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Pelvic nerve damage
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private health!
As with fellow PMR sufferers shoulder pain has been a common factor I started shoulder repair about 20 years ago with steroid injections and rotator cuff repairs. All of which gave temporary relief. In 2015 a surgeon put me forward for shoulder replacement but as pain was not the major factor I put
As with fellow PMR sufferers shoulder pain has been a common factor I started shoulder repair about 20 years ago with steroid injections and rotator cuff repairs. All of which gave temporary relief. In 2015 a surgeon put me forward for shoulder replacement but as pain was not the major factor I put
AnniesRyder5
in
PMRGCAuk
2 years ago
Making plans to go forward?
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
PurpleOverlord
in
Headway
1 year ago
Vagal Nerve Stimulation (tVNS) Research Summary
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
House2
in
Cure Parkinson's
1 year ago
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pmr and now shingles
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
Fiddlemum
in
PMRGCAuk
1 year ago
Shingles after GCA
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
pugrescue
in
PMRGCAuk
1 year ago
Runners brain
Anyone else find themselves composing a post to put on here while they're running? Something that seems hilarious/fascinating/insightful while you're thinking of it, but later on (like those brilliant ideas you have at 3am) turns out to be drivel? No? Just me then. Anyway, I did my 28 minutes tonight
Anyone else find themselves composing a post to put on here while they're running? Something that seems hilarious/fascinating/insightful while you're thinking of it, but later on (like those brilliant ideas you have at 3am) turns out to be drivel? No? Just me then. Anyway, I did my 28 minutes tonight
NettieNoo
Graduate
in
Couch to 5K
1 year ago
Suspect if my feelings are the symptoms of STIs.
I had unprotected sex with a stranger 10 tens ago. Now I feel burning sensation on my penis and anal after pooing and peeing. Is this feeling related to my sexual behaviors? Is it still too early to go and get tested of STD(I)?
I had unprotected sex with a stranger 10 tens ago. Now I feel burning sensation on my penis and anal after pooing and peeing. Is this feeling related to my sexual behaviors? Is it still too early to go and get tested of STD(I)?
Ivansoe
in
BASHH
1 year ago
mirabegnon
I have asked for advice on this forum before but my bladder problems are causing distress. Because I cannot take Solifenacin though it worked well as far as the constant need to pee. It caused me terrible constipation which even with laxitives was difficult. Now my urethra is sore and some pain.
I have asked for advice on this forum before but my bladder problems are causing distress. Because I cannot take Solifenacin though it worked well as far as the constant need to pee. It caused me terrible constipation which even with laxitives was difficult. Now my urethra is sore and some pain.
Alloagirl
in
Pelvic Pain Support Network
1 year ago
Off meds because of Shingles, but maybe answers to other concerns…..
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
Hollyhock123
in
NRAS
1 year ago
Tens machine
does anyone have any relief from pain with a tens machine. I’m in severe pain as soon as I stand or walk, my fractures from osteoporosis are old, or I thought the pain went when they healed?
does anyone have any relief from pain with a tens machine. I’m in severe pain as soon as I stand or walk, my fractures from osteoporosis are old, or I thought the pain went when they healed?
