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Cold
Well I have been of work now science last week in March on methatrexate enbrel and now steroids again I have good days bad days and get fed up when things get the better of me now I have a rotten cold and it's my sons wedding on Friday all I can say is I hate RA pain swelling stiff joints such joy why
Well I have been of work now science last week in March on methatrexate enbrel and now steroids again I have good days bad days and get fed up when things get the better of me now I have a rotten cold and it's my sons wedding on Friday all I can say is I hate RA pain swelling stiff joints such joy why
Mybigpain08
in
NRAS
10 years ago
HEALTH AT HOME.........IS NOT AT HOME!
I USUALLY RECEIVE A CALL FROM HAH TO AGREE A DATE FOR DELIVERY OF ENBREL, ONLY HAVING ONE LEFT I RANG THEM. THE FIRST CALL I WAS 10TH IN THE QUEUE, THE NEXT TIME 18TH IN THE QUEUE AND THE 3RD TIME I WAS 22ND IN THE QUEUE. HOW TO YOU GET THROUGH TO THESE PEOPLE? I HAD HEARD THEY WERE HAVING PROBLEMS
I USUALLY RECEIVE A CALL FROM HAH TO AGREE A DATE FOR DELIVERY OF ENBREL, ONLY HAVING ONE LEFT I RANG THEM. THE FIRST CALL I WAS 10TH IN THE QUEUE, THE NEXT TIME 18TH IN THE QUEUE AND THE 3RD TIME I WAS 22ND IN THE QUEUE. HOW TO YOU GET THROUGH TO THESE PEOPLE? I HAD HEARD THEY WERE HAVING PROBLEMS
muffin
in
NRAS
10 years ago
Decided to give Methotrexate another go
Saw my rheumatologist on thursday as current meds (lefluomide, hydroxy) not working too well. Been pondering about starting enbrel after being given the go ahead a couple of weeks ago. Anyway, make your mind up time arrived on thursday and I decided not to go ahead with enbrel. Instead my rheumatologist
Saw my rheumatologist on thursday as current meds (lefluomide, hydroxy) not working too well. Been pondering about starting enbrel after being given the go ahead a couple of weeks ago. Anyway, make your mind up time arrived on thursday and I decided not to go ahead with enbrel. Instead my rheumatologist
wishbone
in
NRAS
10 years ago
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IS THERE ANYTHING AFTER ABATACEPT.......SIMPLE ANSWER IS 'NO'
I have been battling this disease for nearly 4 years now and have been on almost all the drugs and regimes that are available to me. for one reason or another i have been on and taken off, MTX, Sulfasalazine, Humeria, Enbrel, Tocilimub and am now on Abatacept. i have to say here that i am sero negative
I have been battling this disease for nearly 4 years now and have been on almost all the drugs and regimes that are available to me. for one reason or another i have been on and taken off, MTX, Sulfasalazine, Humeria, Enbrel, Tocilimub and am now on Abatacept. i have to say here that i am sero negative
Jeanabelle60
in
NRAS
10 years ago
Healthcare at Home. Anyone else having problems with them? Waited in 3 days last week. No show. Waiting in again today. Now out of Enbrel!!
Do you have a problem with them - please complain to the NHS and anyone else you can think of. They are abysmal. Never turn up with deliveries. Now have no injections left.
Do you have a problem with them - please complain to the NHS and anyone else you can think of. They are abysmal. Never turn up with deliveries. Now have no injections left.
joyallen
in
NRAS
10 years ago
OUCH !!!
I have just done my 4th Enbrel pen and each one was really painful, just wondered if anyone else finds the pens are more painful, I do Metoject and that does not hurt at all. Any advice would be welcome, ( I already pinch the site and do it in my belly, plenty of fat there !! ) Wendy xx
I have just done my 4th Enbrel pen and each one was really painful, just wondered if anyone else finds the pens are more painful, I do Metoject and that does not hurt at all. Any advice would be welcome, ( I already pinch the site and do it in my belly, plenty of fat there !! ) Wendy xx
nellysgran
in
NRAS
10 years ago
Can anyone share experience of coming off pred?
I've been on it for a couple of months, 10mg a day. When I started enbrel, I began tapering after the second week and got down to five in almost daily drops. For the last 4 days my symptoms have returned painful, stiff joints plus puffy feet and ankles. I'm not getting support from the hospital, I'm
I've been on it for a couple of months, 10mg a day. When I started enbrel, I began tapering after the second week and got down to five in almost daily drops. For the last 4 days my symptoms have returned painful, stiff joints plus puffy feet and ankles. I'm not getting support from the hospital, I'm
cathie
in
NRAS
10 years ago
third Enbrel week
I said I'd report back on progress but I'm not sure there's much to say. I've had the occasional day when I've felt more active and ready to get up and do things, but after Monday's third injection I've felt very tired and achey. When I started I was on 10 pred a day, I'm now down to 5 and am planning
I said I'd report back on progress but I'm not sure there's much to say. I've had the occasional day when I've felt more active and ready to get up and do things, but after Monday's third injection I've felt very tired and achey. When I started I was on 10 pred a day, I'm now down to 5 and am planning
cathie
in
NRAS
10 years ago
Is there anyone who is on Enbrel who also has constant runny nose?
helenlw7
in
NRAS
10 years ago
What's the experience on here of enbrel injection site reaction? Got a small rash 5 days after second injection on both sites
The literature suggests that you should use steroid cream on it. Could this be connected to reduction of steroids? I'm down from 10 daily to 7. Advice would be welcome as I'm just beginning to detect benefits
The literature suggests that you should use steroid cream on it. Could this be connected to reduction of steroids? I'm down from 10 daily to 7. Advice would be welcome as I'm just beginning to detect benefits
cathie
in
NRAS
10 years ago
After 3 years of taking it, no more Methotrexate for me !!!!!
