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Endo surgery (stage 4) advice!
Hi everyone! :) I got diagnosed with stage 4 endometriosis by MRI 3 years ago and have been managing with running the pill through, and then just codiene since stopping the pill. It's deeply infiltrating in my bowel and I also have a large endometrioma on my ovary. They offered me big scary surgery
Hi everyone! :) I got diagnosed with stage 4 endometriosis by MRI 3 years ago and have been managing with running the pill through, and then just codiene since stopping the pill. It's deeply infiltrating in my bowel and I also have a large endometrioma on my ovary. They offered me big scary surgery
elles3
in
Endometriosis UK
3 years ago
Any advice or ideas
Ive had a rocky journey since i was a teenager i was diagnosed with hpv and cervical cancer at the age of 18 had a leep procedure done was on medication radiation pills was given until may of 2015 to live by the grace of god i was on remission in may of 2015 due to a miracle happened and i found out
Ive had a rocky journey since i was a teenager i was diagnosed with hpv and cervical cancer at the age of 18 had a leep procedure done was on medication radiation pills was given until may of 2015 to live by the grace of god i was on remission in may of 2015 due to a miracle happened and i found out
Baby_Snaer
in
LUPUS UK
3 years ago
So Scared
Hi, I have recently been diagnosed with radiation enteritis and I am too scared to eat. The doctor told me I need a 3rd stoma and he wouldn’t listen to my concerns. He discharged me because I wouldn’t have a 3rd stoma and refused to give me any diet advice or refer me to a nutritionist. I worry if my
Hi, I have recently been diagnosed with radiation enteritis and I am too scared to eat. The doctor told me I need a 3rd stoma and he wouldn’t listen to my concerns. He discharged me because I wouldn’t have a 3rd stoma and refused to give me any diet advice or refer me to a nutritionist. I worry if my
CrochetDancer
in
Pelvic Radiation Disease Association
3 years ago
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the dreaded ca125 check......
It’s now 4 years since my initial diagnosis of stage 3b PPC/Ovarian cancer. I’ve been suffering from stomach pains since my stomach reversal in September 2019, and recently had a colonoscopy which was normal and am now awaiting a contrast follow through X-ray. As I’m sure you can imagine, this increases
It’s now 4 years since my initial diagnosis of stage 3b PPC/Ovarian cancer. I’ve been suffering from stomach pains since my stomach reversal in September 2019, and recently had a colonoscopy which was normal and am now awaiting a contrast follow through X-ray. As I’m sure you can imagine, this increases
Eriksendi
in
My Ovacome
3 years ago
Recordings of previous Ovacome online events
Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of some of our webinars available to watch at https://www.ovacome.org.uk/webinar-recordings The recordings available are: Managing stress and anxiety
Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of some of our webinars available to watch at https://www.ovacome.org.uk/webinar-recordings The recordings available are: Managing stress and anxiety
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Full Hysterectomy with Ovary Removal and Stoma
Hi everyone, I was diagnosed with Endo after failed fertility treatment three years ago at the age of 39. After numerous scans, laparoscopy, MRI and sigmoidoscopy, the option suggested is a full hysterectomy with ovary removal and sigmoid colon resection due to scar tissue thickening a portion of it.
Hi everyone, I was diagnosed with Endo after failed fertility treatment three years ago at the age of 39. After numerous scans, laparoscopy, MRI and sigmoidoscopy, the option suggested is a full hysterectomy with ovary removal and sigmoid colon resection due to scar tissue thickening a portion of it.
Eddax19
in
Endometriosis UK
3 years ago
Husband emergency ileostomy, mucus fistula stoma and anus rectal stump
Hi within 4 weeks my 49 year old hubby took ulcerative colitis, had lifesaving removal of whole colon and now has ileostomy, mucus fistula stoma and left with rectal stump. Now 3 weeks post surgery. Shock for us all. Doing well with ileostomy bag christened Mabel. Hates Thor his mucus fistula... does
Hi within 4 weeks my 49 year old hubby took ulcerative colitis, had lifesaving removal of whole colon and now has ileostomy, mucus fistula stoma and left with rectal stump. Now 3 weeks post surgery. Shock for us all. Doing well with ileostomy bag christened Mabel. Hates Thor his mucus fistula... does
Tracie1972
in
Living with a Stoma
3 years ago
Dienogest & Mirena
Hi ladies I'm after a bit of advice. I have stage 4 endo already had loads of surgeries ; bowel resection, uretic stents, stoma etc. The only further surgery the hospital will do is a total clearance and as I'm only 34 they won't consider that and I understand that the risk of doing so are quite high
Hi ladies I'm after a bit of advice. I have stage 4 endo already had loads of surgeries ; bowel resection, uretic stents, stoma etc. The only further surgery the hospital will do is a total clearance and as I'm only 34 they won't consider that and I understand that the risk of doing so are quite high
katie26
in
Endometriosis UK
3 years ago
Online groups, talks and workshops with Ovacome this week
Hello All, This is to let you know about the Ovacome online events taking place this week. Coventry ovarian cancer support group - Monday 12 April, 1.30-3.30pm https://www.ovacome.org.uk/Event/coventry-support-group London ovarian cancer support group - Monday 12 April 3.30-5pm https://www.ovacome.org.uk
Hello All, This is to let you know about the Ovacome online events taking place this week. Coventry ovarian cancer support group - Monday 12 April, 1.30-3.30pm https://www.ovacome.org.uk/Event/coventry-support-group London ovarian cancer support group - Monday 12 April 3.30-5pm https://www.ovacome.org.uk
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Recordings of previous Ovacome online events
Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of some of our webinars available to watch at https://www.ovacome.org.uk/webinar-recordings The recordings available are: Managing stress and anxiety
Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of some of our webinars available to watch at https://www.ovacome.org.uk/webinar-recordings The recordings available are: Managing stress and anxiety
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Some hope and positivity!
