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Wish I hadn’t got Fibro diagnosis. Doctors won’t listen now
I’ve had back trouble since my early twenties. I’m in my 50s now. From time to time I put my back out. I usually get stronger painkillers for a week or so until my back rights itself. Now I have a fibromyalgia diagnosis doctor will not give me anything at all. I’m stuck in bed. Can’t move can’t sleep
I’ve had back trouble since my early twenties. I’m in my 50s now. From time to time I put my back out. I usually get stronger painkillers for a week or so until my back rights itself. Now I have a fibromyalgia diagnosis doctor will not give me anything at all. I’m stuck in bed. Can’t move can’t sleep
Brigga
in
Fibromyalgia Action UK
9 months ago
Appointment Update
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Mitziecat
in
Glaucoma UK
3 months ago
disinhibition?
my son had a head injury 25 years ago .. has struggled since with work, relationships , mental health issues though outwardly to the world seems unaffected. In the early years alcohol was an escape route for him and he lost many friends and got himself in difficult situations … because he said outrageous
my son had a head injury 25 years ago .. has struggled since with work, relationships , mental health issues though outwardly to the world seems unaffected. In the early years alcohol was an escape route for him and he lost many friends and got himself in difficult situations … because he said outrageous
Mummily
in
Headway
5 months ago
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When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
5 months ago
Eye pressure advice
Hello again, I’ve not posted for a while thank goodness! But I have a quick query that I would like some advice on. I had my 3 month follow up check on Friday. November 2023 Stopped Cosopt a month before appointment pressure’s back up to 29 and 36. Back on
Hello again, I’ve not posted for a while thank goodness! But I have a quick query that I would like some advice on. I had my 3 month follow up check on Friday. November 2023 Stopped Cosopt a month before appointment pressure’s back up to 29 and 36. Back on
KBIOW
in
Glaucoma UK
5 months ago
Irritation from eye drops
I've had glaucoma for many years and always insist on preservative free drops to reduce pressure. Recently my eyes are constantly irritating although I use preservative free moisturising drops. Has anyone else had problems with Trusopt or Fixapost after using them for some time?
I've had glaucoma for many years and always insist on preservative free drops to reduce pressure. Recently my eyes are constantly irritating although I use preservative free moisturising drops. Has anyone else had problems with Trusopt or Fixapost after using them for some time?
Tequilasunrise
in
Glaucoma UK
5 months ago
Newly diagnosed PMR
Hello everyone, I was diagnosed with PMR as recently as Friday 20th October 2 days after my 58th birthday. My symptoms started in July with neck pain which quickly spread till I was in so much pain, I couldn't get up the stairs without a handrail. My Inflammation levels in August were 16 which is why
Hello everyone, I was diagnosed with PMR as recently as Friday 20th October 2 days after my 58th birthday. My symptoms started in July with neck pain which quickly spread till I was in so much pain, I couldn't get up the stairs without a handrail. My Inflammation levels in August were 16 which is why
MalloryMoss
in
PMRGCAuk
9 months ago
Zapain analgesic
Hi I have recently managed to stop my pred after decreasing by 1mg every couple of months and finally by 0.5 -0mg. This took me about a year I would say down from 9mg. My question is regarding Zapain 30/500 … I have been getting stiffness and pains in all my muscles but I don’t know if it is the polymyalgia
Hi I have recently managed to stop my pred after decreasing by 1mg every couple of months and finally by 0.5 -0mg. This took me about a year I would say down from 9mg. My question is regarding Zapain 30/500 … I have been getting stiffness and pains in all my muscles but I don’t know if it is the polymyalgia
Tayzee
in
PMRGCAuk
9 months ago
advice
Hi all I’m new here. I’m really struggling and don’t know what to do. I had a hysterectomy 10 years ago at the age of 28 due to severe endometriosis and multiple surgeries. Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
Hi all I’m new here. I’m really struggling and don’t know what to do. I had a hysterectomy 10 years ago at the age of 28 due to severe endometriosis and multiple surgeries. Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
Hidden
in
Endometriosis UK
9 months ago
Weird
I'm watching an old movie. On the tv it's night and there's diesel motor running and instantly I smell diesel fumes. 40 years ago I worked in the oilfields and often worked the night-shift loading and unloading oil pipe to be transported to cargo boats. The smell of diesel exhaust has remained
I'm watching an old movie. On the tv it's night and there's diesel motor running and instantly I smell diesel fumes. 40 years ago I worked in the oilfields and often worked the night-shift loading and unloading oil pipe to be transported to cargo boats. The smell of diesel exhaust has remained
kaypeeoh
in
Cure Parkinson's
5 months ago
Do I have glaucoma or cataracts?
