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PS to previous post
I just want to clarify that the blood test results I had (from the only blood test I’ve had since diagnosis) for the inflammatory markers were done in the beginning of September, when I was still on around 1mg Prednisolone. Also that the painkillers I take in the morning only help a bit, not a lot. Having
I just want to clarify that the blood test results I had (from the only blood test I’ve had since diagnosis) for the inflammatory markers were done in the beginning of September, when I was still on around 1mg Prednisolone. Also that the painkillers I take in the morning only help a bit, not a lot. Having
ClioMcM
in
PMRGCAuk
2 years ago
Pin’s 📍are out 👍🏼
Took a little twisting to loosen them up and out they came with no pliers 😱. Little blood 🩸 but not too bad. Was a rough night last night needed a few pain pills, not much sleep. Throbbing this morning but bearable and it’s elevated. PT comes in at 11 o’clock and tomorrow Home Health to change bandages
Took a little twisting to loosen them up and out they came with no pliers 😱. Little blood 🩸 but not too bad. Was a rough night last night needed a few pain pills, not much sleep. Throbbing this morning but bearable and it’s elevated. PT comes in at 11 o’clock and tomorrow Home Health to change bandages
Kenu
in
My MSAA Community
2 years ago
Finally received Endo diagnosis following laparoscopy... advice/support for next steps please!
Hi Everyone, I had investigative laparoscopy surgery back in October this year. I finally had my endometriosis diagnosed (it's only taken 18 years, for someone to truly listen), it was removed along with scarring and I had a mirena coil fitted. The validation I had after the surgery was unlike anything
Hi Everyone, I had investigative laparoscopy surgery back in October this year. I finally had my endometriosis diagnosed (it's only taken 18 years, for someone to truly listen), it was removed along with scarring and I had a mirena coil fitted. The validation I had after the surgery was unlike anything
Purple_Dinosaur
in
Endometriosis UK
2 years ago
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I would like to hear your experience of pelvic congestion syndrome
I am still on sick leave I am still waiting to be seen by the
pain
management
team and physio for pelvic
pain
management
. I had another Mri on the 10th September to rule out refered pain from my back.. My selection of pain relief is limited.
I am still on sick leave I am still waiting to be seen by the
pain
management
team and physio for pelvic
pain
management
. I had another Mri on the 10th September to rule out refered pain from my back.. My selection of pain relief is limited.
Tmacca
in
Pelvic Pain Support Network
2 years ago
Semi-related to previous post
I have FLD and rheumatoid arthritis and lately headaches which I suspect is the RA, but regardless… Which painkillers can you use?
I have FLD and rheumatoid arthritis and lately headaches which I suspect is the RA, but regardless… Which painkillers can you use?
JHvanN
in
British Liver Trust
2 years ago
RA, Sjogrens desease, Cataracts in both eyes, now Lupus?
Hi All, Can anyone tell me if there is any medication that can help with Lupus? I’m taking Hydroxychloroquine, + several pain killers. The Sjogrens is causing a lot of problems with my eyes, now Lupus is showing it’s ugly head. It would be nice if anyone has any help they can offer.
Hi All, Can anyone tell me if there is any medication that can help with Lupus? I’m taking Hydroxychloroquine, + several pain killers. The Sjogrens is causing a lot of problems with my eyes, now Lupus is showing it’s ugly head. It would be nice if anyone has any help they can offer.
wakeham
in
NRAS
2 years ago
Zoladex Injections (2/6)
Hello,Just wanted to share my experience and ask if anyone has had similar. The gyne has put me on zoladex for diagnostic purposes. At around 3 weeks after my first injection I had a whole week pain free, despite during week 2 being so bad I was using a wheel chair. It was such a relief as I've had such
Hello,Just wanted to share my experience and ask if anyone has had similar. The gyne has put me on zoladex for diagnostic purposes. At around 3 weeks after my first injection I had a whole week pain free, despite during week 2 being so bad I was using a wheel chair. It was such a relief as I've had such
Bluehusky96
in
Endometriosis UK
2 years ago
No Prednisone, is it dangerous?
Going of prednisone and I was at12mg for awhile. Then suddenly there was a mixup at the pharmacy and now I've gone 2mg a day and now I have no pred. at all, and the drs won't call back with refills. Is it dangerous to go without pred for a few days?? I have been doing very well without too much pain
Going of prednisone and I was at12mg for awhile. Then suddenly there was a mixup at the pharmacy and now I've gone 2mg a day and now I have no pred. at all, and the drs won't call back with refills. Is it dangerous to go without pred for a few days?? I have been doing very well without too much pain
Trevgrrl
in
PMRGCAuk
2 years ago
off pred…. Update
good morning all. I have now been ‘off’ pred for 6 weeks. It’s been a bumpy ride. I started to have pain in my knees and thighs, which made walking and exercise difficult( never had this before). I took pain killers and reminded myself that the HPA triangle may not be up to speed. I started hydrotherapy
good morning all. I have now been ‘off’ pred for 6 weeks. It’s been a bumpy ride. I started to have pain in my knees and thighs, which made walking and exercise difficult( never had this before). I took pain killers and reminded myself that the HPA triangle may not be up to speed. I started hydrotherapy
Alazarin
in
PMRGCAuk
2 years ago
Yet more scans, and still stable.