Hi everyone, Well I'd like just a penny for all the times I said, "I don't feel happy taking Methotrexate". Now, I have been taken off it under the guidance of my GP, the Clinical Nurse at rheumatology and my Optician ! Apart from my Vitamin D being low recently (I have started on Adcal-D3 and I feel
Hi everyone, Well I'd like just a penny for all the times I said, "I don't feel happy taking Methotrexate". Now, I have been taken off it under the guidance of my GP, the Clinical Nurse at rheumatology and my Optician ! Apart from my Vitamin D being low recently (I have started on Adcal-D3 and I feel
petalnumber2
in
NRAS
10 years ago
Enbrel starting day might be on hold
Received a phone call from the nurse today saying that my test results were fine and to expect a phone call from the nurse who will be showing me how to inject myself with enbrel in approx a fortnights time. I'm hoping it won't be before the 19th as I have an appointment with my urologist on that day
Received a phone call from the nurse today saying that my test results were fine and to expect a phone call from the nurse who will be showing me how to inject myself with enbrel in approx a fortnights time. I'm hoping it won't be before the 19th as I have an appointment with my urologist on that day
wishbone
in
NRAS
10 years ago
Enbrel and severe Reflux.
I have just started Enbrel but my nights are disturbed 2 or 3 times due to terrible reflux and pains in my chest, but if I have a drink of milk it seems to go away, just wondered if anyone else has had this sort of disturbed nights ?? Wendy x
I have just started Enbrel but my nights are disturbed 2 or 3 times due to terrible reflux and pains in my chest, but if I have a drink of milk it seems to go away, just wondered if anyone else has had this sort of disturbed nights ?? Wendy x
nellysgran
in
NRAS
10 years ago
Starting Embrel
Well the delivery man made it this morning before we'd really finished breakfast. Everything arrived as planned, we did the injection as soon as we'd read the instructions. I'm not good first thing and I found it hard to push the button on the pen, but Paddy was to hand and he took over. I've been taking
Well the delivery man made it this morning before we'd really finished breakfast. Everything arrived as planned, we did the injection as soon as we'd read the instructions. I'm not good first thing and I found it hard to push the button on the pen, but Paddy was to hand and he took over. I've been taking
cathie
in
NRAS
10 years ago
Enbrel arrives Monday
I was in a very low place this morning, very stiff, tired and miserable. When first I get a caring message from NRAS to say they were looking into various issues I'd raised. I'd barely put the phone down when the call I'd been waiting for from bupa/healthcare came. I'm to expect delivery on Monday!
I was in a very low place this morning, very stiff, tired and miserable. When first I get a caring message from NRAS to say they were looking into various issues I'd raised. I'd barely put the phone down when the call I'd been waiting for from bupa/healthcare came. I'm to expect delivery on Monday!
cathie
in
NRAS
10 years ago
Starting Enbrel tomorrow,
Just wanted to ask if anyone who started Enbrel, stopped taking. sulfa and hydroxy the day before. I have been reading the instructions and it says that anyone taking Sulfa is not allowed to take Enbrel,????? Any advice would be welcome, Wendy xx
Just wanted to ask if anyone who started Enbrel, stopped taking. sulfa and hydroxy the day before. I have been reading the instructions and it says that anyone taking Sulfa is not allowed to take Enbrel,????? Any advice would be welcome, Wendy xx
nellysgran
in
NRAS
10 years ago
Have I run out of Bio's?
For the last ten months I have been on this site praising the drug Abatacept. It allowed me to live a near normal life again. i was even able to do volunteery work for a while. My granddaughter laughed hard at me when I told her to look at me actually 'running' (well sort of like running). i was game
For the last ten months I have been on this site praising the drug Abatacept. It allowed me to live a near normal life again. i was even able to do volunteery work for a while. My granddaughter laughed hard at me when I told her to look at me actually 'running' (well sort of like running). i was game
Jeanabelle60
in
NRAS
10 years ago
medication
After 2 years with enbrel failed from 2month and my dr change to cimzia.any advise
After 2 years with enbrel failed from 2month and my dr change to cimzia.any advise
khegazy1965
in
NRAS
10 years ago
More waiting for Enbrel
Had a hospital appointment for what I hoped would be to get me started on Enbrel. Sadly however it was another box-ticking exercise and I still have to wait - about two weeks to get it. I think this must be the last phase, but it doesn't help much. two interesting things, I was offered the choice of
Had a hospital appointment for what I hoped would be to get me started on Enbrel. Sadly however it was another box-ticking exercise and I still have to wait - about two weeks to get it. I think this must be the last phase, but it doesn't help much. two interesting things, I was offered the choice of
cathie
in
NRAS
10 years ago
Ever since going on enbrel I have been having a lot of anxiety & panic attacks and I'm wondering if anybody else out there is experiencing
I can't find much literature linking the two but it just seems too much to be a coincidence and I was hoping to find others who have research this and have an idea if there is a link between the two.
I can't find much literature linking the two but it just seems too much to be a coincidence and I was hoping to find others who have research this and have an idea if there is a link between the two.
delbazil
in
NRAS
10 years ago
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