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Experiences with
Paroxysmal atrial fibrillation
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PSA rise
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
konichiwa12
in
Advanced Prostate Cancer
7 months ago
TSH 3.88
Hi My recent blood test result showed my TSH is 3.88 and the receptionist said the doctor had left a note saying “tell patient normal” (which is what they always say). My question is…is it normal? I had a partial thyroidectomy in 2001 and have been on thyroxine ever since. Lately I’ve been struggling
Hi My recent blood test result showed my TSH is 3.88 and the receptionist said the doctor had left a note saying “tell patient normal” (which is what they always say). My question is…is it normal? I had a partial thyroidectomy in 2001 and have been on thyroxine ever since. Lately I’ve been struggling
Rarah11
in
Thyroid UK
7 months ago
4th line palliative systemic options?
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Docker53
in
Advanced Prostate Cancer
8 months ago
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We might for the first time really be thinking of cures of cancer’
https://www.michiganmedicine.org/health-lab/we-might-first-time-really-be-thinking-cures-cancer#msdynttrid=JdeyNzK9W1EXarzbI4PfjSKrxGZAlLluHGFLOcFqJyM When Max Wicha, M.D., was starting his career, oncology did not come highly recommended. "When I first got into this field about 40 years ago, I went
https://www.michiganmedicine.org/health-lab/we-might-first-time-really-be-thinking-cures-cancer#msdynttrid=JdeyNzK9W1EXarzbI4PfjSKrxGZAlLluHGFLOcFqJyM When Max Wicha, M.D., was starting his career, oncology did not come highly recommended. "When I first got into this field about 40 years ago, I went
KocoPr
in
Advanced Prostate Cancer
8 months ago
Inflammation still not contained
The preds and MTX 10mg (with folic acid) were only working properly for the first week at the 20mg preds my GP initially put me on on 27 November. A week later, actually the morning that i saw Rheumatologist, i made the mistake of dropping too quickly and drastically down to 15mg, as i was feeling
The preds and MTX 10mg (with folic acid) were only working properly for the first week at the 20mg preds my GP initially put me on on 27 November. A week later, actually the morning that i saw Rheumatologist, i made the mistake of dropping too quickly and drastically down to 15mg, as i was feeling
PMRhealth
in
PMRGCAuk
8 months ago
Clinical trials?
At the oncology appointment yesterday my husband was given what I believe is an amazing opportunity, he has the option of starting standard care ( immunotherapy pembrolizumab ) or participating in clinical trials where they will be also adding a second drug for a two pronged approach. Whilst I know
At the oncology appointment yesterday my husband was given what I believe is an amazing opportunity, he has the option of starting standard care ( immunotherapy pembrolizumab ) or participating in clinical trials where they will be also adding a second drug for a two pronged approach. Whilst I know
Flay75
in
The Roy Castle Lung Cancer Foundation
8 months ago
Persistent Afib - next stop Amiodorone
Following a short-lived success with cardioversion, my EP has prescribed Amiodarone 200mg daily. So not a massive dose. The waiting list for ablation is long, so this is a stop gap. And a lot of the drugs prescribed for paroxysmal AF are not much help for persistent AF - at least not as an antiarythmic
Following a short-lived success with cardioversion, my EP has prescribed Amiodarone 200mg daily. So not a massive dose. The waiting list for ablation is long, so this is a stop gap. And a lot of the drugs prescribed for paroxysmal AF are not much help for persistent AF - at least not as an antiarythmic
Rainfern
in
AF Association
1 year ago
Stopping Firmagon if castration resistant
The cocktail of painkillers plus Radium 223 is making me very tired at the moment. This may seem like a daft question but what is the position with continuing or stopping Firmagon when you're castration resistant? Is its purpose to control the spread of testosterone that would otherwise make the cancer
The cocktail of painkillers plus Radium 223 is making me very tired at the moment. This may seem like a daft question but what is the position with continuing or stopping Firmagon when you're castration resistant? Is its purpose to control the spread of testosterone that would otherwise make the cancer
Finlay66
in
Advanced Prostate Cancer
1 year ago
Atrial Fibrillation
Hello All , Ive been on Eligard , Zytiga , 250 mg , Abiraterone 5mg for 14 months , Just found out from a EKG I have paroxysmal A-Fib and PVC (premature ventricular contraction ) . The Dr. gave me a monitor to wear on my chest for 2 weeks . This was done at U of Chicago 2 days ago . I saw my V. A. MO
Hello All , Ive been on Eligard , Zytiga , 250 mg , Abiraterone 5mg for 14 months , Just found out from a EKG I have paroxysmal A-Fib and PVC (premature ventricular contraction ) . The Dr. gave me a monitor to wear on my chest for 2 weeks . This was done at U of Chicago 2 days ago . I saw my V. A. MO
reconjj
in
Advanced Prostate Cancer
1 year ago
Abaltion over with
