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Experiences with
Pelizaeus–Merzbacher disease
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My PCa history
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
Maxi54
in
Advanced Prostate Cancer
5 months ago
Kidney gfr
So last time my mam was told her kidneys were at 6% and yesterday while we were at a&e she's been told her kidneys are at 30% is this normal my mam has been on dialysis for 10 months.
So last time my mam was told her kidneys were at 6% and yesterday while we were at a&e she's been told her kidneys are at 30% is this normal my mam has been on dialysis for 10 months.
Jk2023
in
Kidney Dialysis
5 months ago
AUA 2024: mCRPC: Key Updates in Radioligand Therapy, PSMA Sensitive Disease
(UroToday.com) The 2024 American Urological Association (AUA) Annual Meeting held in San Antonio, TX was host to the International Prostate Forum. Dr. Jeremie Calais presented key updates in radioligand therapy for patients with PSMA-sensitive disease. The field of prostate cancer theranostics has
(UroToday.com) The 2024 American Urological Association (AUA) Annual Meeting held in San Antonio, TX was host to the International Prostate Forum. Dr. Jeremie Calais presented key updates in radioligand therapy for patients with PSMA-sensitive disease. The field of prostate cancer theranostics has
God_Loves_Me
in
Advanced Prostate Cancer
5 months ago
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Info re another Auto Immune malady. Parkinson's
This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with Parkinson's disease (PD). Perhaps there is some advice relevant to PMR- from which I have suffered for more than a decade. In my circle of long standing
This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with Parkinson's disease (PD). Perhaps there is some advice relevant to PMR- from which I have suffered for more than a decade. In my circle of long standing
Canuk
in
PMRGCAuk
5 months ago
What is a Healthy, low sugar shake or supplement to gain weight with prostate cancer spread to lymph nodes?
Husband has advanced prostate cancer mets to neck, chest, back, pelvis, femur. PSA is doubling rapidly. Currently on Zytiga, Lupron, Steroid, and Lyparza. 😞 Diagnosed in 2020 with tumor base of tongue (doctors said it was not related to PC) and aggressive prostate cancer at same time. Today, four years
Husband has advanced prostate cancer mets to neck, chest, back, pelvis, femur. PSA is doubling rapidly. Currently on Zytiga, Lupron, Steroid, and Lyparza. 😞 Diagnosed in 2020 with tumor base of tongue (doctors said it was not related to PC) and aggressive prostate cancer at same time. Today, four years
Bamagrad
in
Advanced Prostate Cancer
5 months ago
Hep B and mild sign of fatty liver.
I have been on entecavir for 3 years now for long term hap b. And my last ultrasound at febuary I also have mild signs of fatty liver. I'm worried and like get some advice here my ultrasound I have no signs of liver chirrosis. Thank Pauline
I have been on entecavir for 3 years now for long term hap b. And my last ultrasound at febuary I also have mild signs of fatty liver. I'm worried and like get some advice here my ultrasound I have no signs of liver chirrosis. Thank Pauline
Paulini
in
British Liver Trust
5 months ago
Anemia on Abiraterone + Prednisone + Lupron
Since November 2023 I have been taking Abiraterone + Prednosone for castrate resistant metastatic prostate cancer. In November my PSA was 0.8. In the first three months it went down to 0.26. Yesterday, my PSA was 0.16. But my hemoglobin and hematocrit became low at 11.6 and 36% respectively.
Since November 2023 I have been taking Abiraterone + Prednosone for castrate resistant metastatic prostate cancer. In November my PSA was 0.8. In the first three months it went down to 0.26. Yesterday, my PSA was 0.16. But my hemoglobin and hematocrit became low at 11.6 and 36% respectively.
dac500
in
Advanced Prostate Cancer
5 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
5 months ago
Help!
I have been unwell for about 8 months now with all the symptoms of Addison's Disease(which I only new about recently) I had blood cortisol tests done 1 week apart at 9am.1. 128 nmol/L 2. 250 nmol/L My gp says this doesn't warrant further investigation despite all of my symptoms. Most other tests were
I have been unwell for about 8 months now with all the symptoms of Addison's Disease(which I only new about recently) I had blood cortisol tests done 1 week apart at 9am.1. 128 nmol/L 2. 250 nmol/L My gp says this doesn't warrant further investigation despite all of my symptoms. Most other tests were
Adoptdontshop
in
Thyroid UK
5 months ago
Hemosiderin staining?
