Well I'd like just a penny for all the times I said, "I don't feel happy taking Methotrexate". Now, I have been taken off it under the guidance of my GP, the Clinical Nurse at rheumatology and my Optician !
Apart from my Vitamin D being low recently (I have started on Adcal-D3 and I feel much better). However, I've had some difficulties with my eyes too, a bit of double vision, blurred vision and some funny eye disturbances since the beginning of the year. I saw my Doc about it and he sent me for a pressure test and I had a complete eye test at the same time. New lenses needed, so ordered new glasses.
I picked up new glasses in April just before hubby and I went down with this awful chest virus which spread like wildfire amongst people I know. Armed with antibiotics, cough mixture etc, I left my MTX and Enbrel off to give my immune system a chance to put up a fight, as you do......
After 2weeks off meds I noticed that I could see better without my new glasses and my old ones were doing the job again !!
I've had 3 Enbrel injections since recovering, but no MTX as my Doc thinks it is responsible for my eye problems, (it is one of the possible side effects). The clinical nurse agrees that eyesight is paramount, but I could suffer more joint damage as a result of stopping it, anyway she is agreeable to leaving it off.
I have already noticed a difference in joint pain and swelling, particularly my toes, ankles and knees which have always been the worst areas for me, but there's no contest when it comes to eyes, I believe.
I've read a little bit on here recently about the concerns of taking MTX for the first time after reading all the info and being terrified to take it. I really do identify with that feeling of terror because it is a daunting prospect when you've just been diagnosed and it takes some time to settle down to accepting that you have this disease and the drugs are seriously strong. So my heart goes out to those people.
As for myself, I have taken MTX for 3 years this month and though I do have damaged ankles/toes and knees I'm pretty sure the initial damage was done before diagnosis and medication. I know MTX has done a good job of protecting me against further damage, which is important, I know. Now, Enbrel is really under my microscope, will it look after me on it's own ???? We shall see, given time.
Good wishes to all, especially those newly diagnosed and going through a minefield of emotions and decisions about medication. June xx