The last time (and first) time I posted here I had just been diagnosed with Grade 4 OV. Im 4 chemo rounds in with 5th planned before surgery in late May. Responding well to the chemo although had to have an emergency op after the first so now have a stoma. I had a very lengthy consult with the surgeon
The last time (and first) time I posted here I had just been diagnosed with Grade 4 OV. Im 4 chemo rounds in with 5th planned before surgery in late May. Responding well to the chemo although had to have an emergency op after the first so now have a stoma. I had a very lengthy consult with the surgeon
suzannebirch
in
My Ovacome
3 years ago
Ileostomy questions
I was wondering if anyone could answer any questions that I have. Nothing too serious just some random questions. I have been told by the surgeons that I might be having ostomy surgery. That is all I was told, I have done a lot of research but I am currently waiting on a call from my Gastroenterologist
I was wondering if anyone could answer any questions that I have. Nothing too serious just some random questions. I have been told by the surgeons that I might be having ostomy surgery. That is all I was told, I have done a lot of research but I am currently waiting on a call from my Gastroenterologist
Clo23
in
Living with a Stoma
3 years ago
Had it for 25 years now experiencing problems
Pain when poo and pain on left ,right side of stoma constipated generally a lot and no poo for a while including weird sounds coming from stomach and even after taking laxatives also pain after eating why.
Pain when poo and pain on left ,right side of stoma constipated generally a lot and no poo for a while including weird sounds coming from stomach and even after taking laxatives also pain after eating why.
Hibb
in
Living with a Stoma
3 years ago
Is hearing that you are receiving treatment a reason to be positive?
Hi everyone, well I am really struggling with this emotional rollercoaster. Yesterday my consultant confirmed my cancer looks stage 3 and that I will have treatment. I have to have a biopsy first to see what treatment it will be. She talked about possible outcomes of surgery, like a stoma and removal
Hi everyone, well I am really struggling with this emotional rollercoaster. Yesterday my consultant confirmed my cancer looks stage 3 and that I will have treatment. I have to have a biopsy first to see what treatment it will be. She talked about possible outcomes of surgery, like a stoma and removal
TR77
in
My Ovacome
3 years ago
Online groups, talks and workshops with Ovacome this week
Hello All This is to let you know about the Ovacome online events taking place this week. End of life matters support group - Tuesday 16 March, 12-1.30pm https://www.ovacome.org.uk/Event/end-of-life-matters Staying Connected in Wales: Ovarian cancer treatment and genetic testing in Wales - Tuesday
Hello All This is to let you know about the Ovacome online events taking place this week. End of life matters support group - Tuesday 16 March, 12-1.30pm https://www.ovacome.org.uk/Event/end-of-life-matters Staying Connected in Wales: Ovarian cancer treatment and genetic testing in Wales - Tuesday
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Introduction to the Community
Hi, I am a 68 year with AT and have greatly affected by Covid 19 Pandemic. In addition I have a Stoma Bag due to having surgery on my Colon.
Hi, I am a 68 year with AT and have greatly affected by Covid 19 Pandemic. In addition I have a Stoma Bag due to having surgery on my Colon.
patrickturner63
in
Weight Loss Support
3 years ago
Is Avastin actually worth the terrible side effects?
I’m on 4 of 6 first line chemo for stage 3b/4a HG OC. My doc offered me the option of starting Avastin before the last one & I did (15 months). Since then I’ve had terrible bowel probs (I had a stoma reversal before my 3rd chemo) & really awful aches in legs, bum & feet. I can’t clear bowels properly
I’m on 4 of 6 first line chemo for stage 3b/4a HG OC. My doc offered me the option of starting Avastin before the last one & I did (15 months). Since then I’ve had terrible bowel probs (I had a stoma reversal before my 3rd chemo) & really awful aches in legs, bum & feet. I can’t clear bowels properly
Ella1717
in
My Ovacome
3 years ago
Outcome
Hi guys I went in and had surgery mon I am high grade serous stage 3c I was very nervous especially about having a stoma bag my gynecologist oncologist came to see me after surgery he said everything went really well very little there dead tissue which he removed when he went in he told me I was now
Hi guys I went in and had surgery mon I am high grade serous stage 3c I was very nervous especially about having a stoma bag my gynecologist oncologist came to see me after surgery he said everything went really well very little there dead tissue which he removed when he went in he told me I was now
Clifden1
in
My Ovacome
3 years ago
Recordings of previous Ovacome online events
Hello, everyone You can watch the recordings of some of our previous webinars at https://www.ovacome.org.uk/webinar-recordings The available recordings are: Managing stress and anxiety during COVID-19 Managing anxiety after treatment ends and coping with the fear of recurrence Managing menopause
Hello, everyone You can watch the recordings of some of our previous webinars at https://www.ovacome.org.uk/webinar-recordings The available recordings are: Managing stress and anxiety during COVID-19 Managing anxiety after treatment ends and coping with the fear of recurrence Managing menopause
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Anxious 😟
Hi ladies heading in tomorrow for surgery Monday so nervous and scared trying to put on a brave front its not knowing whats a head that frightens me hoping I won't have a stoma worrying it might be worse when they go in but hoping for the best keeping busy stocking up on groceries organising kids I think
Hi ladies heading in tomorrow for surgery Monday so nervous and scared trying to put on a brave front its not knowing whats a head that frightens me hoping I won't have a stoma worrying it might be worse when they go in but hoping for the best keeping busy stocking up on groceries organising kids I think
Clifden1
in
My Ovacome
3 years ago
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