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Paroxysmal atrial fibrillation
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Chemo or clinical trial?
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
rsgdmd
in
Advanced Prostate Cancer
3 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
4 months ago
The Importance of Peer-Review
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Tall_Allen
in
Advanced Prostate Cancer
4 months ago
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How long on Entresto
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
am1875
in
British Heart Foundation
4 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
4 months ago
Clinical Trial Starts Today
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Pmann
in
Advanced Prostate Cancer
4 months ago
Migraine on tapering
Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually recovered over the next couple of days. The second reduction to 8.5mg is today (22/3/23) and, again, I have had a migraine aura and taken sumatriptans
Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually recovered over the next couple of days. The second reduction to 8.5mg is today (22/3/23) and, again, I have had a migraine aura and taken sumatriptans
Miserere
in
PMRGCAuk
1 year ago
A different sort of vibrotactile device
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Ctime
in
Cure Parkinson's
4 months ago
Way to slow /stop metastases
Dear Friends, This is hot of the press. One of the mechanism of metastatic spread is that tiny pieces of broken cancer cells circulate in blood ..they contain Cancer cell DNA and are called Chromatin pieces. These tiny pieces of chromatin enter into healthy cell and transform them into Cancer cells.
Dear Friends, This is hot of the press. One of the mechanism of metastatic spread is that tiny pieces of broken cancer cells circulate in blood ..they contain Cancer cell DNA and are called Chromatin pieces. These tiny pieces of chromatin enter into healthy cell and transform them into Cancer cells.
LearnAll
in
Advanced Prostate Cancer
4 months ago
KM819
Does anyone have any input on this clinical trial?
Does anyone have any input on this clinical trial?
staceysack
in
Cure Parkinson's
4 months ago
PSA REACHES 5,125 !!
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
fsiefert
in
Advanced Prostate Cancer
4 months ago
exciting clinical trial
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
PJBinMI
in
SHARE Metastatic Breast Cancer
4 months ago
AFIB ATTACK TRIGGER???
Has anyone been AFIB free for several months on Flecainide, but then get an attack when you have a 100.5 fever and cold sweats (not feeling well)??? Just wondering if anyone has had an experience similar to mine? Thank you for any and all replies as I love you all!!!!!!!
Has anyone been AFIB free for several months on Flecainide, but then get an attack when you have a 100.5 fever and cold sweats (not feeling well)??? Just wondering if anyone has had an experience similar to mine? Thank you for any and all replies as I love you all!!!!!!!
Jpot34
in
AF Association
1 year ago
Sheffield ICD Support Group
We are pleased to invite you to the Sheffield Northern General Hospital ICD Support Group meeting, taking place at the Medical Education Centre (MEC) Northern General Hospital (near Chesterman building), on Wednesday 20 September 2023 from 10.30am to 1.30pm. This group is for patients who have an implantable
We are pleased to invite you to the Sheffield Northern General Hospital ICD Support Group meeting, taking place at the Medical Education Centre (MEC) Northern General Hospital (near Chesterman building), on Wednesday 20 September 2023 from 10.30am to 1.30pm. This group is for patients who have an implantable
Hidden
Partner
in
Sudden Cardiac Arrest & Heart Attack
11 months ago
Sheffield ICD Support Group
We are pleased to invite you to the Sheffield Northern General Hospital ICD Support Group meeting, taking place at the Medical Education Centre (MEC) Northern General Hospital (near Chesterman building), on Wednesday 20 September 2023 from 10.30am to 1.30pm. This group is for patients who have an implantable
We are pleased to invite you to the Sheffield Northern General Hospital ICD Support Group meeting, taking place at the Medical Education Centre (MEC) Northern General Hospital (near Chesterman building), on Wednesday 20 September 2023 from 10.30am to 1.30pm. This group is for patients who have an implantable
Hidden
Partner
in
Arrhythmia Alliance
11 months ago
Nicotine Patch helps immensely.
For the last week, I’ve been wearing a 7mg nicotine patch with amazing results. Almost every night since I’ve slept through the night. My symptoms have improved, I have a much better sense of wellbeing. Nicotine has been known for years for its medicinal properties. Eggplant has the second most nicotine
For the last week, I’ve been wearing a 7mg nicotine patch with amazing results. Almost every night since I’ve slept through the night. My symptoms have improved, I have a much better sense of wellbeing. Nicotine has been known for years for its medicinal properties. Eggplant has the second most nicotine
38yroldmale
in
Cure Parkinson's
4 months ago
Advice please
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Karendeena
in
AF Association
1 year ago
recommendations for The Christie ?
hi everyone , I haven’t posted for a while as I have been taking part in a clinical trial which has now finished . Can anyone recommend an oncologist specialising in Ovarian Cancer at The Christie ? I’m looking for another trial if possible and I can travel to The Christie . I just want to wish everyone
hi everyone , I haven’t posted for a while as I have been taking part in a clinical trial which has now finished . Can anyone recommend an oncologist specialising in Ovarian Cancer at The Christie ? I’m looking for another trial if possible and I can travel to The Christie . I just want to wish everyone
Lookingahead
in
My Ovacome
4 months ago
Berberine - does anyone have experience of taking this for PAF?
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
Dippy22
in
AF Association
1 year ago
BlueRock Therapeutics phase I clinical trial for Parkinson’s disease
“We are on the leading edge in the research for new treatment options for Parkinson’s disease as bemdaneprocel, the most clinically advanced pluripotent stem derived cell therapy candidate to date for this disease, continues to show positive trends,” said Christian Rommel, Member of the Executive Committee
“We are on the leading edge in the research for new treatment options for Parkinson’s disease as bemdaneprocel, the most clinically advanced pluripotent stem derived cell therapy candidate to date for this disease, continues to show positive trends,” said Christian Rommel, Member of the Executive Committee
Farooqji
in
Cure Parkinson's
4 months ago
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