I wake up with blurry eyes and I see halo around the lights.After using artificial tears my eyes has comeback to normal.Do I have glaucoma or cataracts? I'm just 17
I wake up with blurry eyes and I see halo around the lights.After using artificial tears my eyes has comeback to normal.Do I have glaucoma or cataracts? I'm just 17
Our-poor-guys
in
Glaucoma UK
5 months ago
PMR UPDATE
Just get you up to speed. I found that 15mg of pred was relieving pain I had been experiencing for a year. I did not believe it was PMR because it presented differently then the last time. The pain is not bilateral. But my inflamation marks have been high for a long time. The relief has been so amazing
Just get you up to speed. I found that 15mg of pred was relieving pain I had been experiencing for a year. I did not believe it was PMR because it presented differently then the last time. The pain is not bilateral. But my inflamation marks have been high for a long time. The relief has been so amazing
Amkoffee
in
PMRGCAuk
9 months ago
Vibrating Sensation
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
AlphaWolf5195
in
Fibromyalgia Action UK
9 months ago
Meningitis long-term symptoms
My son 28 years old was recently diagnosed with coccidioidal meningitis, a fungal form of the disease. He is currently on antifungal drugs and had a shunt installed to control intracranial pressure. He is currently at home recovering. He has double vision, has some balance problems, and has memory
My son 28 years old was recently diagnosed with coccidioidal meningitis, a fungal form of the disease. He is currently on antifungal drugs and had a shunt installed to control intracranial pressure. He is currently at home recovering. He has double vision, has some balance problems, and has memory
jgciii_Folsom_LA
in
Meningitis Now
5 months ago
4.10 a.m. and up again!
I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really
I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really
Danni54
in
Restless Legs Syndrome
9 months ago
eyesight
hi there my son who had a brain injury 4 years ago is now saying he can’t see the letters on the tv screen so I took him to the optician for an eye test they said his eyesight has not changed scince the last appointment so he still doesn’t need glasses I said well can I just buy a cheap pair of distance
hi there my son who had a brain injury 4 years ago is now saying he can’t see the letters on the tv screen so I took him to the optician for an eye test they said his eyesight has not changed scince the last appointment so he still doesn’t need glasses I said well can I just buy a cheap pair of distance
jokeja
in
Headway
5 months ago
headache, throbbing, eye pain & rolling
Hello All, I am new here. I would appreciate advice please. Thanks for reading this. I was diagnosed with high eye pressure/glaucoma on 18/03/2022. My eye pressure was high then because I was on a high dose of Prednisolone. I thought it was steroid induced pressure and it would go away when my
Hello All, I am new here. I would appreciate advice please. Thanks for reading this. I was diagnosed with high eye pressure/glaucoma on 18/03/2022. My eye pressure was high then because I was on a high dose of Prednisolone. I thought it was steroid induced pressure and it would go away when my
softekcom
in
Glaucoma UK
5 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
5 months ago
Wet AMD and Dry AMD
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
wanttosee
in
Macular Society
5 months ago
Home pressure monitor to hire?
Hi all,So 17 months after my trab surgery after everything has been stable, suddenly I'm getting frequent terrible headaches. My local optician tested my pressure for me but by the time I had the appointment the headache had subsided. The pressure was raised by 5 points so my hunch is it was on its way
Hi all,So 17 months after my trab surgery after everything has been stable, suddenly I'm getting frequent terrible headaches. My local optician tested my pressure for me but by the time I had the appointment the headache had subsided. The pressure was raised by 5 points so my hunch is it was on its way
Bonniecat7
in
Glaucoma UK
5 months ago
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