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Plaquenil and RA
Reply to Plaquenil. I took it for over 20 years. I believe it was the cause of my gastro (IBS) problems, I Had to go off because I failed my eye field of vision test. Consequently my gastric problems went away a few months after stopping the Plaquenil. I have also taken Enbrel, Humira, Remicade, Simponi
Reply to Plaquenil. I took it for over 20 years. I believe it was the cause of my gastro (IBS) problems, I Had to go off because I failed my eye field of vision test. Consequently my gastric problems went away a few months after stopping the Plaquenil. I have also taken Enbrel, Humira, Remicade, Simponi
padunnivan
in
NRAS
6 years ago
Question about enbrel
So finally got my prescription to enbrel injections. I scare little bit side effects. Share you experience, go this way or not? I have Ra 3 tears, was sulfasalazine and prednisolone. Not too much remission:( i dont know about enbrel, any advice helpful
So finally got my prescription to enbrel injections. I scare little bit side effects. Share you experience, go this way or not? I have Ra 3 tears, was sulfasalazine and prednisolone. Not too much remission:( i dont know about enbrel, any advice helpful
Anitasmith
in
NRAS
6 years ago
List of biologics.
Hi I’m looking for a full list of biologics that treat RA. So far I have: Actemra Cimzia Enbrel Humira Kineret Orencia Remicade Rituxan Simpsoni Am I missing any?
Hi I’m looking for a full list of biologics that treat RA. So far I have: Actemra Cimzia Enbrel Humira Kineret Orencia Remicade Rituxan Simpsoni Am I missing any?
Hobbits
in
NRAS
6 years ago
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Sudden knee pain
I was ok when I first got up this morning, but as soon as I got out of my chair after tea & toast, I've getting some serious pain in my right knee. I've had knee problems for years but nothing quite like this before. Both knees are swollen, the right being worse. Nothing unusual there but while not hot
I was ok when I first got up this morning, but as soon as I got out of my chair after tea & toast, I've getting some serious pain in my right knee. I've had knee problems for years but nothing quite like this before. Both knees are swollen, the right being worse. Nothing unusual there but while not hot
wishbone
in
NRAS
6 years ago
Anti CCP +
Hi all, Just curious about fellow patients with anti-ccp positive RA status. I have read that anti-ccp positive typically indicates more aggressive disease course and worse joint erosion. I started enbrel a few months ago and was feeling great, but now I seem to be back where I started. Today I’m in
Hi all, Just curious about fellow patients with anti-ccp positive RA status. I have read that anti-ccp positive typically indicates more aggressive disease course and worse joint erosion. I started enbrel a few months ago and was feeling great, but now I seem to be back where I started. Today I’m in
cshah
in
NRAS
6 years ago
Introduction
I have had psoriasis since age 7. I developed P. Arthritis 10 years ago. I’m on Enbrel but it seems like it less than directive than when I first started. I can’t be active like I want and if I’m in the same position for too long I have trouble moving at all. I have found that paying attention to diet
I have had psoriasis since age 7. I developed P. Arthritis 10 years ago. I’m on Enbrel but it seems like it less than directive than when I first started. I can’t be active like I want and if I’m in the same position for too long I have trouble moving at all. I have found that paying attention to diet
Kewan
in
Beyond Psoriasis
6 years ago
Biologics & pain relief
I’ve not had much luck with drugs made for RA. With MRX, for example, I got pneumonia and later read about asthma or lung issues being contraindicated for MTX. The RA doc finally confirmed this. Now I’m looking at biologics with higher, more serious side effects possible. What is the trade off? Do
I’ve not had much luck with drugs made for RA. With MRX, for example, I got pneumonia and later read about asthma or lung issues being contraindicated for MTX. The RA doc finally confirmed this. Now I’m looking at biologics with higher, more serious side effects possible. What is the trade off? Do
Wyaatch
in
NRAS
6 years ago
enbrel/ etenercept/benpali
