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Post Liver Transplant
I am worried about how my hands, body and voice always shaky and is been 5 weeks after my operation. I get dizzy when I am standing at one place for long. I would like to know from someone who has been in my position if I honestly will go back to being the same. Like going gym, lifting weight, playing
I am worried about how my hands, body and voice always shaky and is been 5 weeks after my operation. I get dizzy when I am standing at one place for long. I would like to know from someone who has been in my position if I honestly will go back to being the same. Like going gym, lifting weight, playing
Kamx
in
British Liver Trust
2 years ago
Hot Topic: Breaking Down New Medicare Coverage for Immunosuppressive Drugs
The Medicare coverage for immunosuppressive drugs for kidney transplant patients has recently been expanded. But what does this new benefit cover and who is eligible? Tune in to our latest podcast episode to learn more. https://www.podbean.com/ew/pb-gbqrp-12f3a86
The Medicare coverage for immunosuppressive drugs for kidney transplant patients has recently been expanded. But what does this new benefit cover and who is eligible? Tune in to our latest podcast episode to learn more. https://www.podbean.com/ew/pb-gbqrp-12f3a86
JackieJ_NKF
Partner
in
Kidney Transplant
2 years ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
Baron1
in
Cure Parkinson's
1 year ago
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REFERRED
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
lonmallin50
in
British Liver Trust
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
Creatinine climbing, change in bp meds
My husband had his kidney transplant 14 years ago. His creatinine started climbing in sept and is now 4.66. He has swelling in his legs and feet He was taken off of Losartin and placed on hydralazine. He also takes amlodipine and atenolol. He also takes simvistatin. Do any of you have any problems
My husband had his kidney transplant 14 years ago. His creatinine started climbing in sept and is now 4.66. He has swelling in his legs and feet He was taken off of Losartin and placed on hydralazine. He also takes amlodipine and atenolol. He also takes simvistatin. Do any of you have any problems
dvassey
in
Kidney Disease
2 years ago
Living with dialysis
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
bubbaboo2
in
Kidney Dialysis
2 years ago
Stage 3b and diabetic
Hi so I'm 38 and recently told I'm stage 3b my reading was 36 and now 33 just 4 months later. My specialist told me I should get kidney and pancreas transplant. Any advice ? Wisdom? General info ? Thanks
Hi so I'm 38 and recently told I'm stage 3b my reading was 36 and now 33 just 4 months later. My specialist told me I should get kidney and pancreas transplant. Any advice ? Wisdom? General info ? Thanks
mentaljay83
in
Kidney Disease
2 years ago
Alcoholic liver disease is a strong predictor of colorectal polyps in liver transplant recipients
In January this year, following a routine blood test by my GP. It highlighted low ferritin levels. After having completed a Fit-Test (faecal haemoglobin test), blood was found in the sample. I later went and had a CT Colonography. This highlighted four polyps in my colon. After a lot of messing around
In January this year, following a routine blood test by my GP. It highlighted low ferritin levels. After having completed a Fit-Test (faecal haemoglobin test), blood was found in the sample. I later went and had a CT Colonography. This highlighted four polyps in my colon. After a lot of messing around
Richard-Allen
in
British Liver Trust
2 years ago
Thinking of having a baby after 22 years with kidney can I get some advice plzzz
Hi everyone hope u guys are doing well , anywayz I have been with my kidney transplant for 22 years and I'm 34 years old and I'm finally ready to have a baby I know why now but I had been afraid even thought is something that I always wanted but when I was really young my brother told me that I would
Hi everyone hope u guys are doing well , anywayz I have been with my kidney transplant for 22 years and I'm 34 years old and I'm finally ready to have a baby I know why now but I had been afraid even thought is something that I always wanted but when I was really young my brother told me that I would
jennifer24
in
Kidney Transplant
2 years ago
Back on the transplant list
Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too. We've all been doing regular testing and we must have caught Dad's covid very early before he could unwittingly pass it on.
Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too. We've all been doing regular testing and we must have caught Dad's covid very early before he could unwittingly pass it on.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
Severe gastric problems- MMF?
I had my kidney transplant in June of 2021 and am currently taking 500mg cell-cept bid. I started to have stomach issues around the 4 month mark, and they have progressed to the point where my daily activities, sleep, and quality of life is impacted. Up until this point, I have felt terrific! I
I had my kidney transplant in June of 2021 and am currently taking 500mg cell-cept bid. I started to have stomach issues around the 4 month mark, and they have progressed to the point where my daily activities, sleep, and quality of life is impacted. Up until this point, I have felt terrific! I
6821green
in
Kidney Transplant
2 years ago
Transplant Surgeon
Well this Monday will take me closer to knowing if I’m to be accepted for transplant. Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable. I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a
Well this Monday will take me closer to knowing if I’m to be accepted for transplant. Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable. I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a
Northernsaul
in
Lung Conditions Community Forum
2 years ago
Antivirals o
Still not doing a lot , mainly outside as I have RA among other things on Methotrexate etc, but mainly because of husband is a Kidney transplant patient with Diabetes etc and his hospital checked the vaccines have not worked and still fighting for Evusheld ! Anyone with RA etc how did yiu go on with
Still not doing a lot , mainly outside as I have RA among other things on Methotrexate etc, but mainly because of husband is a Kidney transplant patient with Diabetes etc and his hospital checked the vaccines have not worked and still fighting for Evusheld ! Anyone with RA etc how did yiu go on with
trace58
in
NRAS
2 years ago
Check out the new After Transplant program on the Kidney Learning Center!
Want to know more about life after a kidney transplant? Check out NKF’s free online, self-paced After Transplant program on the Kidney Learning Center! Learn about what to expect after receiving a transplant, including medications, rejection, mental health, and practical considerations for recipients
Want to know more about life after a kidney transplant? Check out NKF’s free online, self-paced After Transplant program on the Kidney Learning Center! Learn about what to expect after receiving a transplant, including medications, rejection, mental health, and practical considerations for recipients
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
You are what you breath - but what you breath varies...
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
Timberman
in
Lung Conditions Community Forum
1 year ago
liver transplant
i might be getting referred to the QE hopspital soon for transplant review my brother come to see me yesterday and offered 1/2 of his liver which was quite a shock he said he would take no for a answer but he got young kids and would not to live with myself if some thing went wrong with him how successful
i might be getting referred to the QE hopspital soon for transplant review my brother come to see me yesterday and offered 1/2 of his liver which was quite a shock he said he would take no for a answer but he got young kids and would not to live with myself if some thing went wrong with him how successful
lonmallin50
in
British Liver Trust
2 years ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
chronic fatigue after transplant?
hi there, New to the group and new liver just under 4 months ago. Generally all is well with the bloods and new liver but experiencing severe fatigue for the last month or so. Had cortisone test and apparently was fine. Litterally want to go back to bed for the day when I wake up and doesn’t improve
hi there, New to the group and new liver just under 4 months ago. Generally all is well with the bloods and new liver but experiencing severe fatigue for the last month or so. Had cortisone test and apparently was fine. Litterally want to go back to bed for the day when I wake up and doesn’t improve
Cw25
in
British Liver Trust
2 years ago
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