Has anyone been refused when they have asked to go back to Enbrel?
Well, I've finally bitten the bullet and asked to go back to Enbrel injections. I've had 14 weeks on Benepali and have gone slowly downhill to the point where I'm worse than when I started Enbrel 14 years ago. I get very little relief from the Benepali injections, maybe 1 or 2 days and I'm getting to the point where it's not worth the side effects for such short term gain. I kept thinking that my pain and swelling were being caused by various other factors but finally dawned on me that the benepali wasn't working once I get the enbrel out of my system.
I spoke to a rheumatoid nurse last week and she agreed to put my request to a consultant (I don't have one at the moment as mine left the trust and has not been replaced). Just waiting to hear if they'll switch me back to enbrel, if they say no I'll just make a fuss and maybe go to the PALS guys to make a complaint.