angie26
in
Bone Health and Osteoporosis UK
1 year ago
Curing RLS not just treating the symptoms
Thank you for the priceless pages of RLS tips and advice! I’ve been struggling to diagnose my 3 year old son’s sleep issues his entire life. A sleep study reveled his “kicking legs” last year which (we believe) set us on the right path. So far, adding
Gaba, 60 mg of iron (Atrium sleep clinic prescribed
Thank you for the priceless pages of RLS tips and advice! I’ve been struggling to diagnose my 3 year old son’s sleep issues his entire life. A sleep study reveled his “kicking legs” last year which (we believe) set us on the right path. So far, adding
Gaba, 60 mg of iron (Atrium sleep clinic prescribed
MamaBear44
in
Restless Legs Syndrome
1 year ago
Lyrica v Cymbalta
Hello everyone! I have been suffering with PN for about a year and have tried physical therapy and nerve blocks with little success. I have been hesitant about going on the meds suggested (Lyrica or Cymbalta) because of all of the side effects but think it may be time. Just wondering what other’s
Hello everyone! I have been suffering with PN for about a year and have tried physical therapy and nerve blocks with little success. I have been hesitant about going on the meds suggested (Lyrica or Cymbalta) because of all of the side effects but think it may be time. Just wondering what other’s
Mshrink
in
Pelvic Pain Support Network
2 years ago
pain pain and pain Am I alone
brave ladies It’s been very heart warming reading through all the messages and finding that I’m not alone on this My pain has got worse and I am more than 15 days a month on pain Can’t sleep as it starts suddenly Now my family is also fed up and tired of me My daughter suffers I just don’
brave ladies It’s been very heart warming reading through all the messages and finding that I’m not alone on this My pain has got worse and I am more than 15 days a month on pain Can’t sleep as it starts suddenly Now my family is also fed up and tired of me My daughter suffers I just don’
Lovedsibling
in
Endometriosis UK
1 year ago
Shingles vaccine
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
61Annie
in
LUPUS UK
1 year ago
Stopped Solifenacin
Because of constipation side effect which was very unpleasant. Decided to come off Solifenacin. With my GP agreeing. Two weeks in and the withdrawal symptoms have been awful. Worst of all the pressure of wanting to pee all the time is worse than when I first started them. My GP has said she will
Because of constipation side effect which was very unpleasant. Decided to come off Solifenacin. With my GP agreeing. Two weeks in and the withdrawal symptoms have been awful. Worst of all the pressure of wanting to pee all the time is worse than when I first started them. My GP has said she will
Alloagirl
in
Pelvic Pain Support Network
1 year ago
blood sugar levels
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
Marcia123
in
Cure Parkinson's
1 year ago
Symptom changes
I would be interested to see if any one has experienced symptom changes from when they first had/diagnosed with RLS . Initially, my RLS was the classic, constantly having to move my legs during the night while sleeping or resting. Even sitting in a chair, for long periods of time ( aeroplane,cinema)
I would be interested to see if any one has experienced symptom changes from when they first had/diagnosed with RLS . Initially, my RLS was the classic, constantly having to move my legs during the night while sleeping or resting. Even sitting in a chair, for long periods of time ( aeroplane,cinema)
Jemcd2
in
Restless Legs Syndrome
1 year ago
Tried Almost Everything/Feel like Running Out of Options/Long Post
Looking for input on next steps. I’ve had pain for app 6 years but the last 3 have been worse. I have been working with a gynecological specialist who is president of the International Pain Society and she has run out of tools for me. I’ve also seen two pain management doctors and pain psychologist.
Looking for input on next steps. I’ve had pain for app 6 years but the last 3 have been worse. I have been working with a gynecological specialist who is president of the International Pain Society and she has run out of tools for me. I’ve also seen two pain management doctors and pain psychologist.
SouthernSally
in
Pelvic Pain Support Network
2 years ago
Happy 2023, bravehearts! A question on vagus nerve involvement....
I know there's massive hype out there about the vagus nerve and the treatment of any number of ills through vagus stimulation and care. Nevertheless........Was wondering if anyone's had any success with one of those wearable devices for VNS and if, at this very early stage of AFib - diagnosed as Paroxysmal
I know there's massive hype out there about the vagus nerve and the treatment of any number of ills through vagus stimulation and care. Nevertheless........Was wondering if anyone's had any success with one of those wearable devices for VNS and if, at this very early stage of AFib - diagnosed as Paroxysmal
Rainfern
in
AF Association
2 years ago
Little laughter 😂
It’s Sunday we received an inch or so of snow ❄️ still chilly 🥶 but that’s normal for January. Did get dusting and vacuuming done yesterday but didn’t make it to store. PT left me tens unit that is used for arm and neck for weekend. I text her and got ok to use on ankle and instructions. It seemed to
It’s Sunday we received an inch or so of snow ❄️ still chilly 🥶 but that’s normal for January. Did get dusting and vacuuming done yesterday but didn’t make it to store. PT left me tens unit that is used for arm and neck for weekend. I text her and got ok to use on ankle and instructions. It seemed to
Kenu
in
My MSAA Community
1 year ago
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