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Pelizaeus–Merzbacher disease
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Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
3 months ago
Telephone Consultation
I have a telephone consultation with the Cardio team this Thursday, my first one. I have had a 24 hour heart monitor, an ECG and a chest x-ray all of which have come back as normal, yet the palpitations have become much worse in the last month that when I'm having one, I can barely speak and it feels
I have a telephone consultation with the Cardio team this Thursday, my first one. I have had a 24 hour heart monitor, an ECG and a chest x-ray all of which have come back as normal, yet the palpitations have become much worse in the last month that when I'm having one, I can barely speak and it feels
CavendishCool
in
LUPUS UK
1 month ago
Ablate and pace
I started with left sided atrial flutter which responded well to cardioversion and kept me symptom free for nearly two years. I have stage one heart block so when I started to get occasional further episodes I had a pacemaker fitted so my dose of Bisoprolol could be increased from 1.25mg to 5mg daily
I started with left sided atrial flutter which responded well to cardioversion and kept me symptom free for nearly two years. I have stage one heart block so when I started to get occasional further episodes I had a pacemaker fitted so my dose of Bisoprolol could be increased from 1.25mg to 5mg daily
Borderterriorist
in
Atrial Fibrillation Support
1 month ago
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feeling down
This morning, my blood pressure spiked to over 180/90 again, and so I went back to the hospital. This time, I had to go to the GP assessment unit. My blood pressure came down to 152/85, so they let me go home, with a prescription for Ramipril 2.5gm to take, if my blood pressure stays at 180 or above
This morning, my blood pressure spiked to over 180/90 again, and so I went back to the hospital. This time, I had to go to the GP assessment unit. My blood pressure came down to 152/85, so they let me go home, with a prescription for Ramipril 2.5gm to take, if my blood pressure stays at 180 or above
Sixtychick
in
Atrial Fibrillation Support
1 month ago
Lupus toothpaste reaction
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
LupusMigraineetc
in
LUPUS UK
3 months ago
SFGR MCDA Twins
Hi I am currently 21 weeks pregnant with mcda twin boys , I have selective fetal growth restriction , one twin is much smaller and getting little of the placenta , the other has abnormal blood flow through the ambilical cord which they said could turn to ttts. We have been told our best case scenario
Hi I am currently 21 weeks pregnant with mcda twin boys , I have selective fetal growth restriction , one twin is much smaller and getting little of the placenta , the other has abnormal blood flow through the ambilical cord which they said could turn to ttts. We have been told our best case scenario
Choccypie90
in
Pregnancy and Parenting Support
1 month ago
Is there a “recovery sheet” on what to do/not do after a cardioversion.
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
mear1957
in
Atrial Fibrillation Support
1 month ago
Newly diagnosed
Hello. I felt unwell for a long time. I've been diagnosed with underactive thyroid and started treatment. My symptoms have been severe and I've really struggled. I feel like every part of my body has been effected and yet from the outside no one can tell and it's hard for people to understand how bad
Hello. I felt unwell for a long time. I've been diagnosed with underactive thyroid and started treatment. My symptoms have been severe and I've really struggled. I feel like every part of my body has been effected and yet from the outside no one can tell and it's hard for people to understand how bad
Plumbobmummyreads
in
Thyroid UK
3 months ago
sun sensitivity
curious question- does Levothyroxine effect you in the sun?? I’ve never had any issues before being in the sun- and today I’ve been out maybe for an hour or so and my skin is so sore and itchy?? I know with having a underactive thyroid you get dry skin etc but this is bizzare?
curious question- does Levothyroxine effect you in the sun?? I’ve never had any issues before being in the sun- and today I’ve been out maybe for an hour or so and my skin is so sore and itchy?? I know with having a underactive thyroid you get dry skin etc but this is bizzare?
Lisalee123456
in
Thyroid UK
3 months ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
6 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
6 months ago
highest liver - don’t know why think it’s thyroid
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Chouchou1234
in
Thyroid UK
6 months ago
PSA rise
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
Howard53545
in
Advanced Prostate Cancer
6 months ago
Dam Lupus
I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒
I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒
Will1408
in
LUPUS UK
3 months ago
rheumatoid nodules
I was diagnosed with Adult Onset Stills disease aged 17 in 1979 which is autoimmune RA. I’m experiencing bilateral nodules (Dip) in the tip joint of both idex fingers. Numbness, stiffness, redness, soreness, stiffness and itchiness, really weird . Anyone else?
I was diagnosed with Adult Onset Stills disease aged 17 in 1979 which is autoimmune RA. I’m experiencing bilateral nodules (Dip) in the tip joint of both idex fingers. Numbness, stiffness, redness, soreness, stiffness and itchiness, really weird . Anyone else?
Stills
in
NRAS
3 months ago
Underactive thyroid and Peri menopause
Hi, I have started perimenopause and having symptons e.g heat palpatations (tests done but no other medical issues found) mood swings, aches and pains etc… and I am trying to find solutions to help. Have started taking viticulture supplements but it seems really confusing as to which ones are safe
Hi, I have started perimenopause and having symptons e.g heat palpatations (tests done but no other medical issues found) mood swings, aches and pains etc… and I am trying to find solutions to help. Have started taking viticulture supplements but it seems really confusing as to which ones are safe
Tracey8
in
Thyroid UK
3 months ago
PIP listing health conditions
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
hazelcats
in
NRAS
3 months ago
Gel nails and lupus/raynauds
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Shann07
in
LUPUS UK
3 months ago
Ramipril, diarrhoea and pred
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
Broseley
in
PMRGCAuk
1 month ago
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