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Allotmental
in
Vasculitis UK
5 months ago
CRISPR news: protein arginine methyltransferase 7 as a novel essential gene in prostate cancer metastasis (in vitro)
Now, tell me how to deal with it! https://pubmed.ncbi.nlm.nih.gov/38432581/
Now, tell me how to deal with it! https://pubmed.ncbi.nlm.nih.gov/38432581/
Maxone73
in
Advanced Prostate Cancer
5 months ago
CAR-T: new phase 1 trial will soon start to enroll
P-PSMA-101 CAR-T Cells in the Treatment of Subjects With Metastatic Castration-Resistant Prostate Cancer (mCRPC) and Advanced Salivary Gland Cancers (SGC) Promising preclinical tests, but it's a phase 1 trial https://clinicaltrials.gov/study/NCT04249947
P-PSMA-101 CAR-T Cells in the Treatment of Subjects With Metastatic Castration-Resistant Prostate Cancer (mCRPC) and Advanced Salivary Gland Cancers (SGC) Promising preclinical tests, but it's a phase 1 trial https://clinicaltrials.gov/study/NCT04249947
Maxone73
in
Advanced Prostate Cancer
5 months ago
Surgery or radiation, looking for some advices
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Healing1826
in
Advanced Prostate Cancer
5 months ago
End stage liver disease
Hi everyone, My husband was diagnosed in January with hepatic encephalopathy he has end stage liver disease. To cut along story short he was told by the consultant in Feb about having a discussion on the next appointment about a transplant, so the that next appointment came and we has to ask her about
Hi everyone, My husband was diagnosed in January with hepatic encephalopathy he has end stage liver disease. To cut along story short he was told by the consultant in Feb about having a discussion on the next appointment about a transplant, so the that next appointment came and we has to ask her about
Janey1309
in
British Liver Trust
5 months ago
repost - cancer progression - next steps?
I am reposting in the hope of receiving a response regarding best next steps. Please see my profile for history on my dad's condition. He went to the ER last weekend with severe flank pain and CT revealed left-sided hydronephrosis as likely cystic soft tissue mass obstructing the left ureter. An anterograde
I am reposting in the hope of receiving a response regarding best next steps. Please see my profile for history on my dad's condition. He went to the ER last weekend with severe flank pain and CT revealed left-sided hydronephrosis as likely cystic soft tissue mass obstructing the left ureter. An anterograde
Juju0713
in
Advanced Prostate Cancer
5 months ago
A few Things ….
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
AppleOrchard
in
Thyroid UK
5 months ago
for some of our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Discomfort
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Littlelizzy11
in
British Liver Trust
5 months ago
burning tongue
recently my usual anti inflammatory tablets were not available so they switched me to CELECOXIB. There is a side effect where you can get sores in your mouth. It did seem like I had small ulcers at tip of tongue but my whole mouth burned and the side of my tongue looked bumpy and swollen slightly.
recently my usual anti inflammatory tablets were not available so they switched me to CELECOXIB. There is a side effect where you can get sores in your mouth. It did seem like I had small ulcers at tip of tongue but my whole mouth burned and the side of my tongue looked bumpy and swollen slightly.
Danlos166
in
Fibromyalgia Action UK
5 months ago
Unleashing the Power of Intensive Brain Training in Parkinson's: Promising Findings
Discover the captivating effects of intensive brain training in Parkinson's disease. This study focused on a group of individuals recently diagnosed with Parkinson's and in relatively good condition. Over a six-month period, they engaged in a rigorous training program under supervision. The intensive
Discover the captivating effects of intensive brain training in Parkinson's disease. This study focused on a group of individuals recently diagnosed with Parkinson's and in relatively good condition. Over a six-month period, they engaged in a rigorous training program under supervision. The intensive
Esperanto
in
Cure Parkinson's
5 months ago
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