Received a phone call from the nurse today saying that my test results were fine and to expect a phone call from the nurse who will be showing me how to inject myself with enbrel in approx a fortnights time. I'm hoping it won't be before the 19th as I have an appointment with my urologist on that day as I need to discuss some concerns I have before starting TNF drug treatment.
The problem is I have a chronic urological disorder, which means, amongst other things, that I get recurring urinary tract infections. Not only that, and perhaps of more concern is, apparently, and I emphasize apparently, I run a higher than normal risk of getting cancer with my condition. Hence I need hear what my urologist has to say before I start taking a drug that reduces the body's ability to combat the disease. The nurse understood my concerns when I told her and agreed that I should not start enbrel until I hear what my urologist has to say, and to get back in touch after I've seen him.
Interestingly, ten minutes after the phone call, as my wife and I were discussing what had been said, which included me seeking reassurance that I wasn't being paranoid about getting cancer, when I had another phone call from the nurse. She said that they are interested to hear what my urologist has to say and would I be kind enough to ask him to to get in touch. I presume that the nurse must have spoke to my rheumatologist. Not sure why they would want to speak to my urologist - could be just about me I suppose, or maybe to glean some info for future referance??
I've had a really rubbish time since I got this urological condition about 18 months back. It's caused all sorts of problems with treating my RA. Had it pretty much under control with MTX for the previous 9 years but had to stop taking it due to stubborn UTIs, and just to round thing off nicely I go and get smitten (i like that word) with sciatica, which has caused me to be more or less house bound for the last 7 weeks. Just hope I get the go ahead with enbrel and it can at least improve things a bit, but knowing my luck!.....
Sorry for the negative post. I really do try to keep my chin up but things have got a bit on top of me of late.