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CliniCrowd has published initial results
For those of you that have joined the https://clinicrowd.info/ Parkinson's and Mannitol registry - we are happy to inform that we have released preliminary initial results. If you have filled out at least one follow up registry, after the initial registry, you will be able to go into you profile page
For those of you that have joined the https://clinicrowd.info/ Parkinson's and Mannitol registry - we are happy to inform that we have released preliminary initial results. If you have filled out at least one follow up registry, after the initial registry, you will be able to go into you profile page
MichalKahan
in
Cure Parkinson's
7 years ago
Dance therapy
https://youtu.be/qs412udMYCU Hi all, came across this clipping in YouTube. Just wanted to share it. Have a relative with Parkinson's. So started checking out in this forum. May help those recently diagnosed.
https://youtu.be/qs412udMYCU Hi all, came across this clipping in YouTube. Just wanted to share it. Have a relative with Parkinson's. So started checking out in this forum. May help those recently diagnosed.
Padram
in
Cure Parkinson's
7 years ago
Medicine when to start and w/ what
copy: Which medications are right for me? Medications that are effective for one person with Parkinson's disease, may not work well for another person. The best way for a person to identify the right medications is through an evaluation by a doctor or nurse practitioner who is knowledgeable about
copy: Which medications are right for me? Medications that are effective for one person with Parkinson's disease, may not work well for another person. The best way for a person to identify the right medications is through an evaluation by a doctor or nurse practitioner who is knowledgeable about
Hidden
in
Cure Parkinson's
7 years ago
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Atypical Parkinsons.
What worries me is that no decision has been made yet regarding which type of
parkinsonism
I have.If anyone can shed any light I would be forever grateful as I am left just anxious about the future. Kind Regards, Jim.
What worries me is that no decision has been made yet regarding which type of
parkinsonism
I have.If anyone can shed any light I would be forever grateful as I am left just anxious about the future. Kind Regards, Jim.
juiceter7
in
Cure Parkinson's
7 years ago
Back From Mayo Clinic
We had asked to see a neurologist who we had read about and was well versed in
Parkinsonism
. We did not see his name on any of the correspondence, but proceeded and figured we’d just see whoever they give us.
We had asked to see a neurologist who we had read about and was well versed in
Parkinsonism
. We did not see his name on any of the correspondence, but proceeded and figured we’d just see whoever they give us.
Karynleitner
in
PSP Association
7 years ago
Anavex 2-73 Therapy Candidate Seen to Restore Brain Cell Function in Mice with Parkinson’s, Study Finds
The poster was titled, “ANAVEX 2-73, a clinical Alzheimer drug candidate, induces neurorestoration in experimental
parkinsonism
.” Veronica Francardo, PhD, and Dr.
The poster was titled, “ANAVEX 2-73, a clinical Alzheimer drug candidate, induces neurorestoration in experimental
parkinsonism
.” Veronica Francardo, PhD, and Dr.
rhenry45
in
Cure Parkinson's
7 years ago
Does Parkinson's effect both sides?
Hi all I was dxed 2015 maybe had it since 2013... It was all right sided. In the past 2/3 months my left side has been really effected in weakness and tremor to the degree that I struggle with the most mundane tasks like wiping my bum. When the medicine is working my body is 80/90% but of course we
Hi all I was dxed 2015 maybe had it since 2013... It was all right sided. In the past 2/3 months my left side has been really effected in weakness and tremor to the degree that I struggle with the most mundane tasks like wiping my bum. When the medicine is working my body is 80/90% but of course we
stanny7
in
Cure Parkinson's
7 years ago
Parkinson's: a syndrome rather than a disease?