I was on enbrel/etenercept for ten years and then it stopped working and I have now been through around 6/7 different biologics/anti tnfs and now I'm back to benpali which is enbrel with a different name made by a different manufacturer (Samsung ) I take it with methotrexate and it seemed to be working
I was on enbrel/etenercept for ten years and then it stopped working and I have now been through around 6/7 different biologics/anti tnfs and now I'm back to benpali which is enbrel with a different name made by a different manufacturer (Samsung ) I take it with methotrexate and it seemed to be working
theyintaeno
in
NRAS
6 years ago
Radio 4 programme today on biosimiliar drugs
I heard this rather positive programme stating way forward was for nhs to switch biologic drugs to biosimiliar drugs to save millions. I am afraid to say my experience of drug switching is very dangerous. My husband was on enbrel five for 5 years. He was then switched to Benepali within weeks his behaviour
I heard this rather positive programme stating way forward was for nhs to switch biologic drugs to biosimiliar drugs to save millions. I am afraid to say my experience of drug switching is very dangerous. My husband was on enbrel five for 5 years. He was then switched to Benepali within weeks his behaviour
Ginpin31
in
NRAS
6 years ago
Severe pain
I recently finished a steroid taper which my doctor provided me with because of severe pain. I finished it about a week ago and the pain immediately returned. Both knees swollen like softballs and strangely enough my right calf muscle is extremely sore and inflamed. It’s swollen all the way into my ankle
I recently finished a steroid taper which my doctor provided me with because of severe pain. I finished it about a week ago and the pain immediately returned. Both knees swollen like softballs and strangely enough my right calf muscle is extremely sore and inflamed. It’s swollen all the way into my ankle
Dmcquate88
in
NRAS
6 years ago
Mild symptoms vs drug side effects
I was diagnosed with RA in March. I've tried plaquenil and mtx. Had rotten side effects with both so rheumy has prescribed enbrel. My symptoms are mild. I'm not in pain. It's mostly stiffness and tiredness. Anyone out there with similar symptoms that decided not to take meds? Am worried about side effects
I was diagnosed with RA in March. I've tried plaquenil and mtx. Had rotten side effects with both so rheumy has prescribed enbrel. My symptoms are mild. I'm not in pain. It's mostly stiffness and tiredness. Anyone out there with similar symptoms that decided not to take meds? Am worried about side effects
aod75
in
NRAS
6 years ago
Feeling blue
Hi All At the same Rheumy appt I expressed my opinion that I was not sure if Benepali is working as well as Enbrel. My health authority changed over in March 18. I was assuming that she would offer me back enbrel, since we the patients weren’t given a choice, but informed by letter that we were going
Hi All At the same Rheumy appt I expressed my opinion that I was not sure if Benepali is working as well as Enbrel. My health authority changed over in March 18. I was assuming that she would offer me back enbrel, since we the patients weren’t given a choice, but informed by letter that we were going
sciqueen
in
NRAS
6 years ago
Biologic drugs
Hi - hoping to find some more information from those of you who are further down this journey please I Now know that I’m being offered Ereli - the biosimilar for Enbrel. Various blood tests to complete and all seemed as straightforward as RA can be - then was told of the side effect of ‘possible
Hi - hoping to find some more information from those of you who are further down this journey please I Now know that I’m being offered Ereli - the biosimilar for Enbrel. Various blood tests to complete and all seemed as straightforward as RA can be - then was told of the side effect of ‘possible
Hidden
in
NRAS
6 years ago
What other meds can I try?
I’m currently taking Actemra and Otrexup both by injection once a week and have been doing so for about 2 years now. I have been having severe pain and extreme swelling in both of my knees for the past two months ever since I had to discontinue temporarily due to having a full right hip replacement as
I’m currently taking Actemra and Otrexup both by injection once a week and have been doing so for about 2 years now. I have been having severe pain and extreme swelling in both of my knees for the past two months ever since I had to discontinue temporarily due to having a full right hip replacement as
Dmcquate88
in
NRAS
6 years ago
Goodbye Benepali!