Had the cryo ablation in James Cook in Middlesborough on Tuesday. Was a bit anxious but went OK. It lasted 2 hours but now I cant remember much about it other than them pacing my heart a little and the ice cream headache Discharge letter states PVI x4 and no return after 15mins - not sure what the last
Had the cryo ablation in James Cook in Middlesborough on Tuesday. Was a bit anxious but went OK. It lasted 2 hours but now I cant remember much about it other than them pacing my heart a little and the ice cream headache Discharge letter states PVI x4 and no return after 15mins - not sure what the last
ian16527
in
AF Association
1 year ago
Keynote 365 Trial
Hey fellas, Seeing my MO tomorrow about enrolling in the Keynote 365 clinical trial with Keytruda in combination with another drug. Has anybody had any experience with Keytruda? Did it work for you? SE’s? I’m 17 years into this journey, castrate resistant, failed Xtandi, and recently failed Docetaxel
Hey fellas, Seeing my MO tomorrow about enrolling in the Keynote 365 clinical trial with Keytruda in combination with another drug. Has anybody had any experience with Keytruda? Did it work for you? SE’s? I’m 17 years into this journey, castrate resistant, failed Xtandi, and recently failed Docetaxel
deano58
in
Advanced Prostate Cancer
8 months ago
Atrial flutter and AV node ablation
Hi I am 69 and have had a recent cardioversion after long episodes of atrial flutter with heart rate of 130bpm.Rate is now controlled by doubling my Sotalol but i am still getting some short episodes of fast heart beats lasting several seconds.Doctors at the hospital say a 4th ablation to capture the
Hi I am 69 and have had a recent cardioversion after long episodes of atrial flutter with heart rate of 130bpm.Rate is now controlled by doubling my Sotalol but i am still getting some short episodes of fast heart beats lasting several seconds.Doctors at the hospital say a 4th ablation to capture the
JeanetteH
in
Atrial Fibrillation Support
1 year ago
Im so fed up with the constant SVTs and PACs
Hi everyone... Had successful ablation for AFib and AF in 2016. Ok until last August when all these weird arrythmias suddenly started happening. I assumed it was AFibbut it was different, getting a week to 2 weeks of almost constant palpitations 24/7. Been to A&E 3 times, they weren't bothered. Been
Hi everyone... Had successful ablation for AFib and AF in 2016. Ok until last August when all these weird arrythmias suddenly started happening. I assumed it was AFibbut it was different, getting a week to 2 weeks of almost constant palpitations 24/7. Been to A&E 3 times, they weren't bothered. Been
wendy6
in
AF Association
1 year ago
Questions for those currently on or have tried Olaparib or Rucaparib PARP inhibitors. Recently published study on Rucaparib.
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
mrssnappy
in
Advanced Prostate Cancer
8 months ago
Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
8 months ago
Long Journey
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
MJCA
in
Prostate Cancer And Gay Men
8 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
8 months ago
Replacement for Digoxin
Hi, I have had atrial fibrillation now for 6 years. I take bisoprorol 7.5 as well as full dose of digoxin for last 6 years. New GP, who I see on Friday says there is not enough digoxin in the blood to be therapeutic sent by text message( not seen her yet) Digoxin, everywhere I look online, doctors say
Hi, I have had atrial fibrillation now for 6 years. I take bisoprorol 7.5 as well as full dose of digoxin for last 6 years. New GP, who I see on Friday says there is not enough digoxin in the blood to be therapeutic sent by text message( not seen her yet) Digoxin, everywhere I look online, doctors say
julielj
in
Arrhythmia Alliance
1 year ago
Help needed with AF medication homework please!
I have an appointment at short notice with my EP on Thursday. This is following the cardioversion that gave me NSR for a week before returning to persistent Afib with resting heart rate in the 90s. I am currently on Adoxaban, and propranolol at night. I'm hoping to have a conversation about potential
I have an appointment at short notice with my EP on Thursday. This is following the cardioversion that gave me NSR for a week before returning to persistent Afib with resting heart rate in the 90s. I am currently on Adoxaban, and propranolol at night. I'm hoping to have a conversation about potential
Rainfern
in
AF Association
1 year ago
Flecainide: Worse AFib attack ever after being prescribed at a+e admission
Hi all hope everyone is well. Wish I was. Two days ago I was diagnosed with angina in ACU and prescribed yet more medication. The angina I now have is distinct from AFib type of angina pain which I am familiar with ie: I only experience it when I'm in afib. So A fib free, in NSR i have angina pain quite
Hi all hope everyone is well. Wish I was. Two days ago I was diagnosed with angina in ACU and prescribed yet more medication. The angina I now have is distinct from AFib type of angina pain which I am familiar with ie: I only experience it when I'm in afib. So A fib free, in NSR i have angina pain quite
DizzyD
in
Atrial Fibrillation Support
1 year ago
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