At the same Rheumy appt I expressed my opinion that I was not sure if Benepali is working as well as Enbrel. My health authority changed over in March 18. I was assuming that she would offer me back enbrel, since we the patients weren’t given a choice, but informed by letter that we were going to now be put onto a biosimilar. Instead she offered Humira. Wasn’t keen as I’ve heard it stings like a b***h, so she put me back onto injectable mtx. Bloods were fairly good, but did show a slight increase in inflammation. Can’t take more than 12.5 mg orally, so she just did a straight swap. Got the prescription today and I’ll collect it tomorrow in time for taking it on Friday.
In truth, I feel as if I needed to up mtx and we had discussed it at a previous appt. But I absolutely hate mtx, even though I can’t do without it. I tried stopping it just before Christmas and the second week, I had a massive flare, I couldn’t restart it quick enough. In all the meds we have to take, I have never liked taking mtx as it’s a poison. Every week we take it and force our bodies to tolerate it.
Feeling low now.
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sciqueen
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Keep pushing to go back to Enbrel, I did and was switched back, although like you I'm now going onto injectactable mtx. Has my first one yesterday and feel c**p this morning. Been on mtx tabs for years so I'll have to wait and see if I can tolerate it via in Ecton.
Been on Humira for 3 and a half years now. It was already too late for me as my lungs were seriously affected by AS restricting ribcage movement to add to my COPD.
As long as it warms up to air temp., I never experience sharp pains, although I did have one explode on my thigh (that was a b**ch). I only take in my rather padded tummy now, and I don't really feel anything at all.
My advice......avoid lean areas! They keep on trying to stop me ....... financial reasons I guess........but it was (and still is) the best thing to happen to me medically in the last 5 years. It's just a shame that I wasn't put on this drug several years ago, before the lung damage became irreversible.
Good luck. Persevere......most people benefit in the first couple of months ...... I'm not sure I ever gained from it, but I can breathe better now and walk slowly uphill, but this was a very gradual improvement over many months, so not easy to attribute whether it was merely me coming to terms with my predicament or whether it was down to the Humira.
Good luck.....be brave and go for it if the funding is there.
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