Well after 14 weeks, the last 8 being absolutely dreadful, finally got the news today that I'm being switched back to Enbrel 😀. It took a lot of pestering, a couple of hospitaI visits and a depo injection but finally got there. Rang my delivery company to make sure that they have the new prescription
Well after 14 weeks, the last 8 being absolutely dreadful, finally got the news today that I'm being switched back to Enbrel 😀. It took a lot of pestering, a couple of hospitaI visits and a depo injection but finally got there. Rang my delivery company to make sure that they have the new prescription
Maggsie
in
NRAS
6 years ago
Anyone else have no support or help at home?
Hi I’m new here. Have had RA for 20 years plus more if you count undiagnosed. Have tried Methatrexate, Sulph, Cimzia, Enbrel, too many steroid injections to remember. Now in Abatercept infusions and started Leflunomide 2 weeks ago. I feel like I have a permanent hangover and my joints are so sore. I
Hi I’m new here. Have had RA for 20 years plus more if you count undiagnosed. Have tried Methatrexate, Sulph, Cimzia, Enbrel, too many steroid injections to remember. Now in Abatercept infusions and started Leflunomide 2 weeks ago. I feel like I have a permanent hangover and my joints are so sore. I
sjhewitt42
in
NRAS
6 years ago
Anyone been refused switching back to Enbrel?
Has anyone been refused when they have asked to go back to Enbrel? Well, I've finally bitten the bullet and asked to go back to Enbrel injections. I've had 14 weeks on Benepali and have gone slowly downhill to the point where I'm worse than when I started Enbrel 14 years ago. I get very little relief
Has anyone been refused when they have asked to go back to Enbrel? Well, I've finally bitten the bullet and asked to go back to Enbrel injections. I've had 14 weeks on Benepali and have gone slowly downhill to the point where I'm worse than when I started Enbrel 14 years ago. I get very little relief
Maggsie
in
NRAS
6 years ago
Benepali short lasting effectiveness?
Hi All, I've been on Benepali for 12 weeks now after 13 very successful years on Enbrel and am finding that it works well for 4-5 days post injection but then I have a rapid decline for 2 days before the next one is due. I didn't experience this with Enbrel, in fact I sometimes could stretch to 10-12
Hi All, I've been on Benepali for 12 weeks now after 13 very successful years on Enbrel and am finding that it works well for 4-5 days post injection but then I have a rapid decline for 2 days before the next one is due. I didn't experience this with Enbrel, in fact I sometimes could stretch to 10-12
Maggsie
in
NRAS
6 years ago
Enbrel injection rash days later
Hello, my name is Lisa and I am new to this site. I have had RA for about 8 years. I have been off of Enbrel (previously took it for 6 years with great results) due to health insurance not covering it. But, my doctor is fighting it, so I just started my Enbrel shot a few days ago. No issue, but woke
Hello, my name is Lisa and I am new to this site. I have had RA for about 8 years. I have been off of Enbrel (previously took it for 6 years with great results) due to health insurance not covering it. But, my doctor is fighting it, so I just started my Enbrel shot a few days ago. No issue, but woke
Sugarboo75
in
NRAS
6 years ago
Benepali
I was on enbrel for a couple of years and was changed to benepali. It made feel really ill and I had all sorts of things. Skin went really dry, nails didn't grow, palpitations all sorts and was told it was the carrier within the drug that was making me weird. Was then put back on enbrel but it was a
I was on enbrel for a couple of years and was changed to benepali. It made feel really ill and I had all sorts of things. Skin went really dry, nails didn't grow, palpitations all sorts and was told it was the carrier within the drug that was making me weird. Was then put back on enbrel but it was a
Anndan
in
NRAS
6 years ago
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