I think I let you all know somewhere here, that I may have to change treatments, due to my Cancer markers rising all the time. I’m feeling more and more pain. Getting more and more tired. But they can’t see anything changing on my scans. so I will remain on Anastrozole and Ibrance for now. This is both
I think I let you all know somewhere here, that I may have to change treatments, due to my Cancer markers rising all the time. I’m feeling more and more pain. Getting more and more tired. But they can’t see anything changing on my scans. so I will remain on Anastrozole and Ibrance for now. This is both
Timtam56
in
SHARE Metastatic Breast Cancer
2 years ago
Cannabis For Pain Relief? Review of 20 Studies Provides Sobering Results
This was unexpected. I thought it would at least be useful for hospice purposes. Cannabis For Pain Relief? Review of 20 Studies Provides Sobering Results : ScienceAlert https://www.sciencealert.com/cannabis-for-pain-relief-review-of-20-studies-provides-sobering-results Our study, published in the
This was unexpected. I thought it would at least be useful for hospice purposes. Cannabis For Pain Relief? Review of 20 Studies Provides Sobering Results : ScienceAlert https://www.sciencealert.com/cannabis-for-pain-relief-review-of-20-studies-provides-sobering-results Our study, published in the
cesces
in
Advanced Prostate Cancer
2 years ago
Newbie - confused and needing advice
I'm desperately confused and frightened, and looking for advice. Probably quite a long post coming up (sorry). I'm currently 42 and have been pregnant twice in ten years - once with my first boy naturally after three years TTC and again with my second son following an IVF cycle two years ago. I have
I'm desperately confused and frightened, and looking for advice. Probably quite a long post coming up (sorry). I'm currently 42 and have been pregnant twice in ten years - once with my first boy naturally after three years TTC and again with my second son following an IVF cycle two years ago. I have
Anonymoususername2
in
Endometriosis UK
2 years ago
Pain induced RLS?
Incidentally I am also on a three year waiting list to attend the
Pain
Management
Clinic. I take 8 Cocodamol a day and for my restless I take 1.50 or 1.75mg of Clonazepam. During the last few weeks my restless legs have been dreadful and have spent hours in the night out of bed.
Incidentally I am also on a three year waiting list to attend the
Pain
Management
Clinic. I take 8 Cocodamol a day and for my restless I take 1.50 or 1.75mg of Clonazepam. During the last few weeks my restless legs have been dreadful and have spent hours in the night out of bed.
NonnieJ
in
Restless Legs Syndrome
2 years ago
Severe pain in the neck
So in Oct last year I was told that the discs in my neck are pressing on my spinal cord which is causing me to loose sensation in my hands and I'm in constant severe pain , I was told I needed surgery as soon as it was possible but I'm still waiting, everytime I phone my surgeon's secretary I'm told
So in Oct last year I was told that the discs in my neck are pressing on my spinal cord which is causing me to loose sensation in my hands and I'm in constant severe pain , I was told I needed surgery as soon as it was possible but I'm still waiting, everytime I phone my surgeon's secretary I'm told
blaizemum
in
Pain Concern
2 years ago
Headaches
I’ve always suffered with headaches….For the past 8/9 months they’ve become worse and for the past 5/6 weeks they have become daily. I’ve visited my doctor who said I was overdosing on analgesic over the counter drugs and to stop taking them immediately, write a headache diary and she would call me
I’ve always suffered with headaches….For the past 8/9 months they’ve become worse and for the past 5/6 weeks they have become daily. I’ve visited my doctor who said I was overdosing on analgesic over the counter drugs and to stop taking them immediately, write a headache diary and she would call me
Cookie-
in
Fibromyalgia Action UK
2 years ago
Tims Run Clonakilty Marathon County Cork Ireland. My first marathon distance!
Yesterday was to be my first marathon. All went well apart from the weather where it rained continuously for a week. Unfortunately, it was cancelled on Thursday due to severe flooding and everyone was moved to half. There was an option to defer on Friday afternoon for next year, but I could not cancel
Yesterday was to be my first marathon. All went well apart from the weather where it rained continuously for a week. Unfortunately, it was cancelled on Thursday due to severe flooding and everyone was moved to half. There was an option to defer on Friday afternoon for next year, but I could not cancel
Freecloud
Marathon
in
Fun Beyond 10K & Race Support
2 years ago
Pain control
The Pain Clinic has suggested I take Tapentadol. I can't find anything about it on the internet. Has anybody taken this drug and could tell me about it.
The Pain Clinic has suggested I take Tapentadol. I can't find anything about it on the internet. Has anybody taken this drug and could tell me about it.
AML80
in
Pain Concern
2 years ago
The fine hospital scheduling
The title on the email is re: surgery Dec. 7th, 2022. So I open the attachment, It is for December 22nd, 2022. I will call on Monday to see if the Doc is lit on Egg Nog! He is only getting paid $420 per toe to fuse 3 of them! (hammer toe). Either way, does anyone know how Egg Nog goes with pain pills
The title on the email is re: surgery Dec. 7th, 2022. So I open the attachment, It is for December 22nd, 2022. I will call on Monday to see if the Doc is lit on Egg Nog! He is only getting paid $420 per toe to fuse 3 of them! (hammer toe). Either way, does anyone know how Egg Nog goes with pain pills
jorrell
in
My MSAA Community
2 years ago
some advice please cause no idea is this normal
Diagnosed endometriosis by laparscopy in 2018 and gone through decapeptyl injections twice,mini pill and now on
pain
management
. I'm 44 and yet to enjoy menopause. Anyone else experience this?
Diagnosed endometriosis by laparscopy in 2018 and gone through decapeptyl injections twice,mini pill and now on
pain
management
. I'm 44 and yet to enjoy menopause. Anyone else experience this?
Escapologygirl
in
Endometriosis UK
2 years ago
Abdominal pain and now high amylase?
My partner already has family history. Now along with abdominal pain, he also has high amylase. I am not sure if amylase is an indicator of pancreatic cancer or not?
My partner already has family history. Now along with abdominal pain, he also has high amylase. I am not sure if amylase is an indicator of pancreatic cancer or not?
worried8
in
Pancreatic Cancer Action
2 years ago
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