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Lymparza not working
hi..my husband was initially diagnosed stage 4b in 2020. He did well on chemo, and lupron. He is also on xgeva. He then went on zytiga for about 7 months before it started failing. He did get accepted in the luteciun trial at Penn on control arm. He did very well on Xtandi but was ended this past Aug
hi..my husband was initially diagnosed stage 4b in 2020. He did well on chemo, and lupron. He is also on xgeva. He then went on zytiga for about 7 months before it started failing. He did get accepted in the luteciun trial at Penn on control arm. He did very well on Xtandi but was ended this past Aug
Happy1985
in
Advanced Prostate Cancer
7 months ago
new diagnosis
Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have
Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have
Clairemc0974
in
The Roy Castle Lung Cancer Foundation
7 months ago
Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
7 months ago
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Blood in Urine
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Tonyliv
in
Advanced Prostate Cancer
7 months ago
Diagnosed with all the arrhythmias and a 40% ejection fraction and I'm a little confused about what's to come...
Hi, So (I'll try and keep a long story short) 8 years ago I was diagnosed with breast cancer, I had chemo, radiotherapy and surgery. 3 years ago I gave birth to my son and (in lock down) I'd walk for miles and miles with him in a sling. Around 2 years ago, while pregnant with my daughter, I got tired
Hi, So (I'll try and keep a long story short) 8 years ago I was diagnosed with breast cancer, I had chemo, radiotherapy and surgery. 3 years ago I gave birth to my son and (in lock down) I'd walk for miles and miles with him in a sling. Around 2 years ago, while pregnant with my daughter, I got tired
Alana84
in
British Heart Foundation
7 months ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
7 months ago
SMALL-CELL NEUROENDOCRINE CARCINOMA
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
gegan01
in
Prostate Cancer Network
7 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
7 months ago
AML hidac
I am a current AML patient having chemo treatment. Soon after Christmas, it will be my 3rd cycle of chemotherapy, it is my very first time having High dose Cytarabine, however at the first and second cycle I already had some chemo rashes and irritation on my face and my eye. I would like to know your
I am a current AML patient having chemo treatment. Soon after Christmas, it will be my 3rd cycle of chemotherapy, it is my very first time having High dose Cytarabine, however at the first and second cycle I already had some chemo rashes and irritation on my face and my eye. I would like to know your
Littleolive
in
Leukaemia Support
7 months ago
Phase 1 trial participation Nurix NX-1607
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
konichiwa12
in
Advanced Prostate Cancer
7 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
7 months ago
Finished Venetoclax, then Covid
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
Healmenow
in
CLL Support
7 months ago
First Treatment for Richter’s Today
I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL. Still shocked by the diagnosis as I continue to feel pretty good despite the swollen spleen, enlarging lymph modes and fatigue. It’s been a long
I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL. Still shocked by the diagnosis as I continue to feel pretty good despite the swollen spleen, enlarging lymph modes and fatigue. It’s been a long
ReneeSusan
in
CLL Support
1 month ago
Should I be worried?
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Vindicatrix
in
CLL Support
7 months ago
Run out of big pants
Hello ladies,long time since I posted, diagnosed 2014 high grade serous, chemo and surgery, more chemo after recurrence, 2ndry surgery London ( ended up with stoma) , More chemo every few years ,finished 5th lot of chemo this Sept. Also had blocked bowel and 2 major blood clots and still have picc line
Hello ladies,long time since I posted, diagnosed 2014 high grade serous, chemo and surgery, more chemo after recurrence, 2ndry surgery London ( ended up with stoma) , More chemo every few years ,finished 5th lot of chemo this Sept. Also had blocked bowel and 2 major blood clots and still have picc line
BigBern23
in
My Ovacome
7 months ago
GBM and Keto Diet - Urgent
My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if any of you know about the Keto Diet and how effective it might be in treating GBM. He has had CV (Awake Craniotomy), followed by chemotherapy and radiation therapy. Thank you
My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if any of you know about the Keto Diet and how effective it might be in treating GBM. He has had CV (Awake Craniotomy), followed by chemotherapy and radiation therapy. Thank you
Hermanito
in
Glioblastoma Support
7 months ago
Richters Transformation Update- Treatment
I met with the local oncologist today to do treatment plan for confirmed Richters. I will be admitted on Monday to start 5 days of DA EPOCH - R with Venetoclax for 10 days per cycle. The doctor said it will be a challenge but they will see how I tolerate it and adjust appropriately if I have any major
I met with the local oncologist today to do treatment plan for confirmed Richters. I will be admitted on Monday to start 5 days of DA EPOCH - R with Venetoclax for 10 days per cycle. The doctor said it will be a challenge but they will see how I tolerate it and adjust appropriately if I have any major
ReneeSusan
in
CLL Support
1 month ago
Update on neuroendocerine prostate cancer mets to liver.
As mentioned previously my husbands prostate cancer has now metastasised to his liver. He also has bone mets. He had 6 cycles of Etoposide and Carboplatin. This combination of chemo worked very well. As we are looking at getting Pluvicto for his bone mets we also organised an FDG scan. (As advised on
As mentioned previously my husbands prostate cancer has now metastasised to his liver. He also has bone mets. He had 6 cycles of Etoposide and Carboplatin. This combination of chemo worked very well. As we are looking at getting Pluvicto for his bone mets we also organised an FDG scan. (As advised on
Believeit
in
Advanced Prostate Cancer
7 months ago
Rickyfish56 "Introduction"
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
rickyfish56
in
Advanced Prostate Cancer
7 months ago
Curiosity: ChatGPT and my PET scan
Ok, take it as a curious/fun thing to ask chat gpt, not as a real medical consult. I have given my PET scan results (in Italian) to chat gpt, to see if they were in line with my oncologist's opinion. I asked it to read the results and tell me if they were very negative, negative, neutral, positive or
Ok, take it as a curious/fun thing to ask chat gpt, not as a real medical consult. I have given my PET scan results (in Italian) to chat gpt, to see if they were in line with my oncologist's opinion. I asked it to read the results and tell me if they were very negative, negative, neutral, positive or
Maxone73
in
Advanced Prostate Cancer
7 months ago
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