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Pelizaeus–Merzbacher-like disease
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WHY WHY WHY
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Janith
in
Atrial Fibrillation Support
5 months ago
misdiagnosed cirrhosis?
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
juneblue
in
British Liver Trust
8 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
6 months ago
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Reintroducing gluten for coeliac test?
Hello everyone, After going gluten free in mid-November 2023 I have today had a blood test request come in which involves a coeliac test. I was tested for coeliac in 2017 too (negative) but didn't know I was being tested for it and had been eating strictly low carb for about 2 years at that point
Hello everyone, After going gluten free in mid-November 2023 I have today had a blood test request come in which involves a coeliac test. I was tested for coeliac in 2017 too (negative) but didn't know I was being tested for it and had been eating strictly low carb for about 2 years at that point
Myalikki
in
Thyroid UK
6 months ago
Teeth sensitivity at the dentist
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
Chocolate1956
in
LUPUS UK
6 months ago
🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus
Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking overactive TLR7 might be therapeutically effective. Their findings are expected to accelerate further development of TLR7 inhibitors for patients with
Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking overactive TLR7 might be therapeutically effective. Their findings are expected to accelerate further development of TLR7 inhibitors for patients with
Naladog
in
LUPUS UK
6 months ago
hashimotos and cortisol testing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Sammy333
in
Thyroid UK
8 months ago
Results
Hello I messaged on here recently about my symptoms and was recommended to take a private blood test, which I've done. So I'm surprised that they've all come back normal! I screenshot them but not all together. Think I need to now think it is actually not my thyroid, but rheumatoid after all!
Hello I messaged on here recently about my symptoms and was recommended to take a private blood test, which I've done. So I'm surprised that they've all come back normal! I screenshot them but not all together. Think I need to now think it is actually not my thyroid, but rheumatoid after all!
Flo2021
in
Thyroid UK
6 months ago
Hashimoto advice please
hello, I have had an underactive thyroid and been on Levothyroxine 75mg since 2015. Last November I had a private blood test done as I had been struggling with lots of ‘symptoms’ and wondered if my thyroid could be the cause and it showed I have Hashimoto’s disease which I understand is an autoimmune
hello, I have had an underactive thyroid and been on Levothyroxine 75mg since 2015. Last November I had a private blood test done as I had been struggling with lots of ‘symptoms’ and wondered if my thyroid could be the cause and it showed I have Hashimoto’s disease which I understand is an autoimmune
Philly2748
in
Thyroid UK
6 months ago
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
8 months ago
Wheat Diet may Exacerbate Multiple Sclerosis Severity
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Bolt_Upright
in
Cure Parkinson's
6 months ago
A 47 year old recent heart attack survivor
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
Drakeywilson
in
Cholesterol Support
5 months ago
Afib Medication
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Jedburgh
in
AF Association
5 months ago
PAS blog - Dr Chandy
Hi All, Just posting this in case not posted already. https://pernicious-anaemia-society.org/pernicious-anaemia/dr-joseph-chandy-kayyalackom-a-reflection/
Hi All, Just posting this in case not posted already. https://pernicious-anaemia-society.org/pernicious-anaemia/dr-joseph-chandy-kayyalackom-a-reflection/
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
What constitutes low heart rate?
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
DizzyD
in
Atrial Fibrillation Support
5 months ago
My uncertain heart
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
Sambaqui
in
AF Association
5 months ago
Whats high PSA? ( when you havent been diagnosed with prostate cancer)
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
Daddysgirl83
in
Advanced Prostate Cancer
8 months ago
Ablation
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
Karendeena
in
AF Association
5 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
8 months ago
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