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Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
My back problems.
Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of
Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of
alfredthegreat
in
British Liver Trust
6 years ago
Seriously questioning my doctor, need your advice!
My ckd was caused by immunosuppressive drugs when i had a
pancreas
transplant
. I was told by many doctors that nothing could reverse the damage done. I believed them and did nothing. No research and I did not really change my diet only watching my potassium intake.
My ckd was caused by immunosuppressive drugs when i had a
pancreas
transplant
. I was told by many doctors that nothing could reverse the damage done. I believed them and did nothing. No research and I did not really change my diet only watching my potassium intake.
Lgriffis
in
Early CKD Support
6 years ago
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Liver Transplantees - Say Hello
This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience
This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience
Hidden
in
British Liver Trust
6 years ago
Standards of Care as defined by UMN doctors
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
fightald
Administrator
in
Parents of ALD Newborns
6 years ago
Hallucination after liver transplant
Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?
Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?
Lilies1
in
British Liver Trust
6 years ago
Post op double lung
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Deanh
in
Lung Conditions Community Forum
6 years ago
Questions about high risk donors
I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor
I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor
IAintNoMensaBut
in
British Liver Trust
6 years ago
Love Your Liver - Wrexham
Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown
Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown
Hidden
in
British Liver Trust
6 years ago
GIFTED ORGANS "TOMORROW" SONG FOR CHRISTMAS - NOVEMBER 10th AND 11TH ROCKFIELD STUDIOS, MONMOUTH, WALES NP25 5ST
URGENT MESSAGE - I am looking for a Liver Transplant who can sing or mime on a song for Christmas called "Tomorrow" at Rockfield Studios, Monmouth, Wales NP25 5ST (Queen recorded Bohemian Rhapsody) - Tomorrow 10th November and Sunday November 11th We have 19 other transplant singers GIFTED ORGANS Manager
URGENT MESSAGE - I am looking for a Liver Transplant who can sing or mime on a song for Christmas called "Tomorrow" at Rockfield Studios, Monmouth, Wales NP25 5ST (Queen recorded Bohemian Rhapsody) - Tomorrow 10th November and Sunday November 11th We have 19 other transplant singers GIFTED ORGANS Manager
Gifted_Organs
in
British Liver Trust
6 years ago
Finally maybe some relief..Good news for me..
Hi everyone! Just a little update on my condition and new plans after my 6 month treatment.. I went to the nephrologist on November 7th. He said some of my labs improved slightly but i'm GFR is still only 16.. My creatine is 3.2 and my BUN is 75.. Large amount amounts of blood in my urine.. The protein
Hi everyone! Just a little update on my condition and new plans after my 6 month treatment.. I went to the nephrologist on November 7th. He said some of my labs improved slightly but i'm GFR is still only 16.. My creatine is 3.2 and my BUN is 75.. Large amount amounts of blood in my urine.. The protein
Smokey2014
in
Kidney Disease
6 years ago
Has anyone had a bone marrow transplant who has PV?
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
tracey13
in
MPN Voice
6 years ago
Return to work
Hi all, this week has seen my return to work, nearly three years after being signed off due to Cirrhosis, and Liver transplant October 2017. Monday, Wednesday & Friday this week for two hours, seems manageable, was I wrong. I have slept more than ever this week, but at least I am working again, even
Hi all, this week has seen my return to work, nearly three years after being signed off due to Cirrhosis, and Liver transplant October 2017. Monday, Wednesday & Friday this week for two hours, seems manageable, was I wrong. I have slept more than ever this week, but at least I am working again, even
George_2017
in
British Liver Trust
6 years ago
two kids diagnosed with ALD
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
aadilmadarveet
in
Leukodystrophy Support
6 years ago
Identify the carrier.
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
aadilmadarveet
in
Parents of ALD Newborns
6 years ago
RECEDING GUMS DUE TO MEDICATION FROM LUNG TRANSPLANT. HELP?
I am in recovery from a double lung transplant. I am so fortunate to be able to breathe properly again! However all the drugs I am using are ruining my gums, I am 65 so I know teeth and gums do get worse, but is there anything that will prevent this gum deterioration.
I am in recovery from a double lung transplant. I am so fortunate to be able to breathe properly again! However all the drugs I am using are ruining my gums, I am 65 so I know teeth and gums do get worse, but is there anything that will prevent this gum deterioration.
ross-35_
in
Lung Conditions Community Forum
6 years ago
Lukiemia and High white blood count
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
ConcernedSpouse2012
in
CLL Support
6 years ago
Happy 2 year lungaversary to me!!!!
Well it's been two years since my single lung transplant. It's not been easy I tell yer, 3 months after transplant I had to have my other lung removed due to aspergillus but that went completely wrong and I went into cardiac arrest four times and ended up in a coma on ecmo for three months with a trachy
Well it's been two years since my single lung transplant. It's not been easy I tell yer, 3 months after transplant I had to have my other lung removed due to aspergillus but that went completely wrong and I went into cardiac arrest four times and ended up in a coma on ecmo for three months with a trachy
Hidden
in
Lung Conditions Community Forum
6 years ago
Lung transplant - how do youmake that decision?
hi everyone,I have just been told that I forfill the criteria for a double lung transplant at Birmingham QE. It’s massive news and I am delighted to be accepted and have that chance, however I’m not sure I’m ready to make that decision. It all feels a bit surreal. I lost my partner 2 years ago to cancer
hi everyone,I have just been told that I forfill the criteria for a double lung transplant at Birmingham QE. It’s massive news and I am delighted to be accepted and have that chance, however I’m not sure I’m ready to make that decision. It all feels a bit surreal. I lost my partner 2 years ago to cancer
Kelda
in
Lung Conditions Community Forum
6 years ago
Infra red lamp treatment.
Hi there folks. As you will know from my previous posts (if you have read them) I am 10 weeks now post liver transplant and as far as my new liver is concerned all is going well. My problem is that I am being plagued by back pain and back ache at the moment that is making me almost immobile. My brother
Hi there folks. As you will know from my previous posts (if you have read them) I am 10 weeks now post liver transplant and as far as my new liver is concerned all is going well. My problem is that I am being plagued by back pain and back ache at the moment that is making me almost immobile. My brother
alfredthegreat
in
British Liver Trust
6 years ago
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