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Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
8 months ago
Can anyone please offer advice?
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
anniemac81
in
Thyroid UK
8 months ago
Bad news: prostate cancers doubling by 2040
Bad news on one side, for all the guys that will join the damn club (and the trends say their age is lowering as well....I am an example actually!). On the other side we can hope for an increase of effort to solve the problem, at least for prostate, breast, lung and colorectal cancers, which are quite
Bad news on one side, for all the guys that will join the damn club (and the trends say their age is lowering as well....I am an example actually!). On the other side we can hope for an increase of effort to solve the problem, at least for prostate, breast, lung and colorectal cancers, which are quite
Maxone73
in
Advanced Prostate Cancer
6 months ago
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Expanded label sought for 177Lu-PSMA-617 in prostate cancer: about time
I have already done the taxane part and I would like to see how 177Lu performs as first line...but this is also interesting, it seems more effective than a change in ARPI in castration resistant setting "Data also showed that a PSA decline of at least 50% was more than 2.5 times more frequent with 177Lu-PSMA
I have already done the taxane part and I would like to see how 177Lu performs as first line...but this is also interesting, it seems more effective than a change in ARPI in castration resistant setting "Data also showed that a PSA decline of at least 50% was more than 2.5 times more frequent with 177Lu-PSMA
Maxone73
in
Advanced Prostate Cancer
6 months ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
6 months ago
Next NoSilverBullet webinar on 22nd of April: Dr M Sexton on “How can medical cannabis help people with Parkinson’s?”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
Michel0220
in
Cure Parkinson's
6 months ago
Lupus SLE, APS, Vasculitis
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
Newlupus76
in
LUPUS UK
8 months ago
Update May 15, 2024
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
MsHope
in
Advanced Prostate Cancer
6 months ago
Reference Library of Papers about Dutasteride for Treating Prostate Cancer
Here is a library of 20 papers about using Dutasteride to treat prostate cancer. In one study, Dutasteride monotherapy reduces PSA by 50%, reduces prostate volume by 25%, and reduces tumor volume by 30%, after 6 months of treatment, compared to placebo (Moore, 2017). https://pubmed.ncbi.nlm.nih.gov
Here is a library of 20 papers about using Dutasteride to treat prostate cancer. In one study, Dutasteride monotherapy reduces PSA by 50%, reduces prostate volume by 25%, and reduces tumor volume by 30%, after 6 months of treatment, compared to placebo (Moore, 2017). https://pubmed.ncbi.nlm.nih.gov
janebob99
in
Advanced Prostate Cancer
6 months ago
pigment dispersion syndrome
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
MEGS53
in
LUPUS UK
6 months ago
FOOD ENZYMES
This is not a therapy for Prostate cancer specifically but helpful for people that may have: acid indigestion, heartburn, acid reflux, calcium deficiency, cystic fibrosis, fatigue, hypoglycemia, gas, bad breath, colitis, poor digestion and other digestion system weakness. If this is a silly and not
This is not a therapy for Prostate cancer specifically but helpful for people that may have: acid indigestion, heartburn, acid reflux, calcium deficiency, cystic fibrosis, fatigue, hypoglycemia, gas, bad breath, colitis, poor digestion and other digestion system weakness. If this is a silly and not
Lrv44221
in
Advanced Prostate Cancer
1 year ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
8 months ago
Wife of Newly Diagnosed Husband - PSMA questions
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
EvFC
in
Advanced Prostate Cancer
6 months ago
I am 70 years of age & pretty much alone
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
Floral777
in
Thyroid UK
8 months ago
Diabetes drug similar to Ozempic helped slow progression of Parkinson’s disease in small trial
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
Sydney75
in
Cure Parkinson's
6 months ago
starting statins and blood thinners
I just found out that I had a silent stroke in the past according to a recent MRA. I am starting a med that keeps platelets from sticking together and a statin. I am scared to death of the side effects. Any advice?
I just found out that I had a silent stroke in the past according to a recent MRA. I am starting a med that keeps platelets from sticking together and a statin. I am scared to death of the side effects. Any advice?
Milynda
in
Anticoagulation Support
6 months ago
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bolt_Upright
in
Cure Parkinson's
6 months ago
GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
6 months ago
Meta analysis of Eastern Cooperative Oncology Group(ECOG) PS predicts OS regardless of category, previous chemotherapy, and mPC population
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
Graham49
in
Advanced Prostate Cancer
6 months ago
PSA following Lupron and question on scans
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
alysona828
in
Advanced Prostate Cancer
6 months ago
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