"Pathological and neurotransmitter basis of the Parkinson’s syndrome: it is not all dopamine". Parkinson's: a syndrome rather than a disease? J Neural Transm (Vienna) 2017 Aug;124(8):907-914. https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/28028643/
"Pathological and neurotransmitter basis of the Parkinson’s syndrome: it is not all dopamine". Parkinson's: a syndrome rather than a disease? J Neural Transm (Vienna) 2017 Aug;124(8):907-914. https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/28028643/
aspergerian
in
Cure Parkinson's
7 years ago
23 day cycle that all idiopathic PD patients are synchronized to?
I read the following in Recovery From Parkinsons Disease, a PDF book free on pdrecovery.org. Blows my mind! Take a look at the following excerpt and please comment if you have idiopathic parkinsons disease (PD with unknown origin) ----------------------------------------------- People with idiopathic
I read the following in Recovery From Parkinsons Disease, a PDF book free on pdrecovery.org. Blows my mind! Take a look at the following excerpt and please comment if you have idiopathic parkinsons disease (PD with unknown origin) ----------------------------------------------- People with idiopathic
bassofspades
in
Cure Parkinson's
7 years ago
cognitive dysfunctions, norepinephrine, atomoxetine, exercise
Dopamine is not the only significant neurotransmitter in PD. The emerging role of norepinephrine in cognitive dysfunctions of Parkinson's disease. Vazey EM, Aston-Jones G. Front Behav Neurosci 2012 Jul 25;6:48. https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/
Dopamine is not the only significant neurotransmitter in PD. The emerging role of norepinephrine in cognitive dysfunctions of Parkinson's disease. Vazey EM, Aston-Jones G. Front Behav Neurosci 2012 Jul 25;6:48. https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/
aspergerian
in
Cure Parkinson's
7 years ago
Beautiful words - posted on behalf of Althea-C
Hi everyone, I'm posting this on behalf of Althea-C who, it turns out, has a very special way with words. She asked me to help her post this to the group, which I'm more than happy to do. I think she's managed to capture and express so much of what we all feel and go through. I'm so glad she agreed to
Hi everyone, I'm posting this on behalf of Althea-C who, it turns out, has a very special way with words. She asked me to help her post this to the group, which I'm more than happy to do. I think she's managed to capture and express so much of what we all feel and go through. I'm so glad she agreed to
Sawa
in
PSP Association
7 years ago
Brain Disconnects Spotted in Parkinson's Patients With Visual Hallucinations .
A new Research paves that areas of the Brain decreased connectivity linked to Visual Hallucinations . This study states that " In all of the Parkinson's disease patients, numerous areas of the brain communicated less with the rest of the brain, compared to the control group, the Netherlands researchers
A new Research paves that areas of the Brain decreased connectivity linked to Visual Hallucinations . This study states that " In all of the Parkinson's disease patients, numerous areas of the brain communicated less with the rest of the brain, compared to the control group, the Netherlands researchers
Abdiqani
in
Cure Parkinson's
7 years ago
Mother with Parkinson's
I started my Mom on Mannitol yesterday. I know they said you won't notice any changes until about a month of taking it. And I expected as much since my Mom is at about stage 4. But I have to tell you that she just moved her legs for me while I was changing her diaper. She hasn't done that in almost
I started my Mom on Mannitol yesterday. I know they said you won't notice any changes until about a month of taking it. And I expected as much since my Mom is at about stage 4. But I have to tell you that she just moved her legs for me while I was changing her diaper. She hasn't done that in almost
Hidden
in
Cure Parkinson's
7 years ago
PMR and Vertigo
Over the past four days I have developed vertigo, which would be NO fu if it wasn't accompanied by nausea. I have GCA as well, and wondered if anyone out there has any advice for me. I have read that BPPV (Benign paroxysmal positional vertigo) can accompany PMR and GCA. So much to learn. Every day is
