. The IBD team have represcribed me Pentasa suppositories
hello. I was diagnosed with proctitis in April 2022 and was prescribed Pentasa suppositories and it cleared up after a month. I haven’t had symptoms since, however I am now 7 weeks pregnant and since the positive pregnancy test I’ve had some mild symptoms. The IBD team have represcribed me Pentasa suppositories
OMIVF
in
Crohn's and Colitis Support
1 year ago
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Crohns, UC, Ustekinumab, Proctitis, Operation
Hi, I’m new to this group but am an undetermined IBD sufferer of 26 years. My last colonoscopy in May suggested a 60/40 chance that I have Crohn’s disease over Ulcerative Colitis. For the last 15 years I have managed my symptoms well with Pentasa. Prior to this I was on Azathoprine but had to stop
Hi, I’m new to this group but am an undetermined IBD sufferer of 26 years. My last colonoscopy in May suggested a 60/40 chance that I have Crohn’s disease over Ulcerative Colitis. For the last 15 years I have managed my symptoms well with Pentasa. Prior to this I was on Azathoprine but had to stop
Wfdstar
in
Crohn's and Colitis Support
2 years ago
Can Pv and peg interferon cause issues with your immune system
Morning Wondered if anyone else has had issues with immune system since being diagnosed with an Mpn and being treated with peg interferon I started on 45mcg of peg in Jan 2021 thus was increased to 90mcg in May 2021 In June I had a positive Ena profile and was diagnosed with Sjogrens syndrome - not
Morning Wondered if anyone else has had issues with immune system since being diagnosed with an Mpn and being treated with peg interferon I started on 45mcg of peg in Jan 2021 thus was increased to 90mcg in May 2021 In June I had a positive Ena profile and was diagnosed with Sjogrens syndrome - not
Dottiedot
in
MPN Voice
2 years ago
Disappointed/stressed
9 days into taking Pentasa (alongside budesonide 3mg) in an attempt to stop taking budesonide and I experienced side effects of the pentasa. Feeling sick, no appetite, bloating, burping, chills/hot sweats and the worst diarrhoea. I’ve decided to stop taking it and continue with the 3mg budesonide for
9 days into taking Pentasa (alongside budesonide 3mg) in an attempt to stop taking budesonide and I experienced side effects of the pentasa. Feeling sick, no appetite, bloating, burping, chills/hot sweats and the worst diarrhoea. I’ve decided to stop taking it and continue with the 3mg budesonide for
S-ved
in
Crohn's and Colitis Support
2 years ago
Octasa 800mg
Hi not been on here for a while, I was in hospital at the beginning of December for a week losing blood and going to the loo a lot , put me on prednisone steroids tapering down over eight weeks. I was on Pentasa granules 2g morning and night. I ask to go back on to octasa which I have had before and
Hi not been on here for a while, I was in hospital at the beginning of December for a week losing blood and going to the loo a lot , put me on prednisone steroids tapering down over eight weeks. I was on Pentasa granules 2g morning and night. I ask to go back on to octasa which I have had before and
Bluegirl1948
in
Crohn's and Colitis Support
2 years ago
Pentasa and Hashi
Been taking Pentasa since August and have had resurgance of my Thyroid problems. Gastroman says no link! Any other Hashi sufferers had difficulties?
Been taking Pentasa since August and have had resurgance of my Thyroid problems. Gastroman says no link! Any other Hashi sufferers had difficulties?
praxis
in
Thyroid UK
2 years ago
Diverticula disease
Does anyone on here suffer with diverticula disease and ulcerative colitis. Pretty sure the uc is under control with pentasa granules but the last couple of days I’ve woken up with bloody type mucus. I’m not flaring but because this is a symptom of both diseases how can you define which one. Lynda
Does anyone on here suffer with diverticula disease and ulcerative colitis. Pretty sure the uc is under control with pentasa granules but the last couple of days I’ve woken up with bloody type mucus. I’m not flaring but because this is a symptom of both diseases how can you define which one. Lynda
Bluegirl1948
in
Crohn's and Colitis Support
2 years ago
A little heads up
Hi all, on Friday evening, after putting myself through extreme shock and distress, I found out something I’d just like to share so nobody who doesn’t know, like myself at the time, experiences the distress caused. I’m currently taking pentasa (mesalazine) and I found out this reacts to certain bleaches
Hi all, on Friday evening, after putting myself through extreme shock and distress, I found out something I’d just like to share so nobody who doesn’t know, like myself at the time, experiences the distress caused. I’m currently taking pentasa (mesalazine) and I found out this reacts to certain bleaches
Romany8
in
Crohn's and Colitis Support
3 years ago
UC MEDICATION, what has worked best for you?
Hi Guys, I'm just wondering what peoples experiences are with various types of medication? Such as Salofalk vs Pentasa? Granules vs Tablets? Suppositories vs Foam Enema? Any information on what has worked best for you medication wise or diet wise would be great to hear, finding the magic formula is
Hi Guys, I'm just wondering what peoples experiences are with various types of medication? Such as Salofalk vs Pentasa? Granules vs Tablets? Suppositories vs Foam Enema? Any information on what has worked best for you medication wise or diet wise would be great to hear, finding the magic formula is
O1990
in
Crohn's and Colitis Support
3 years ago
Pentasa
Hi not been on here in a while but would like to ask is anyone one Pantasa 500g I take 4 in the morning and 4 at night only just the last to days but my visit to loo have up in the morning I was wondering how long does it take to get into your system.
Hi not been on here in a while but would like to ask is anyone one Pantasa 500g I take 4 in the morning and 4 at night only just the last to days but my visit to loo have up in the morning I was wondering how long does it take to get into your system.
Bluegirl1948
in
Crohn's and Colitis Support
3 years ago
Exercise and Gym with IBD
Hi All I have Crohn's and take biological treatment with Pentasa. I have been on a good run and have managed to stay off steroids for a good few months for the first time in a year and a half. Prior to my Crohns taking a bad turn in 2018 that forced me to go and get diagnosed I was fairly fit and tried
Hi All I have Crohn's and take biological treatment with Pentasa. I have been on a good run and have managed to stay off steroids for a good few months for the first time in a year and a half. Prior to my Crohns taking a bad turn in 2018 that forced me to go and get diagnosed I was fairly fit and tried
Dotmatr1x
in
Crohn's and Colitis Support
3 years ago
1
2
...
4
Next page
Filter results
Clear filters
Posted in
All communities
Crohn's and Colitis Support
55 results
IBS Network
3 results
Thyroid UK
3 results
View top 10 communities
Sort by
Most Relevant
Newest