Over the past four days I have developed vertigo, which would be NO fu if it wasn't accompanied by nausea. I have GCA as well, and wondered if anyone out there has any advice for me. I have read that BPPV (Benign paroxysmal positional vertigo) can accompany PMR and GCA. So much to learn. Every day is
Cookiekelly
in
PMRGCAuk
7 years ago
Creatine and leg pain
Hi all. I've been on levo since April. 75mg then 100mg for the last few weeks. I have leg and hip pain with muscle weakness. Doc says I should have creatine checked. It's been getting slowly worse since diagnosed with autoimmune hypo in April. Can anyone shed a light on my leg issues? Thanks so much
Hi all. I've been on levo since April. 75mg then 100mg for the last few weeks. I have leg and hip pain with muscle weakness. Doc says I should have creatine checked. It's been getting slowly worse since diagnosed with autoimmune hypo in April. Can anyone shed a light on my leg issues? Thanks so much
Hidden
in
Thyroid UK
7 years ago
Now a word from our Sponsor....... (conclusion)
First let me reiterate that I am not a Schill for the Marijuana Industry and had ( perhaps to a my detriment ) some pride issues to the fact that I could say I have never tried it. In researching the past for Parkinson's treatments I found that Marijuana has been long prescribed as a treatment. I had
First let me reiterate that I am not a Schill for the Marijuana Industry and had ( perhaps to a my detriment ) some pride issues to the fact that I could say I have never tried it. In researching the past for Parkinson's treatments I found that Marijuana has been long prescribed as a treatment. I had
Serenity_finaly-1
in
Cure Parkinson's
7 years ago
Premotor Symptoms of Parkinson’s Disease - EHP 2013
Developing methods for researching Premotor symptoms in PD seems so very important. Here's an excerpt from a well-focused review. Research on the Premotor Symptoms of Parkinson’s Disease: Clinical and Etiological Implications Environ Health Perspect 2013 Nov-Dec; 121(11
Developing methods for researching Premotor symptoms in PD seems so very important. Here's an excerpt from a well-focused review. Research on the Premotor Symptoms of Parkinson’s Disease: Clinical and Etiological Implications Environ Health Perspect 2013 Nov-Dec; 121(11
aspergerian
in
Cure Parkinson's
7 years ago
Donepezil - has anyone tried this med for brain fog and to help with walking? does it affect your sleep?
I was given this med by my dr. to help with my brain fog and my gait in walking. He started me on a very low dose 5mg, and i have only been on it a few days. However, i seem to be sleeping in a deeper(stranger) sleep, but my mind feels awake. i know it sound crazy, but sometimes I will think to myself
I was given this med by my dr. to help with my brain fog and my gait in walking. He started me on a very low dose 5mg, and i have only been on it a few days. However, i seem to be sleeping in a deeper(stranger) sleep, but my mind feels awake. i know it sound crazy, but sometimes I will think to myself
moparkie715
in
Cure Parkinson's
7 years ago
Anyone tried using Creatine ?
I am not medically trained . So do not undertake any of my suggestions without consulting your doctor or PD nurse. As running and general fitness is the main reason for my always " looking for help and assistance" I came across Creatine. It's useful in maintaining muscle strength in sports and also
I am not medically trained . So do not undertake any of my suggestions without consulting your doctor or PD nurse. As running and general fitness is the main reason for my always " looking for help and assistance" I came across Creatine. It's useful in maintaining muscle strength in sports and also
Mike1942
in
Cure Parkinson's
7 years ago
NDT. Not all the same.
I made the mistake of mixing two brands of NDT yesterday. WP thyroid, which I've been taking for the last couple of months and NP thyroid. I normally take 2 grains first thing. I stupidly took one grain of each. Wow, what a difference. Brain feels confused, edgy feeling inside but feeling lack lustre
I made the mistake of mixing two brands of NDT yesterday. WP thyroid, which I've been taking for the last couple of months and NP thyroid. I normally take 2 grains first thing. I stupidly took one grain of each. Wow, what a difference. Brain feels confused, edgy feeling inside but feeling lack lustre
NickP1
in
Thyroid UK
7 years ago
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